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 An Explanation and Cure for a common cause of CPPS - Update! 
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Joined: Mon Apr 15, 2013 12:45 pm
Posts: 14
Post Re: An Explanation and Cure for a common cause of CPPS
Right, I understand about the massage therapy thing. It's just so frustrating and expensive here, so all massage therapy is an out of pocket expense. I still think the massage therapy thing helped overall, and I'm not a point where this is just an annoyance and not super painful/debilitating ever. I'll try looking at Tui Na then, and search for the most reputable practitioner possible. I definitely felt bruises/pain from the previous round of massages, so I'm curious what this will entail.

I definitely had a twisted pelvis when I first started, and one leg was indeed stretched further than the other. I'm sure I haven't been vigilant enough in following up, but those massages did wonders for my posture and my hip does feel back in proper place. I clearly missed something though, and feel like I'm always learning new things about the body.

As for the disk out of place, they didn't specify which yet (it's definitely in the lower back, just haven't gone over the results yet). I've had a history of poor posture, a really bad clavicle injury that kinda tilted me one way for awhile, etc.

Another quick question. I know this affliction is usually called chronic pelvic pain, but I seldom get pelvic pain. Doc also recently said my prostate wasn't really that inflamed. My biggest problem has been with a sort of perineal/rectal pain, occasional burning urination, and painful ejaculations. Unlike seemingly a lot of posters here though, my symptoms just seemingly go away on their own if I stay completely passive for a couple of weeks.. which isn't realistic. Things like running/exercise definitely aggravate it.

Thanks so much for reading my rambling walls of texts, man. It really helps to get this info out there!


Wed Nov 20, 2013 8:51 pm
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Joined: Thu Feb 14, 2013 5:33 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
jg6075 wrote:
Right, I understand about the massage therapy thing. It's just so frustrating and expensive here, so all massage therapy is an out of pocket expense. I still think the massage therapy thing helped overall, and I'm not a point where this is just an annoyance and not super painful/debilitating ever. I'll try looking at Tui Na then, and search for the most reputable practitioner possible. I definitely felt bruises/pain from the previous round of massages, so I'm curious what this will entail.

I definitely had a twisted pelvis when I first started, and one leg was indeed stretched further than the other. I'm sure I haven't been vigilant enough in following up, but those massages did wonders for my posture and my hip does feel back in proper place. I clearly missed something though, and feel like I'm always learning new things about the body.

As for the disk out of place, they didn't specify which yet (it's definitely in the lower back, just haven't gone over the results yet). I've had a history of poor posture, a really bad clavicle injury that kinda tilted me one way for awhile, etc.

Another quick question. I know this affliction is usually called chronic pelvic pain, but I seldom get pelvic pain. Doc also recently said my prostate wasn't really that inflamed. My biggest problem has been with a sort of perineal/rectal pain, occasional burning urination, and painful ejaculations. Unlike seemingly a lot of posters here though, my symptoms just seemingly go away on their own if I stay completely passive for a couple of weeks.. which isn't realistic. Things like running/exercise definitely aggravate it.

Thanks so much for reading my rambling walls of texts, man. It really helps to get this info out there!


I went to the London Podiatry centre in Lewisham and got a 3D biomechanical scan. They were able to show me why my biomechanics were messed up and how it had originated from my toe. They also found that my Calf muscle was almost totally rigid and had no flexibility. Taking that back to the Tui Na specialist helped him speed up my recovery.

If you feel your pelvis is straight and not tilted forward then maybe you need to get some direct work on the pelvic floor muscles. The rectal pain is probably coming from tight anal sphincter muscles. These go into spasm when your pudendal nerve is irritated and also when a Sacro Iliac Joint is out of place. The pelvic floor usually goes into guarding mode as it senses the bones around the pelvis being out of alignment. It does sound like your pelvic muscles are tight.

Do check out the disk as well. Running will irritate it as you are putting your faulty biomechanics under more stress. Have you had you SI Joint put back into alignment by an Osteo or Chiro? Does that help?


Wed Nov 20, 2013 9:09 pm
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Joined: Mon Apr 15, 2013 12:45 pm
Posts: 14
Post Re: An Explanation and Cure for a common cause of CPPS
I don't think my SI joint is back in place, and that wasn't formally addressed so that could still be a problem. I'm going to see what the deal with this disk is and kind of take it from there, even if it's not related. I do recall pelvic muscle spasms showing up on a prior scan (X-Ray I think). There's just so much stuff to isolate and so many variables, but I feel like I'm starting to narrow things down a little more after a year of inconvenience.


