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 My story, chronic prostatitis associated with weak orgasms 
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Joined: Tue Apr 12, 2016 11:55 am
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Post Re: My story, chronic prostatitis associated with weak orgas
I didn't intend to sound cold or unempathetic like doctors sound sometimes. I started antibiotics without whether it's bacteria causing my symptoms, though I was more certain that it's not bacteria causing my symptoms. You need to do what you believe/think is best for your health, I'm not refuting that. I was simply asking the question of whether or not antibiotics could be ineffective because something else is happening with the bacteria that isn't normal (e.g., not producing enough chemical(s) that a person's body needs, or not absorbing enough chemical(s) it needs to survive or be healthy itself). Sorry to project too much hypothetical stuff your way. I know you have suffered a long time, longer than I have with this prostatitis/CPPS, and it's easy to become weary and ready to try a solution that could work. I hope this one works for you.


Tue May 31, 2016 10:45 am
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Post Re: My story, chronic prostatitis associated with weak orgas
I know. I didn't mean you, I was talking about a lot of doctors I have visited.

I have repeated the culture today, I'll post the results when it's done. I hope it come positive because if it comes negative I'll surely know that it's another false negative. But that would be the perfect excuse for the urologist to say that it's "non-bacterial" which to me mean to bury away the case and run away.

I have asked to the laboratory man about the cystoscopy and he have said that that doesn't show the prostate. I would do it if it were useful to determine something about my problem but if it's to see the bladder I think it's useless. It's too much invasive and maybe painful to do it without a proper reason. I don't think there is anything wrong with my bladder. The burning is in the prostate and that goes also to the penis when I masturbate, but I don't feel any burning in the bladder zone.

I need to find one urologist who know his stuff about prostate massages or another ways to make the antibiotics enter in good amounts into the infected zone of the prostate. But here, in Spain, it will be difficult.


Tue May 31, 2016 1:37 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Chavalote wrote:
... the most logical hypothesis here is that this bacteria is causing my inflammation; it has appeared 3 times in cultures

Question: Is it logical that this bacteria that is normally found in the gut, that is now appearing in the urinary tract, be attacked with antibiotics? If the bacteria is "leaking" somehow from one area to another, is the cure really to KILL all the bacteria? Or perhaps there is something wrong in the digestive tract that needs to be repaired?

Chavalote wrote:
I haven't met yet a doctor who can explain the things clearly and with consistency. That's why I question them and I can't trust them.

The main reason for this is because nobody knows exactly what causes CP/CPPS. You can guess, based on what you've seen in previous case studies, but you can't look at someone and say "ahh, there's X bacteria? That means they need X treatment". Medicine is rarely an exact science, and with this problem it's very much the opposite. The best thing you can do is DO ask questions and not be afraid of upsetting your doctor (my tactic is to always phrase things in a way that is inquisitive, so I don't sound as if I know more than the doctor.) At the same time, listen to them and express your concerns freely. You need to be a team for this to get resolved. And you should probably broaden your team (above, I was alluding to seeing a Gastroenterologist who could perhaps evaluate the gut bacteria in other systems). Generally, a General Practitioner should be directing your care among all of these specialists.

For example, about the cystoscopy, you should be asking a lot of questions. Did you mention the burning and concern over inserting a cystoscope? I have had the cystoscopy, but my urethra was in good shape before it (unlike yours, I think). The gel burns slightly, the cystoscope didn't feel like much until it passed the prostate, where I had to take a deep breath and blow it out. Not PAIN but a lot of PRESSURE and it feels very uncomfortable. For me he was able to see an enlarged blood vessel in my bladder, which just means something is inflamed (bladder directly, or prostate (duh) which caused bladder to inflame). Doctors can rule out things like Ulcers in the bladder and strictures in the Urethra, etc etc (ask your doctor WHY he wants to do this -- you should understand his motivation!!!!). Overall, if you are burning a lot, I would make this very very clear with your doctor, because personally I think it would be bad to do it with your urethra burning. Ask him, though. Also, you can have this done in the hospital where they knock you out. In your case that might be worth it.

_________________
Symptoms (starting 12/2014): Low libido, poor sensitivity; occasional urinary burning
Past Treatments: 6x Heparin bladder Injection. Elmiron (2x daily), Meriva Curcumin (500mg 2x daily), Physio (good!), Vistaril, Uro Prostate Massage (helpful!), Flower Pollen, Antibiotics (for about a month),


Fri Jun 03, 2016 2:32 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
You are talking like if I don't ask questions or investigate, like if it were my fault.

