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 My Prostatitis Diary - Now cured 
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Joined: Tue Jun 04, 2013 4:08 pm
Posts: 142
Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
Mancs wrote:


Thanks for that.

Latest update:

Being doing a regular internal prostate massage with the helix aneros and I was seeing some improvement in my symptoms until today, Im pretty sure I have got another UTI. My test strips are showing my PH to be above 8.5, there is a high amount of specific gravity and also bilirubin in my urine. Moreover im getting some intense symptoms similar to those at the start of the prostatitis. Such as lower back pain and a tender feeling in the bladder.

I have been really strict on the hygiene in regards to the massages, taking baths before hand etc etc so don't think I have caught it via that way. Im thinking that maybe the bacteria which was there right at the start and then disappeared, leaving no trace in urine samples; has been released via the prostate massage? Hitting the cranberry pills hard and going to take the test strips etc in with on Friday to the urologist.

Thanks for reading all and feel free to comment, I noticed that quite a few people tell their stories etc and get hardly any response, yet they have received a 1000 views on their thread.


Sun Sep 01, 2013 5:46 pm
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Joined: Sat Dec 08, 2012 4:30 am
Posts: 613
Post Re: My Prostatitis Diary - Ongoing
UKSufferer wrote:
Mancs wrote:


Thanks for that.

Latest update:

Being doing a regular internal prostate massage with the helix aneros and I was seeing some improvement in my symptoms until today, Im pretty sure I have got another UTI. My test strips are showing my PH to be above 8.5, there is a high amount of specific gravity and also bilirubin in my urine. Moreover im getting some intense symptoms similar to those at the start of the prostatitis. Such as lower back pain and a tender feeling in the bladder.

I have been really strict on the hygiene in regards to the massages, taking baths before hand etc etc so don't think I have caught it via that way. Im thinking that maybe the bacteria which was there right at the start and then disappeared, leaving no trace in urine samples; has been released via the prostate massage? Hitting the cranberry pills hard and going to take the test strips etc in with on Friday to the urologist.

Thanks for reading all and feel free to comment, I noticed that quite a few people tell their stories etc and get hardly any response, yet they have received a 1000 views on their thread.


You do know that you run the risk of introducing bacteria by doing internal massage? Consider that people pick up infections during procedures in hospital, and they are sterilizing equipment and hands with much stronger products than you would be using. Mine started after a hernia operation, and there are many other people who have reported the same thing.
Have you ever watched some of these demonstrations where people use antibacterial products on their hands and then use an instrument to see how much bacteria is left?


Sun Sep 01, 2013 8:39 pm
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
Yes madcap I take on board what you are saying. Being systematically trying everything recently, came to the conclusion the internal massage may not be worth the risks over the last few days.

Got my fingers cross that Proscure will help when it arrives. My urologist just prescribed me vesicare, my faith in him is very low at present. Also now know that I can order medication from other the USA without a prescription legally here in the UK for personal use. I do not particularly want to go down the road of self medication. However, the fact that I had a bacterial infection originally with acute prostatitis and they just threw me on Cipro for 6 weeks and now just presume there isn't no bacteria causing the inflammation seems to be a lazy diagnoses to me.

Thanks as always, Shane.


Sat Sep 14, 2013 10:53 am
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
Also forgot to mention tried a few weeks back to reintroduce some spicy food back into my diet, bad idea lol. Also tried a coffee the other day to, the smell was just too irresistible, needless to say suffering for a few days.


One quite interesting thing, I recently had food poisoning with the usual symptoms of nausea, the craps etc and my prostatitis symptoms almost disappeared whilst I had it.


Sat Sep 14, 2013 10:59 am
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Joined: Mon Sep 09, 2013 10:28 pm
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Post Re: My Prostatitis Diary - Ongoing
UKSufferer wrote:
Also forgot to mention tried a few weeks back to reintroduce some spicy food back into my diet, bad idea lol. Also tried a coffee the other day to, the smell was just too irresistible, needless to say suffering for a few days.


One quite interesting thing, I recently had food poisoning with the usual symptoms of nausea, the craps etc and my prostatitis symptoms almost disappeared whilst I had it.



That is so weird that you said that, I noticed when I had a severe hayfever attack a couple of years ago, I'm talking leaning over the sink until 4 am to let my nose drain because it was rubbed raw kind of attack, my symptoms were gone also.

