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 suffering for 2 years 
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Joined: Thu Jul 25, 2019 3:13 pm
Posts: 49
Post suffering for 2 years
I have found this website when I was searching for my unsolved problem ,I am living in UAE ,37 yrs old ,since 2 years I am suffering from the prostate inflammation , I remembered in the beginning I feel my penis getting always semi hard i thought I am arouse almost of the days but after a month the disease attack me and unfortunately I didn't realized that getting hard without reason is the first indication that my prostate getting infection ,in the beginning I visited the worst doctor here (I know that at the end he is the worst ) first time he just said its small infection nothing to worried ,after 2 weeks I submitted to emergency and again said nothing to worried he gave me 2 g rocphin and levofloxiacin ,but the bugs what ever its , it is already go deeply and settle there ,very painful ejaculation with painful in rectal that make me cry and can't sleep ,just submitted to hospital every week to sleep ,sex with my wife became like a hell ,imagine every time we finish relation I have to go for emergency room from pain in my lower parts ,tried 12 doctors after that , results was not clear no bugs nothing at all ,my wife start to get etch every time we do intercourse !! I stopped the antibiotic cause its useless and try omnic ocas ,3 weeks of OMNIC then she got E.COLI after intercourse ,the damn doctors said its not from me then give her medication and said sex no need to use condom ,again she got the same infection and I did the same mistake check another idiot consultant he said the same ,she got for 3rd time the infection after she healed and did the culture for second time , I realized its from me even though this idiots doctors telling use something else after the 3rd time i use condom till today and she never got E.coli again ,so we catch one bug but through indirect way ,I start to learn and read about the prostatitis , now I have read a lot of references and i won't allow any doctor to play on my mind ,i took her culture and give it to the first one who treat me ,I though he will start to find a solution ,he said i don't have any problems and he will never give any more antibiotic !! this idiot who is the main reason for this problem ,I remember he distract my attention by sending me to do colonoscopy and to Psychology doctor he distract my attention ,any way now I am doing the correct steps by my self (I tell doctors what to do) EPS + urine culture + semen culture , first I have to stop sex for 4 days and also antibiotic for a month (non of them say anything like that before !!) ,
medicine I have tried in 2 years :
ceftriaxone 1g one time + LEVOFLOXACIN 30 days 2 different brand one oral daily
vibramicina 100mg BID+anti inflammatory
ominic mucas & CELEBRICITY
xatral 10 mg +tavanic 1 day
ominic mucas &ceprobay 500 Ciprofloxacin
Cipro 750 BID + E.coli pill
azithromycin 250 mg 6/ceftriaxone 10 IM

going to try
CO trimoxazole BID month+Metronidazole500 mg BID 7 day +Cefaclor 500 mg BID 7 day ,

if anyone have any idea or advice please let me know ,I am suffer and still young .


conclusion

If you have prostatitis don't take antibiotic till u get that EPS,URINE,semen culture and blood culture done then take enough dose for your weight and long enough to prevent any recurrence of the disease ,if ur infection not clear try to do EPS culture many times till u got what inside ,ur partner if show an infection after ur prostatitis there is high probability its your bugs which not shown in culture .


Thu Jul 25, 2019 8:24 pm
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Joined: Thu Jul 25, 2019 3:13 pm
Posts: 49
Post Re: suffering for 2 years
updates

I have got a positive gram cocci in urine and 80 Pus cell but still culture results not come out ,I learn a great lessons and want to share everybody

1-first don't take any antibiotic till you find out .
2-search for good doctor who is professional i keep changing them (12 Docs ) till I found someone who is in 70th have a great experience .
3-keep doing a urine ,semen and EPS analysis +culture (aerobic and anaerobic ) many times even after you catch one bug may be the others still there hide .
4-correct way to drain the prostate and Do correctly rectal press .
5-before going for the EPS please stop doing sex/masturbation for 4 to 6 days more is better .
6-correct results came while not taking antibiotic for weeks and not few days .
7-TRUT important for any abscesses .
8-sometimes more sex dosn't work to drain ur prostate it lead to sever pain but rest from sex during antibiotic work better special with massage or drain
9-(new)fungal /yeast culture can be done and it take 4 to 5 weeks
10- PCR microgen which i am going to try


Last edited by doyenofcastle on Wed Aug 21, 2019 12:56 pm, edited 1 time in total.