I know that it's not that simple as killing a bacteria. I want to know the exact cause but the majority of the doctors that I have visited don't answer my questions and even they don't listen to me properly. I have had a lot of patience with this. I have been visiting all type of doctors for years. And they avoid my questions when they don't despise me and the stuff I read from the internet. If I talk to them about a digestive problem or any other complex thing they will avoid the question and ridicule me. I know because is what they always do. They are the "specialists" and you are the "ignorant", you know.

The last urologist I'm visiting changed his speech. He said that my prostatitis is caused by the enterococcus faecalis, and the next day, without even seeing any other culture he said that maybe it's not the cause and started to talk about a cystoscopy and a stenosis. The thing that most upset me is that he talked about an uroflowmetry when I already have did one in the previous visit (and was ok). He didn't remember! And when I asked if the cystoscopy hurts he was writing the prescription for my new culture and he even didn't look at me, he gave the paper to me and said "do this". In a situation like that is difficult to me to say anything, when the other is clearly chasing you out from the office and thinking in the next patient (the next number).

I'm thinking about changing again the urologist (I have lost the count yet) if when I take the new culture to him what he says doesn't convnice me. I don't want to do something as frightening as a cystoscopy for nothing.

These doctors are misleading. The more you ask the more they mislead you. I get the sensation that they don't know exactly what they are saying and that is why they avoid questions. It's clearly their fault, not mine. I'll keep looking for a good one, though.


Fri Jun 03, 2016 6:02 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I have the results of my new culture. Two new bacterias have been found. The enterococcus faecalis doesn't appear but they have found an klebsiella pneumoniae and an enterobacter cloacae in my semen. The weird thing is that both of them appear as sensible to Trimethoprim/sulfamethoxazole which I was taking for 2 months the last winter.

I don't know what is going on. I wonder for how many time have I been infected with these bacterias. Have I got infected by them because the antibiotics made the things worse? Or they already were there and the antibiotics, for some reason I don't know, have made them to appear in my semen? Any clues?

I'm going in two hours to see the urologist but I guess he won't make much clear explanations.


Thu Jun 09, 2016 2:00 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I have gone to visit the urologist. It's the same as always. I feel anxious and I ask questions that seems to bother only. No clear answers. He only has prescribed me Ciprofloxacin 14 days. He has said that when the culture appears negative I need to do a cysotoscopy to see if there are any stenosis that is keeping there the bacteria. I don't get it well.

I have asked him why they have found 3 bacterias from the intestine in my semen, if that doesn't mean that I have some problems with the digestive system and he has said coldly "there are people who have those bacterias in the prostate and never clean up" like if it were normal. I have said "but they are pathogens, because they burn"; no answers.

I really feel like an idiot asking those questions with their cold attitude.

I have been taking Levofloxacin almost 1 month and nothing changed, I'm quite pessimistic about this treatment with Ciprofloxacin.

I don't know what can I do. I'm being infected by gut bacterias in my urogenital system and nobody can nor explain the cause, neither cure it.


Thu Jun 09, 2016 4:46 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Chavalote,

Have you taken Ciprofloxacin before?

Well, also that if you got Prostatitis, to cure that 14 days is not enough. Minimum is 1 month, so the doctor gave you wrong dosage even if your gonna cure prostatitis.

Also, do you mean he did test samples from your prostate or from your urinary tract? Like did they find klebsiella pneumoniae and enterobacter cloaecae in your prostate?

Because trimethoprim/sulfamethoxazole doesn't penetrate prostate very well. So it would be hard for that medicine alone to kill them.

Also where do you live?


Fri Jun 10, 2016 4:57 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Has it actually been proven that you truly have an infection? Even after 1mo Cipro, 6wks of levofloxacin, and 3mo of moxifloxacin my semen cultures still showed typical skin flora. It seems pretty normal to have some level of bacteria in the prostate. With these cultures I still had rare WBC count. Is your WBC count elevated indicating your body is actually fighting an infection?


Fri Jun 10, 2016 9:34 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Twister please, read my posts. You are asking questions that I've already answered. I have done semen/pre-seminal fluid/urine cultures.

I haven't taken ciprofloxacin before, and yes, I think it's a low dosage for a chronic prostatitis.

I'm thinking about visiting another urologist because this doesn't seem to know much about this condition and he doesn't seem also to have empathy and to be really interested in curing me.