Thu Nov 21, 2013 10:16 pm
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: An Explanation and Cure for a common cause of CPPS
How much does a 3d biomechanical scan cost David? You have so much knowledge now, you ever considered becoming a specialist of some sorts in tbis area?


Sun Nov 24, 2013 4:58 pm
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: An Explanation and Cure for a common cause of CPPS
My diagnoses from osteopath

- Increased muscle tension of the erector spinae muscles on the right.
- Tenderness on palpation of the right gluteal and Piriformis muscles
- Tenderness on palpation of the right psoas muscle.
- Decreased Range of motion on side bending to the right in the lumbar spine.
- Increased frequency of urination
- Muscle spasms into the gluteal muscle on the right throughout the day.


my osteopath has written to my doctors specifically asking for further investigation. Hoping for a MRI scan personally. David88, I have been round in a huge circle of possible cures etc, but it kind of appears that I am looking to be in your criteria of the common cause of CPPS.


Thu Dec 19, 2013 6:18 pm
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Joined: Thu Feb 14, 2013 5:33 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
So it sounds like your pelvis is twisted to the left.

This means your right Psoas muscle is tight for some reason.

Your job is to work out why your body is twisted.

Did you have an injury to the pelvis/lower back that might have caused the right SI joint to pop out? This could have been long ago.

Do you have any joint movement restrictions in other parts of your body? Any of your toes? Ankle, knee, etc?

Do all your toes bend up and down the same amount?

Any previous neck injuries?

Mine ended up being caused by my toe so it can be as seemingly small and unrelated as that.

If you have a restriction in any part of your body the rest of it will adjust. Things which don't hurt or seem to be the issue could well be causing pain else where.

The scan costs about £400. Expensive but will show up your biomechanics so cheap in the long run.


Tue Jan 07, 2014 3:11 pm
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Joined: Thu Feb 14, 2013 5:33 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
jg6075 wrote:
I don't think my SI joint is back in place, and that wasn't formally addressed so that could still be a problem. I'm going to see what the deal with this disk is and kind of take it from there, even if it's not related. I do recall pelvic muscle spasms showing up on a prior scan (X-Ray I think). There's just so much stuff to isolate and so many variables, but I feel like I'm starting to narrow things down a little more after a year of inconvenience.


Your SI Joints should go back into place once you get your pelvis and body to go straight.

Why are you Psoas muscles tight? That's something for you to work out?

Are your hip muscles compensating for a problem in your leg or toe? Are you not getting enough spring from your forefoot?

Keep looking into it.


Tue Jan 07, 2014 3:24 pm
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Joined: Fri May 17, 2013 2:53 pm
Posts: 340
Post Re: An Explanation and Cure for a common cause of CPPS
David,

Do you have any links on correct posture and alignment. All my muscles are the left side are tight and have numberous points of sensitivity in my iliopsoas, sitz bone, gluttous maximus, and lower abdomin.

Symptoms are moving pain frow lower abdomin, right testicle, perenium, and lower back. Usually one or two domains at a time but not all at once. Sitting aggrevates it and standing relieves it almost entirely.

Currently doing physical therapy and trying to straighten my gait when I walk along with stretches, but hit a plateau and can't seem to move past it. Thoughts?

If my problem isn't muscle considering all the pain spots then likely something spinal or worse Fibromyolagia.


Tue Jan 07, 2014 5:10 pm
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Joined: Thu Feb 14, 2013 5:33 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
Evilpog wrote:
David,

Do you have any links on correct posture and alignment. All my muscles are the left side are tight and have numberous points of sensitivity in my iliopsoas, sitz bone, gluttous maximus, and lower abdomin.

Symptoms are moving pain frow lower abdomin, right testicle, perenium, and lower back. Usually one or two domains at a time but not all at once. Sitting aggrevates it and standing relieves it almost entirely.

Currently doing physical therapy and trying to straighten my gait when I walk along with stretches, but hit a plateau and can't seem to move past it. Thoughts?

If my problem isn't muscle considering all the pain spots then likely something spinal or worse Fibromyolagia.


Muscular and Spinal problems go together. It's unlikely you have a Spinal problem without it having a muscular component. Especially when you have pain in so many places.

Fibromyolgia is a Syndrome and I must admit to not knowing much about it. I would think however it's similar to CPPS where conventional medicine gives something a name just to group something into something they can talk to patients about. I would expect it to be a muscular nerve problem just like CPPS so I wouldn't rush to accept that diagnosis. My general rule is that if a Doctor can't explain or treat a condition it usually means that they don't even know what's really happening and I look for answers elsewhere.