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Sun Sep 15, 2013 9:06 pm
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Joined: Tue Aug 13, 2013 11:40 am
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Post Re: My Prostatitis Diary - Ongoing
UKSufferer wrote:
Yes madcap I take on board what you are saying. Being systematically trying everything recently, came to the conclusion the internal massage may not be worth the risks over the last few days.

Got my fingers cross that Proscure will help when it arrives. My urologist just prescribed me vesicare, my faith in him is very low at present. Also now know that I can order medication from other the USA without a prescription legally here in the UK for personal use. I do not particularly want to go down the road of self medication. However, the fact that I had a bacterial infection originally with acute prostatitis and they just threw me on Cipro for 6 weeks and now just presume there isn't no bacteria causing the inflammation seems to be a lazy diagnoses to me.

Thanks as always, Shane.
I too have zero confidence in urologists. I am just hopefully coming to and end of three months of shivering {my temperature at one point was 35 degrees}. I have been unable to any sort of exercise including walking without flaring my symptoms up. I would have not got through this period without self medicating with anti biotics bought from the net. ive been on a combination of cephelaxin and trimethoprim and sulfamethoxazole for two and a half months. I am not better but am seeing a little bit of light. I am nearly 2 years into this condition but reading this board today I have renewed hope and am going to try the garlic cider vinegar treatment mentioned on one of these threads. I am from Manchester uk and like lots of people have had negative cultures so in the urologists eyes there is nothing wrong. I am going to stay on these anti biotics until I am symptom free. that is zero pain zero shivering and zero foam in urine.


Sun Sep 29, 2013 4:56 pm
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
Keeping my fingers crossed for you edaleman. I have to admit I am going seriously overkill at the moment, mostly through desperation. Currently using a strong back massager vibrator underneath for 10 minutes in the morning and the evening to help increase blood flow. That in addition to proscure and Doctors Best Quercetin/Bromelain, Beta sitosterol and omega 3 gels. You tried Bactrim DS, Levofloxacin, Cipro or Doxy yet?

The garlic cider vinegar sounds interesting, is it relatively cheap?


Sun Sep 29, 2013 5:38 pm
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Joined: Tue Aug 13, 2013 11:40 am
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Post Re: My Prostatitis Diary - Ongoing
I think it is really cheap cider vinegar and garlic. like you desperation pushes me to try anything that might help. ive tried all the anti biotics and they haven't cured me just made my condition more tolerable. the help from the nhs is so limited and blinkered it is unbelievable. for a condition that is so debilitating there should be more help. on going prostatic massage or specialised prostate centres but these just do not exist or if they do ive not been able to find them. good luck to you and I hope your feel better soon.


Mon Sep 30, 2013 4:20 am
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Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
You too. Keep us updated, yes?


Mon Sep 30, 2013 5:12 pm
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Joined: Tue Aug 13, 2013 11:40 am
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Post Re: My Prostatitis Diary - Ongoing
will do I am able to walk at present without flaring up my symptoms. taking cider vinegar and strong garlic tablets along with cranberry acidopholus and saw palmetto complex along with the anti biotics. have ordered a prostate massager and am keeping my fingers crossed.


Tue Oct 01, 2013 6:06 pm
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
Went to the NHS Urologist this morning and since there is no evidence of stones, strictures and my bladder is completely emptying he is discharging me back to my doctors. The urologist I was paying to see isn't much better although he is at least prescribing anti inflammatory and alpha blockers to try and help me etc.

Just struggling with occasional spasms and frequency now, so quite lucky in comparison to a lot of you guys. Started acupuncture at my local university on Monday, its only £10 a session so thought it was worth a shot. They also do Chinese/herbal medicine there so I encourage people who live close to universities to maybe explore it as an option.

How are you getting on edaleman?


Thu Oct 10, 2013 6:17 am
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
The frequency continues to get better ever so slowly but the spasms still remain. I have been taking 2.5mg of valium/diazepam before bed and I seem to be able to sleep 5-6 hours straight now, compared to 2 when I started this diary.

Took David's advice and visited to an osteopath today, apparently the muscles that connects to my hip flexors in my abdomen are very tense and it hurt when she applied pressure on them. Additionally, my quads, hamstrings are really tense and my pelvis is slightly tilted due to my whole body being out of sync or something like that. When asking her why, she suggested whilst I had the infection initially, I could of been chronically clenching my muscles due to the pain and in addition my nerve could be a little messed up. (Keep in mind that my job use to involve a lot of driving and holding on until I could get to a rest stop).

Also taking a higher dose of Vesicare which my regular GP recommended me trying. To early to report on that.
I really hope this diary wont be going on for much longer, fingers crossed.