Sun Aug 04, 2019 9:04 pm
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Joined: Wed Mar 06, 2019 7:46 am
Posts: 15
Post Re: suffering for 2 years
Hi

You can try a DNA test by googling "prostate-kit-self-pay" which is a service provided by Microgendx and they will do sampling to any country worldwide i believe. I'm interested to know what your culture shows when you get it.

I'm really sorry for the bad experience you had with doctors. I had a similar situation with the first doctor I saw who believed I had no infection based on the negative urine culture, despite me explaining to him the pain I was in.

Your lessons 1-8 make a lot of sense. What is a TRUT? Did you have an operation on your prostate?

Regards
Simon


Fri Aug 09, 2019 11:46 am
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Joined: Thu Jul 25, 2019 3:13 pm
Posts: 49
Post Re: suffering for 2 years
simon_2019 wrote:
Hi

You can try a DNA test by googling "prostate-kit-self-pay" which is a service provided by Microgendx and they will do sampling to any country worldwide i believe. I'm interested to know what your culture shows when you get it.

I'm really sorry for the bad experience you had with doctors. I had a similar situation with the first doctor I saw who believed I had no infection based on the negative urine culture, despite me explaining to him the pain I was in.

Your lessons 1-8 make a lot of sense. What is a TRUT? Did you have an operation on your prostate?

Regards
Simon

Hi simon ,

TRUT trans rectal utlrasonic its an examination
for PCR I have some question
there is two kit one have more options than other kit so which one I have to choose also does the sample of semen mean only semen after mastu. or prostate secretion after massage ? also if the cost they charged 240 $ included shipping from and to or just to me ? what they mean by Physician Signature ?
sorry so much questions but I want to be sure what I am going to do


Wed Aug 21, 2019 1:45 pm
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Joined: Thu Jul 25, 2019 3:13 pm
Posts: 49
Post Re: suffering for 2 years
simon_2019 wrote:
Hi

You can try a DNA test by googling "prostate-kit-self-pay" which is a service provided by Microgendx and they will do sampling to any country worldwide i believe. I'm interested to know what your culture shows when you get it.

I'm really sorry for the bad experience you had with doctors. I had a similar situation with the first doctor I saw who believed I had no infection based on the negative urine culture, despite me explaining to him the pain I was in.

Your lessons 1-8 make a lot of sense. What is a TRUT? Did you have an operation on your prostate?

Regards
Simon

I strongly believe everyone here or majority have calcification ,this calcification somehow is the fortress for the bacteria to grow and never defeated once we discover a new approach how to destroy this defense all of us will cured


Last edited by doyenofcastle on Thu Aug 22, 2019 4:45 pm, edited 1 time in total.



Wed Aug 21, 2019 2:06 pm
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Joined: Mon Jun 19, 2017 11:11 pm
Posts: 215
Location: Canada
Post Re: suffering for 2 years
you mention rectal pain

Make sure you rule out Levator Ani Syndrome...spasm of internal anal shpincter...can cause urination problems and be confused with a prostatitis....it's basically a general spasm of the pelvic floor, no easy fix.


Wed Aug 21, 2019 4:17 pm
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Joined: Thu Jul 25, 2019 3:13 pm
Posts: 49
Post Re: suffering for 2 years
racebannon wrote:
you mention rectal pain

Make sure you rule out Levator Ani Syndrome...spasm of internal anal shpincter...can cause urination problems and be confused with a prostatitis....it's basically a general spasm of the pelvic floor, no easy fix.



actually the recent gram stain show Gram + cocci but negative culture after 3 days


Thu Aug 22, 2019 4:49 pm
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Joined: Mon Jun 19, 2017 11:11 pm
Posts: 215
Location: Canada
Post Re: suffering for 2 years
doyenofcastle wrote:
racebannon wrote:
you mention rectal pain

Make sure you rule out Levator Ani Syndrome...spasm of internal anal shpincter...can cause urination problems and be confused with a prostatitis....it's basically a general spasm of the pelvic floor, no easy fix.



actually the recent gram stain show Gram + cocci but negative culture after 3 days