Prostate 454, I don't think it's normal to have bacterias that normally are in the intestine in the semen. So I would consider it an infection, because it also burns when I ejaculate or urinate. I think that concluding that this is a bacterial infection is not crazy, it makes sense. It's the forth time they isolate an intestinal bacteria in my cultures and they have found 3 different types! They are not skin flora, they are from the intestine! No one doctor has told me why they are there and that long time.

I don't know what WBC is, but telling by my continued symptoms I'm pretty sure that those bacterias are causing this.


Fri Jun 10, 2016 2:32 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Chavalote wrote:
Twister please, read my posts. You are asking questions that I've already answered. I have done semen/pre-seminal fluid/urine cultures.

I haven't taken ciprofloxacin before, and yes, I think it's a low dosage for a chronic prostatitis.

I'm thinking about visiting another urologist because this doesn't seem to know much about this condition and he doesn't seem also to have empathy and to be really interested in curing me.

Prostate 454, I don't think it's normal to have bacterias that normally are in the intestine in the semen. So I would consider it an infection, because it also burns when I ejaculate or urinate. I think that concluding that this is a bacterial infection is not crazy, it makes sense. It's the forth time they isolate an intestinal bacteria in my cultures and they have found 3 different types! They are not skin flora, they are from the intestine! No one doctor has told me why they are there and that long time.

I don't know what WBC is, but telling by my continued symptoms I'm pretty sure that those bacterias are causing this.


Im just trying to help you Chavalote.

If you do start to take Cipro, and you are feeling better before your course ends, make sure to call your doctor and tell him to extend the time your taking them atleast to 1 mo.
I think there might be a chance that it can help you.

And no it's not normal to have any bacteria in the semen at all, there shouldn't be any bacteria at all in the semen. (There isn't on a healthy person)
My belief is that these bacteria you have, that they found, is causing your infection and causing you have prostatitis and you do have an bacterial infection.

WBC is white blood cells, if there is more amounts than usual it indicate you have an infection. Usually if there is more then 10 visible in a microscope it means you have prostatitis.
Normal WBC should have 0-1, WBC attacks "bacteria".


Fri Jun 10, 2016 5:14 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
A kind of white cells have appeared a little high in several analysis I did in the past and I thought it was because the allergy (I also have allergy to house dust). Maybe it was because this chronic infection.

And yes, you are right. I have made an appointment with another urologist to listen to another opinion and see if I can extend the treatment. Specially if I see that I feel better and this new urologist also doesn't listen to me I'll go to the general doctor and ask him to prescribe me more, he usually listen to me and knows about my long suffering. I would be very sad and stupid let the infection grow again and more resistant because a too short treatment.

I only have taken the ciprofloxacin one day and it's very early to know if it is working or not, but it seems to me like the last resort because I have read about a lot of cases that improve with it. At least it seems that I tolerate it well, I haven't had any special bad reaction to it.

I don't have doubts also about the causes of my prostatitis. It's clearly bacterial (3 different types of bacterias has been detected! I know that in our bodies there are a lot of them but those are just out of place, like you said, there shouldn't be any bacterias in the semen, specially not ones from the intestines).

I'll keep updating the new information about my case, hoping that this nightmare ends soon and I can finally remember what a normal libido, arousal and orgasm were.


Fri Jun 10, 2016 5:36 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
That's very good to hear.

I read somewhere that you should usually feel a difference/better within 5-7 days.
Yes I know there is many horror stories out there about Ciprofloxacin, but if you got bacteria and the only thing that works is this you have no choice to take it, and I also believe that everyone who chose to doesn't write horror stories about this medicine, doesn't say anything at all. So I think there is still majority who have more good experience with it then bad cause only the bad ones come out make their voice heard. But let us know how it is going both with your prostatitis/disease and how the side effects of the Cipro are. I'm curious because I too am gonna start a course of this antibiotic very soon in the future, that's why I wanna know. I believe increased amount white cells is because of your chronic prostate infection. I know for one fact that Cipro have good penetration in the prostate. Only thing that can be even better is if you do some prostate massage while you take it or eat garlic like that guy said. But I have no idea how or where to get prostate massage, at least where I live. Also no clue where to buy organic garlic.

http://prostatitis.org/redirect.php?lin ... om/pwfF2Z2


Fri Jun 10, 2016 6:22 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I was scared about quinolones (and all antibiotics in general) before but at this point I have lost some of that fear. I took Levofloxacin almost one month and I didn't have any side effect (at least I didn't notice anything). Ciprofloxacin is very similar to Levofloxacin so I think (and hope) that it will be ok. Rather than the possible side-effects what most concerns me is that it simply doesn't work. I won't know what to do next because the massage route is very difficult to me. I don't know if I can find a doctor who can perform that and knows well about it.