Special thanks to Dave and Madcap. I think you help a lot more people than you realise.


Wed Oct 23, 2013 4:54 pm
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
Still just frequency and spasms. Had 2 sessions at the osteopath now and managed to find and release a few trigger points which were near to some of the common nerves which can be associated with symptoms of prostatitis.

Just to show you how serious I have been at trying to cure this thing here is all the supplements im currently taking!

Image


Sun Nov 03, 2013 7:10 pm
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Joined: Thu Nov 29, 2012 1:46 pm
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Post Re: My Prostatitis Diary - Ongoing
What infection did you test positive?


Sun Nov 03, 2013 8:37 pm
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Joined: Tue Jun 04, 2013 4:08 pm
Posts: 142
Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
Very quick update. I am continuing to get better slowly. New regime in place, will post some new things I have been trying out soon and along with general observations etc. Keep fighting guys.


Mon Nov 11, 2013 12:35 pm
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
Hey guys, update time. Quick summary, originally had acute bacterial prostatitis in April-bacteria was found, been through several courses of antibiotics and supplements with no major improvement. Currently taking self prescribed vallium(Prozac) which helps me sleep through the night with the occasional get up. Tried everything and anything more or less, had all the tests. Symptoms are now just spasms and frequency.

Currently seeing a osteopath and having acupuncture. Several nagging trigger points have been found in my liposoas, glutes and back muscles. Currently working to resolve them with some progress in symptom relief. My current theory is that since the doctors didn't take me serious initially when I had a prostate infection (antibiotics cleared up the urine infection) it screwed with my pelvic floor muscles since I was holding on to my bladder all the time. I had frequent urination, up to every fifteen minutes, with pain and at the time I was driving a lot for my job.

I believe that the following report sums up my situation and am trying to figure out how to get my doctor to take me seriously and refer me to a specialist. I am hoping my osteopath is going to forward my notes and recommend PT. I believe there are internal trigger points that need releasing in addition to the external ones for full resolution of symptoms.

I believe the following journal sums up my condition.

http://prostatitis.org/redirect.php?lin ... l_Pain.pdf

Any advise? Thanks for reading.


Sat Dec 07, 2013 3:46 pm
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
It's also hard to admit but I did masturbate a lot before I had prostatitis, even when I was suffering at the worst. I now don't masturbate at all; I just have sex a few times a week. I find sex is more relaxing and I don't clench my pelvic muscles as much. It is a hard habit to break but I feel not benefits the symptoms but also relationships if you are in one. That's a general observation I would like to make to all on this site.

Also if you go to the gym check and see if they have a vibrating power plate, they allow you to do stretches with a little more force and give a good massage to the glutes, hamstrings etc. I thought they were for just lazy woman with cellulite etc, pretty ignorant of me to be honest; their a useful tool.


Mon Dec 09, 2013 7:43 pm
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
Quick update, things are continuing to get better really slowly. Took my osteopaths letter to the doctors and he sent my for an x-ray, which I had the same day; results pending. I think this is just precautionary to check my discs are ok etc. Hopefully after he will refer me for PT, who knows.
Now visiting for a sports massager every week and feel great afterwards, symptom free for around 6 hours and then frequency slowly comes back. I am thinking my psoas muscle is the main culprit (its really tight and short, my story matches up closely to one of the testimonials posted on the main page.

http://prostatitis.org/redirect.php?lin ... fmpat.html

Conducting my own PT through advice from both the sports massager, osteopath in addition to those listed in the Headache in the Pelvis book. Not actually getting spasms anymore which is encouraging, so now its just frequency. I sleep the whole night without waking up (7-8 hours) and then when I wake up I have to go around every 2-3 hours, except when Im driving then its every 1-2 hours.

Tried the alkaline soda suggestion, doesn't seem to work for me.

Just want to say again, I was in a really bad state in April, now in December and I have improved so much. Prostatitis isn't necessarily a life sentence, things can get better. Wishing everyone a healthy 2014.


Fri Dec 27, 2013 1:42 pm
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Joined: Fri May 17, 2013 2:53 pm
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Post Re: My Prostatitis Diary - Ongoing
Good to hear. What is your CPSI score from beginning to now? Any luck getting your psoas muscle to release?


Fri Dec 27, 2013 7:44 pm
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
When I started logging my symptom score using the IPSS, I scored 28, this was in May time I think. In October I was on 17 and through that month I dropped a whole 6 points. This was when I started seeing an osteopath, acupuncturist, herbal medicine consultant and started taking vallium. Currently on average, dropping a point a month at the moment.