Forgive me but what the hell dies that mean

This condition is so alien it’s time to fly to the stars


Fri Aug 23, 2019 9:46 pm
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Joined: Thu Jul 25, 2019 3:13 pm
Posts: 49
Post Re: suffering for 2 years
I have large calcification in my prostate and think this why not healed below from research

(To our knowledge, our study is the first to compare the effects of medication in CP/ CPPS patients with and without prostate calculi. Our data suggests that the presence of calcifications correlates with a longer effective treatment period, suggesting a possible chronic infection. A possible mechanism whereby CP/CPPS becomes chronic and resistant to medication is calcification; chronic calcification could lead to local tissue injury and inflammation, and the calcification itself could be the source of infection that harbors microorganisms. A recent study demonstrated that men with recalcitrant CPPS with prostatic calculi treated by combination therapy to eradicate nanobacterial calcification improved significantly after three months11.

In this study, prostatic calcification was associated with longer symptom duration. If calcification is an effect of repeated bouts of infection and/or inflammation, calcification could be a marker of disease duration. The obstruction of prostatic glands duct could be caused by calcification, which can lead to increased intraprostatic pressures and secondary inflammation. Such a mechanism could explain the temporary relief of symptoms by anti-inflammatory medication and prostatic massage.)


Sun Aug 25, 2019 6:37 pm
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Post Re: suffering for 2 years
continue

Many patients have had symptoms and several courses of treatment long before a culture has been attempted. The microorganisms may have been killed, but, without removal of obstruction, the inflammatory process may continue in the affected gland. This chronic inflammation may, eventually, live its own life, either due to persistence of highly resistant clones of microorganisms in low concentration and/or inflammatory reaction to products of the immunological defense mechanism and/or inflammatory reaction to glandular secretions/pus/detritus which cannot escape. Therefore, cultures
From prostatic expressed secretion may not yield a positive result. Furthermore, even in presence of microorganisms in high = culturable concentrations, the culture may be (permanently or temporarily) negative if the process is sealed off by a stone or scar tissue.


Sun Aug 25, 2019 6:42 pm
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Joined: Thu Jul 25, 2019 3:13 pm
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Post Re: suffering for 2 years
after the 15 male doctors i visited them I have to listen to my wife and make a visit to her female urologist which I was refusing in the beginning ,my first impression was that Finally someone want to listen to you , will take all your papers tests and make a copy from every pages and discuss in details ,more comfortable to talk than those who treat you as a psychology crazy patient ,I think experienced female urologist much better than male as from my opinion they know they are few and they want to show they are competent to those men urologist ,so far we ll do semen in qPCR and if no bacteria growth the cystoscopy is next as last step to figured out .


Wed Sep 04, 2019 6:40 pm
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Joined: Thu Jul 25, 2019 3:13 pm
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Post Re: suffering for 2 years
latest but important update

I have found a professor in microbiology doing the test of EPS by him self in his lab in egypt , I travel there and he take the sample and i was thinking what he will do in his small lab I have tested more than 20 culture in big hospital with negative results ,but I was suprized when I pick up the results ,its multi resistance E.coli ,its only sus to amikacin ,levofloxa ,gentamicine and cefotaxime ,,I don't know why its sus to levofloxacin even I take 3 months no results ,now anyone sufer from that ?any suggestion ? i am clueless all my previous medicine given to me in the resistance column ,I never have relation or any sex outside how I got that ?


Sun Oct 27, 2019 1:36 pm
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Joined: Thu Jul 25, 2019 3:13 pm
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Post Re: suffering for 2 years
I just start with fosfomycin dose every 48Hrs + BID doxycyline 100 mg + BID 750 olive leave extract beside 14 days cefuroxime axetil BID 500 mg this for ear infection actually , I plan for 2 months then I ll hit by IM cefotaxime 2g daily ,last week the condom was tear and my wife immediately got the E coli we did 3 test and as per the her urethral swab was positive only but her urine culture and vaginal swab was negative ,her ecoli is sensitive to all antibiotic not same mine I think mine is the main source and this other is her baby germs :) anyway her doc prescribed a leVofloxa ,