Sound like your left hip area has very tight muscles. I'd presume at least one of your SI Joints is out of alignment. Sitting would certainly aggravate your Sacro-Iliac Joints.

Any previous trauma to the body? Any stiff joints below the pelvis?


Tue Jan 07, 2014 6:58 pm
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Joined: Fri May 17, 2013 2:53 pm
Posts: 340
Post Re: An Explanation and Cure for a common cause of CPPS
No known trauma but knees are stiff and have gotten pain in my legs when squatting as if I just ran a mile up the side of a mountain.


Tue Jan 07, 2014 11:01 pm
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Joined: Mon Jun 10, 2013 11:52 am
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Post Re: An Explanation and Cure for a common cause of CPPS
Hello guys. It s been a while since I posted anything. This discussion is very interesting. I have prostatitis problem for the second time. First time it started half a year after surgery to my knee which has altered for a long time how I walked and shifted my pelvis but nevertheless back then antibiotics and anti-inflammatories done the job. Ten years later I had an operation on the same knee. Again gait altered, shifting my pelvis differently when walking and not even one year later prostatitis came back. Have eaten tons of drugs and nothing, it is burning out slowly on its own. But when I just got used to live with it, one year later I started suffering headaches, preassure in my ears and tinnitus. Done MRI scans and CT scans, seen neurologists, ent specialists and they don't see anything. I just wonder if am so unlucky that I tend to have so many problems in different parts of my body or is it somehow connected. Does anyone have any thoughts? Regards guys.


Wed Jan 08, 2014 1:50 pm
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Joined: Thu Feb 14, 2013 5:33 pm
Posts: 484
Post Re: An Explanation and Cure for a common cause of CPPS
contamination wrote:
Hello guys. It s been a while since I posted anything. This discussion is very interesting. I have prostatitis problem for the second time. First time it started half a year after surgery to my knee which has altered for a long time how I walked and shifted my pelvis but nevertheless back then antibiotics and anti-inflammatories done the job. Ten years later I had an operation on the same knee. Again gait altered, shifting my pelvis differently when walking and not even one year later prostatitis came back. Have eaten tons of drugs and nothing, it is burning out slowly on its own. But when I just got used to live with it, one year later I started suffering headaches, preassure in my ears and tinnitus. Done MRI scans and CT scans, seen neurologists, ent specialists and they don't see anything. I just wonder if am so unlucky that I tend to have so many problems in different parts of my body or is it somehow connected. Does anyone have any thoughts? Regards guys.


It's all connected mate. Why wouldn't it be.

It's all due to muscle chains that run up and down your body. Have a problem in one area and the whole body adjusts. Over time the muscles get tired and build up muscle scar tissue which weakens and shortens the muscle. This pulls your joints out of place and puts pressure's on nerves and other functions.

The ear problems are likely coming from muscle tightness in your TMJ (jaw and neck) as are the headaches. Sounds like your whole body has become twisted and out of alignment.

Go see a Chiropractor to gain some understanding and then start massaging.


Wed Jan 08, 2014 3:39 pm
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Joined: Tue Jun 04, 2013 4:08 pm
Posts: 142
Location: Lincolnshire, England
Post Re: An Explanation and Cure for a common cause of CPPS
Thanks for your reply Dave. Recently started having sports massages, where it was established my psoas is really short and tight, the left side of my back is also really knotted (probably compensating) My hamstrings, itb's and quads are also really tight.

Had 3 sessions so far, each time I have symptom free for longer and longer. First it was six hours, third time was nearly 3 days before it slowly came back. Going to go for 2 massages a week now, thanks for continuing to contribute to the forum.

Looking back before the nightmare started, I had stiff hamstrings, spasms which I believe started after I used bad form on a weight lifting exercise at the gym. Then they found I had a uti which obviously took my onto different causes other than muscular.

Also found that my work boots were making my symptoms worst, currently wearing trainer when possible now.


Thu Jan 09, 2014 4:15 pm
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Joined: Thu Feb 14, 2013 5:33 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
UKSufferer wrote:
Thanks for your reply Dave. Recently started having sports massages, where it was established my psoas is really short and tight, the left side of my back is also really knotted (probably compensating) My hamstrings, itb's and quads are also really tight.

Had 3 sessions so far, each time I have symptom free for longer and longer. First it was six hours, third time was nearly 3 days before it slowly came back. Going to go for 2 massages a week now, thanks for continuing to contribute to the forum.