Fri Jun 10, 2016 7:05 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
That is true. I would say if cipro doesn't work, try moxifloxacin. It have worked for almost everyone I know.

I'm not sure if its too late now, but before started cipro I would ask if dr. could'nt have given you moxifloxacin instead.

I know moxi is strong, but by now why take all the weaker ones first and maybe get better then not just jump to the strongest antibiotic there is at once and if that doesn't work, well.... then there's no point trying cipro or levo either.

When I took azitromycin the dr. warned me that the side effects would be very strong too, but I barely noticed any. I still think the worst ive taken so far was amoxicillin, but it was only bad like first 3-4 days , and i couldnt walk or run or anything. But sitting at home was no problem at all.

Oh yeah i forgot, Metronidazole was really horrible. I had to stop take that after 6 days, I couldn't take it. Dont know if you guys ever tried that medicine, but its absolutely horrible to take. Feels like your about to die when you take each pill.


Fri Jun 10, 2016 7:55 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Everybody reacts to antibiotics differently - what one person can tolerate without incident can be intolerable for another. Tolerance can change over time too - get better or worse. I used to be able to tolerate moxi, but now, possibly due to age, it causes terrible adverse effects, yet I can tolerate other fluoroquinolones just fine. Also, there are important measures that can be taken to mitigate adverse effects. For fluoroquinolones, that means taking a bit of magnesium glycinate some hours apart from the abx.


Sat Jun 11, 2016 4:11 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
How old are you JoeW?

Wouldn't magnesium glycinate interfere with the effectiveness in flouroquinolone?


Sat Jun 11, 2016 11:42 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Ancient.

Magnesium will definitely interfere with the absorption of fluoroquinolones if you take it at the same time. If taking FQs I take them morning and/or evening and take the magnesium at lunch time.


Sun Jun 12, 2016 11:50 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Would take Magnesium at morning/lunch times and flouroquinolones at night/before bed work?


Mon Jun 13, 2016 10:06 am
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Post Re: My story, chronic prostatitis associated with weak orgas
As long as you take some hours apart exact timing not important.


Fri Jun 17, 2016 7:07 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
One of the bacterias found in my last culture (the klebsiella pneumoniae) is sensible to Cefuroxime, my general doctor suggested me yesterday to combine it with the current treatment with Ciprofloxacin. I'm taking both since yesterday. Anybody has had any experience with the Cefuroxime?


Tue Jun 21, 2016 6:09 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
10 days since you started cipro? any change yet? i found it worked the first time, then the second i got some relief and then it just stopped.


Tue Jun 21, 2016 9:49 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I started the Ciprofloxacin the 9th day of this month, that is 13 days of treatment and no changes yet. I can't imagine this condition of burning perineum, scrotum and penis changing. I can't imagine the day when I'll be able to feel again normal orgasms and normal sexual pleasure.

I suspect that my case is not grave, only chronic, but with the right treatment this infection could be cleaned. It doesn't hurt a lot, it only burns. I don't know what the problem is. Antibiotics are not reaching the infected zone? The bacterias get resistant rapidly? Or antibiotics are working but I'm getting infected all the time? I need anwsers and no one knows.


Tue Jun 21, 2016 10:37 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Hello Chavalote, how is your results as of now? Any news?
Have you gotten better?

Or have you so, gotten worse from taking Cipro? Or noticing any (bad) side-effects in result of taking Cipro?


I want to include also this topic I read here regarding Minocycline, maybe it will work for you. (a thing to try perhaps in the apprehending future?)
Link: viewtopic.php?f=2&t=1271

Apparently, it have good anti-inflammatory effect aswell as a good prostate-penetration ability. It may not cure you, but perhaps relief your symptoms a bit and it's also a medicine that is safe to take for a longer period.

Also I stumbled upon this while reading on the Internet, perhaps it hold something you can relate into your disease about.