Sat Nov 16, 2019 4:06 am
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Joined: Thu Jul 25, 2019 3:13 pm
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Post Re: suffering for 2 years
Now after the 2 months and few weeks of fosfo ,I found one lab with new equipment and old experienced microbiologist near my city ,he was able to find the Ecoli again as medium growth ,He explain if the microbiologist not experience enough he will reports this as contamination and maybe this the reason a lot of guys suffer but negative results anyway the culture of sperm show AMIKACIN and other oral ANTIBIOTIC have highest sus ,so 750 BID amikacin according to my weight for 5 days and then start oral ABX for 45 days then do the test ,I plan to do the DNA after that course


Sun Jan 19, 2020 3:09 pm
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Joined: Thu Jul 25, 2019 3:13 pm
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Post Re: suffering for 2 years
One advice for those who will read this post I have been suffering and fighting a ghost for 2 years because of the lack of experience doctor + low quality laboratory so if I use time machine and go back to the point of infection I will insist on EPS with semen culture in a high qualified laboratory with professional microbiologist to identify the bug and its resistance pattern. Then I consult an experienced doctor ,

I won''t take antibiotics without find out who is the enemy either it have shield or not ,this the correct strategy and if I not find any bugs but blood and pus there in semen with inflamed prost I ll keep changing the lab cause there is a pain = abnormal ,what ever doctors will say to you, they doesn't feel what we feel ,also doc who know how to do prostate test within 5 to 10 sec you got some drops if he continue pressing without any drops he doesn't know or his finger very short .


Tue Jan 21, 2020 8:20 pm
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Joined: Thu Jul 25, 2019 3:13 pm
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Post Re: suffering for 2 years
AMIKACIN 750 BID for 5 days clear the symptoms however when I start the oral pills (amoxiclave acid 1g BID)it flare up again :( ,its very clear that penetration of antibiotic to prostate is the main reason ,so AMIKACIN according to culture was given with good results however pills was not sufficient ,I may try IV long course but still need another PCR test first ,the life is ruin because of that Micro germ in my system


Sun Feb 09, 2020 8:14 pm
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Joined: Tue Apr 12, 2016 11:55 am
Posts: 441
Post Re: suffering for 2 years
What is BID?
ADMIN NOTE: To answer your question, BID means twice a day. 'QD' means one a day, TID is three times a day. END NOTE

I had a similar experience with Flomax for urinary restraint, in which it helped to a point where I thought I could stop it...after a month or two. So I stopped, then was off it for a time, and started again. The second time it worked, but was getting high levels of tightness and still trouble with leaking immediately after going. I think it became ineffective for some reason(s). The tightness / tension felt as though the internal urethral tissue was being pulled inside of me strongly...like there was a thick rubber band I was pulling to the back, causing my urethra to get pulled in reverse internally. That's when I stopped that second round of Flomax. I don't know if it was the Flomax, or an adverse reaction I had to it or something else. I also attempted pyridium capsules (swallowing with a cup of water), and it caused my urine to become neon orange, staining the toilet seat, and wasn't helping much.

One hypothesis regarding the calcifications is it can result in obstruction of the prostate gland, and cause inflammation responses to persist / repeat since something (the calcification) is there irritating the organs / tissues and harboring bacteria. I've also read a research paper about bacteria that are able to transmit chemical signals that initialize the inflammation response and excite / overstimulate nerves. E. coli was the bacterial species in the study, if I remember correctly. I'll try to look up that paper again and I could send a link of it to you if you're interested.

A significant part of the selection of medicine in those tests (such as MicrogenDX) is based on the genome sequencing data available for various bacteria spp. It's not the only criteria, obviously, but that is an issue when trying to determine the right medicine because there isn't only one strain of a particular species. There's numerous strains among species, similar to cold / flu viruses, and those strains can be susceptible or non-sus to different medicines / dosage regimes. Certain characteristics of species make them vulnerable to the effects of certain medicines, which is one of the more essential aspects to be aware of while getting tests and agreeing to a prescription. I suggest not only getting tested for EPS, urine, etc., but also get a mouth swab, blood test, and skin test too. E. coli is a prevalent bacteria in the air, water, land, and humans. It's not simply one or a few species that always cause problems, and if a different test than the usuals shows an exact match to the EPS / urine culture, then it might be far more likely for the doctor(s) to select the correct medicine and also help in preventively treating the case.