Looking back before the nightmare started, I had stiff hamstrings, spasms which I believe started after I used bad form on a weight lifting exercise at the gym. Then they found I had a uti which obviously took my onto different causes other than muscular.

Also found that my work boots were making my symptoms worst, currently wearing trainer when possible now.


Any toe, ankle, calf, knee restrictions?


Thu Jan 09, 2014 5:16 pm
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: An Explanation and Cure for a common cause of CPPS
Not that I can feel or physically see when trying various types of movement etc. Thanks, Shane.


Sat Jan 11, 2014 6:01 am
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: An Explanation and Cure for a common cause of CPPS
Image

Updated Back Pictures


Last edited by UKSufferer on Tue Feb 04, 2014 4:54 pm, edited 1 time in total.



Sun Jan 19, 2014 2:25 pm
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Joined: Thu Feb 14, 2013 5:33 pm
Posts: 484
Post Re: An Explanation and Cure for a common cause of CPPS
You need someone else to take it and you need to have your back to the camera standing normally.


Wed Jan 22, 2014 10:30 pm
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Joined: Sun Jan 26, 2014 2:17 am
Posts: 28
Post Re: An Explanation and Cure for a common cause of CPPS
My symptoms may have started around the time I had a pretty violent sports accident (I surf very big waves on the NS of Oahu).

I'm going to start sessions with guy who I know to be insanely good chiropractor. I didn't really even believe in chiropractic medicine until this guy gently did away with 2 years of severe pain that I had in my upper back in just a few sessions.

Would this be an appropriate thread to log my results, if any?


Tue Jan 28, 2014 12:47 am
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Location: Lincolnshire, England
Post Re: An Explanation and Cure for a common cause of CPPS
I have updated the picture further up the thread. Let me know what you think, cheers Dave.


Tue Feb 04, 2014 4:55 pm
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Joined: Fri Feb 28, 2014 1:08 am
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Post Re: An Explanation and Cure for a common cause of CPPS
UKSufferer:
My back looks like yours but I'm trying to figure out if I have anterior or posterior pelvic tilt. My picture as well as your picture looks neutral but like David said, a professional would be able to tell what kind of tilt we have.

I'm unemployed right now so I'm strapped for cash and cannot see a Chiropractor or an Osteopath. But if one can determine what kind of pelvic tilt he/she has, than there are enough info on the net on how you can correct this with stretches and exercises. The most common form of pelvic tilt is anterior so right now I'm going to assume it's anterior and start treatment since I have no money to spend on chiropractors.

It's good that you mentioned you work out at a gym. Anterior pelvic tilt is very common with athletes and trainers that work at the gym.


Wed Mar 12, 2014 7:31 pm
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Joined: Wed Mar 12, 2014 4:41 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
Hi David88!

I've only read to page 3 on this thread, and I will finish it,
and I just wanted to say that I agree with you and that you have my support in both your non-compromising positive attitude and theory.
It's so good to see you are also of the mind that we have to take the responsibility for fixing this ourselves, and use any tools and tips we can get.

Don't have much time to write more right now, but just felt I had to tell you.

Kind regards


Thu Mar 13, 2014 6:33 am
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Joined: Thu Feb 14, 2013 5:33 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
Thanks Mawhonic,

Good to hear you are moving forward.

It's a battle no one wanted to fight, but that's life.

No one has a right to be happy, you have to fight for it.


Wed Mar 26, 2014 1:56 pm
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Joined: Thu Feb 14, 2013 5:33 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
Hi,

There is quite a lot going on in your back.

We can see that the left hip looks higher than the right. This has caused your lower back to be at an angle. The body has compensated however and as we go up your spine it is being pulled back in the opposite direction. Your shoulder heights are different two.

Looking at the side on shot we can see that your pelvis is rolled forward and your head is also sticking out. There's a pronounced forward curve from the middle of your back, up your neck and into the skull.

Perfect conditions for a tight pelvic floor and Prostatitis as well as a host of other conditions.

You can see a Chiropractor/Osteopath and a Massage Therapist but we need to figure out why your hips are uneven.

I will also start at the feet as that is the origin of a lot of biomechanical problems.

Any issues there? Do your toes bend upwards to all the same angle? Ankle issues?



Image


Wed Mar 26, 2014 2:12 pm
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Joined: Thu Feb 14, 2013 5:33 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
Image


Wed Mar 26, 2014 2:12 pm
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Joined: Thu Feb 14, 2013 5:33 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
You also need to make sure you take the photo at a 90 degree angle to your body.

Any slants make it much harder to be accurate.


Wed Mar 26, 2014 6:50 pm
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