Quote:
Acute prostatitis which usually starts with fever and chills is easily killed by most antibiotics . But once the infection becomes chronic it can be very difficult to eliminate. In fact many men have had to have their prostate removed, because of various reasons that I will discuss here now. Some times prostatitis is caused by bacteria , virus, fungus and some times unknown origin. To find bacteria if it is not visible in the urine it will have to be removed from the prostate in the form of a prostatic massage. Many things can go wrong with prostatitis, in the best scenario bacteria is found and a suitable antibiotic prescribed that cures you. But this commonly does not happen once it goes chronic. Many times the infection will fight the antibiotic back doing everything in its power to stop from being killed off, one technique that bacteria in the prostate use is called Bio-film. Bio-film is a gelatine like substance that bacteria can produce that it surrounds its self with, when bacteria is surrounded with the biofilm it is up to 700 x more resistant to antibiotics. This is why if bacteria is found when cultured and tested for sensitivity it may show in the lab for example you have ecoli with a 97% sensitivity to doxycycline , ciprofloxacin, ofloxacin or whatever, meaning the infection is highly sensitive to the medicines and should wipe the infection out quick, but when you throw biofilm into the mix the antibiotics can not penetrate the resistant biofilm.

Another problem is prostatic abscesses, an abscess is is a collection of pus (dead neutrophils) that has accumulated in a cavity formed by the tissue in which the pus resides due to an infectious process (usually caused by bacteria or parasites) or other foreign materials (e.g., splinters, bullet wounds, or injecting needles). It is a defensive reaction of the tissue to prevent the spread of infectious materials to other parts of the body.

If you have an abscess in your prostate you can take all of the antibiotics you want, you could take enough antibiotics to kill a water buffalo
and it still will do you no good. Because the abscess acts as a barrier to stop the infection from spreading else where and it also acts as a barrier blocking all antibiotics from reaching the infection to kill it. The abscess must be drained by a doctor before the infection can be cured.

And some times men have micro-abscesses , so many collections of abscesses that it would be impossible to be drained, a man named Gerry had this and the urologist who took his prostate out responded that 10 years of antibiotics would not have cured him.

Also bacteria can hide in a chamber or duct inside of the prostate or bury its self deep down in the calcification (prostatic stones). If you have prostatic stones in your prostate it will be very ,very hard to cure an infection. Because the infection uses the stones as a shield against antibiotics.
A true infection of the prostate gland is almost impossible to cure once it goes chronic, some people get lucky and luck out, while most live with prostatitis until the day they die. When you are dealing with a prostate infection once you have had it for about about a year, the infection becomes a deep tissue infection, Infecting the nerves and muscle fibers of the prostate. Once the prostatitis is allowed to exist for very long in the prostate to much damage is done to be cured with antibiotics so either the individual must live with the prostatitis or get the prostate removed

By the way I am not a doctor but I do know what I am talking about, I have suffered going on 19 months with chronic prostatitis , and at this point know so much information on this subject I could write a book about it


Sat Jul 02, 2016 2:13 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Thanks Twister. I was feeling a little lonely with my case because there are not many persons with my symptoms and no one doctor can explain me the weak orgasms and the low libido causes. I'm not feeling nothing new with the Ciprofloxacin treatment. I have been 3 weeks yet and not changes. The weird thing is that I don't feel pain, only the weak orgasms, the burning when ejaculating and the low libido plus penis numbness. If I could find the cause of that and the drug or treatment to make my orgasms and libido normal I wouldn't mind too much to have that infection but without knowing what is exactly causing that I can't revert it.

When I think desperately like the quote you have posted I remember the sporadic improvements I have had sometimes and I think that this is not as incurable as it seems. There are days that I can feel an almost normal sexual pleasure, arousal and orgasms. That means that my symptoms are not permanent. The cause of those improvements are still a mistery to me, though.

Minocycline haven't appeared in any of the antibiograms they made from my cultures so I don't know if those bacteria are sensitive to it. For the moment, after one more week of Ciprofloxacin I must do another culture and see what appears.

I'm tolerating well the Ciprofloxacin but I feel like if I weren't taking nothing at all. It's frustrating. Everytime a try to masturbate I think: "let's see if this feels more pleasurable, more normal" but soon I get deceived by the same numbness and burning.


Sat Jul 02, 2016 4:35 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Come to think of it, there was a guy who had similar problems like you on the tv show 'Embarrassing bodies', he had a different disease then prostatitis though, but he also shared burning when ejaculating and low libido, aswell as burning when peeing. I don't know if you experience any burning while peeing.


Sat Jul 02, 2016 11:02 pm
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