Mon Feb 10, 2020 3:35 pm
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Joined: Thu Jul 25, 2019 3:13 pm
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Post Re: suffering for 2 years
thanks for your reply and I have done semen test few days ago and Ecoli temporary disappear after amikacin however Staphylococcus aureus was shown with high resistance to many antibiotic only cefotaxime could kill it ,I am going for 1,5 g BID IV +IM as long as I can till we kill it


Wed Feb 12, 2020 4:03 pm
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Joined: Thu Jul 25, 2019 3:13 pm
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Post Re: suffering for 2 years
I am on the middle of new treatment and 4 g of antibiotic through IV ,I did TRUS in a good radiology center ,unfortuently I didn't do the TRUS before 2 years in this center ,I found out inflammation , 3 focal calculi and congested in both seminal vesicles ,again here my theory was correct (unqualified lab + unqualified Radiology +unqualified urology = chronic disease ) ,I came to one research (CHRONIC VESICULOPROSTATITIS) maybe this the main problem due to the first infection ,I don't have any more trust in any doctors or Lab ,if I need surgery I don't know who I should trust he will be professional enough to achieve the cure ,really its the worst feeling when you can't find someone to help you .


Sat Feb 22, 2020 3:26 pm
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Joined: Tue Apr 12, 2016 11:55 am
Posts: 441
Post Re: suffering for 2 years
I say prostatitis is a type of curse. And it's not only due to the chronic pain and physical problems it causes and has with it. It's also the health / medical industry / communities that are rife with confusion, cluelessness, cruel biases, and distortions in testing and understanding / compassion or lack thereof. How is it after years and years of using those same tests, they're still using them, knowing they're ineffective enough to be misleading and often entirely incorrect or induce other problems for patients. Most of the posts I've read in this forum about testing done for bacteria and whether a case is bacterial or non-bact, have expressed or described what sounds like more than simple ineptitude or lack of qualification. It sounds like a critical dilemma in the medical science industry regarding prostatitis. I know doctors often speak without lip service alone about medicine for different illnesses, but prostatitis is a gambling ring for them. And none of them provide even the faintest awareness of the patient's need for conclusive results of clinical trials that adhere to their specific cases / conditions. Almost everything is thrown into a huge, generalized bin of prognoses and diagnoses that require tons of visits, tests, 'try this med for weeks/months, 'it's in your mind/head', 'exercise and you'll be ok', and more nonsense. What is the patient to do with all that?

Aside from the frustration it carries with it, deducing some aspects yourself can be helpful in dealing with the illness and searching for alternatives to floating between doctor offices that portend of the cure. Yet it's still important to go to different health professionals to get knowledge, suggestions, and perchance a medicine or approach that's going to solve it. It's simply better to be a bit more educated than before the illness struck while doing so.


Sun Feb 23, 2020 1:29 pm
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Joined: Thu Jul 25, 2019 3:13 pm
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Post Re: suffering for 2 years
new update which can't be understood ,I did the PCR in microgen DX and it come out very high level of methicillin resistance Entercoccus faecalis !!!never found that in the previous thousands cultures ,recommended antibiotic is vancomycin ,linezolid ,lipopeptide ,fluoroquinol ,fosfomycin ,nitrofurantoin

my read and research found daptomycin is a good one to try IV 1.5 g QD for 10 days , high dose my weight is 115 kg but doubt doctor will give ,any recommendation?
also I let my wife give me massage before giving the sample of semen .


Thu Mar 12, 2020 4:22 am
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Joined: Mon Jun 19, 2017 11:11 pm
Posts: 215
Location: Canada
Post Re: suffering for 2 years
Microgen

guaranteed they find bacteria in every sample

You could take every antibiotic there is and get no results

consider the possibility that you have tight fascia and muscle
that is squeezing your walnut


Wed Mar 18, 2020 4:47 pm
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Joined: Thu Jul 25, 2019 3:13 pm
Posts: 49
Post Re: suffering for 2 years
3 weeks of lineolid (ZYVOX) give great results


Wed Apr 22, 2020 2:31 am
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Joined: Thu Jul 25, 2019 3:13 pm
Posts: 49
Post Re: suffering for 2 years
unfortunately after a week the pain return, may be long term of linzolid is required but 28 days is the maximum safe dose ,my left arm have pain now I hope this not a side effect of linezolid ,now I will do another PCR ,I have read about another injection Telavancin I may ask doctor to check


Wed Jun 24, 2020 3:02 am
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