All the trigger points have pretty much gone from the psoas, it is still very short apparently.


Sun Dec 29, 2013 9:20 am
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Joined: Tue Jun 04, 2013 4:08 pm
Posts: 142
Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
Quick update, going for regular sports massages, twice a week. Also going some more tests a a spinal/muscular clinic next week. My X-Ray showed some degenerative wear in discs l3-4 (which funnily enough is where the nerves involved with bladder/prostate problems are etc).

I have found something out that I wish I knew 9 months ago today. Aspirin! All other over the counter inflams haven't worked but I had some aspirin due to a headache the other day and notice my urine frequency disappeared for four hours. Been taking a low dose yesterday and today and still going good. Not a permanent solution but I advise people who have frequency to give it a shot.


Sun Jan 12, 2014 7:41 pm
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
I have had a bit of a plateau, going to concentrate on getting my glutes strong over the next few weeks in addition to my massaging, yoga and pilates. Also going for a MRI in a week to rule anything more sinister in my back out, I really struggling to bend to my left side; could possibly be to the short psoas/hip flexor on the right side I am guessing. Not had a MRI before so I guess I can tick it off the test list lol.

Only symptom left is frequency and its during the day rather than night, can sleep 7 hours straight and then when I get up and move about need to go around every 2 hours, sometimes less sometimes more. (aspirin seems to stop the frequency sometimes, not keen on taking it indefinitely though) My flow is heaps better now, there is little hesitancy, the odd occasional spasm in my glutes. Things have stayed pretty stable.

That's why I am going to concentrate on massaging and toning my glutes so they can start working properly again and give the psoas a break. Here is a link which some of you may find useful.

http://prostatitis.org/redirect.php?lin ... order.html


Sat Feb 01, 2014 4:34 pm
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
I'm pretty much sorted now, this will be my final post on this diary. Id liked to thank everyone for your posts etc and wish you all well. I will check in at some point in the future but for the time being I just need to live normally with no reminders. Main things that help me were stretching quads, itb bands, psoas and calves. Strengthening core, hamstrings and glutes. Supplement wise, magnesium, prozac and a prebiotic. Also juice twice a day now with broccoli, cucumber, kiwi and spinach. Stay away from alcohol, acidic and spicy food.


Fri Mar 07, 2014 2:56 pm
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Joined: Thu Nov 21, 2013 10:16 am
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Post Re: My Prostatitis Diary - Ongoing
Uksufferer

Did the vesicare do anything for you??

I've just started it and feel worse after the first tablet - seems to enhance my urethra / penis pain.

Had frequency under control and GP suggested I take it to address the urgency feeling I get and urethra pain.

Thinking of stopping vesicare already.

Thanks


Sat Aug 09, 2014 4:44 am
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Joined: Tue Jun 04, 2013 4:08 pm
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Location: Lincolnshire, England
Post Re: My Prostatitis Diary - Ongoing
Hi, thought I would give an update after 4-5 months away. Hard coming back here to be honest.

Continuing to get better, I believe an original infection which was detected left me with pelvic floor dysfunction. I believe tight muscles / poor posture could of brought on the infection in the first place. Always sleep through the night now, need to urinating every 2-3 hours (normal I guess, but still don't feel 100%, still work to do) Also spicey foods seem still irritate my bladder. Perhaps things still need time to heal.

At the worst, I had burning pain in prostate, pain in the testicles, constant urge to urinate, hesitancy and a weak stream

If you look on David88's post you can see my back is/was pretty messed up. It has took a lot of putting together but finally got a pretty good idea what's going on. Tight psoas, piriformis, quads, back. Weak abs, gluteus and oblique's. One indicator for me and my progress is - when I used to lift my leg up my foot use to go out to the side on its own, it still does this a little but is a lot better. Also the Thomas test gives a good indication of how tight the psoas is also.

Supplement wise only thing I take is protein to help my the strength training. I read both a Head in the Pelvis and Healing Pelvic Pain, I prefer Amy Steins book to be honest, Head in Pelvis is a very long read and it whittles on quite a bit. Amy Steins book is so much simpler to work with and its got a easy to follow routine.

My advice to anyone who has similar symptoms to firstly give Amy Steins book a go. I wont lie, it is a lot of hard work, stretching 3 times a day, strength training 3 times a day and a hour walk a day. I also have a foam roller to help target tight muscles and for the muscles hard to get I see a level 5 sports massager training in ART and other techniques every two weeks. Also read the threads made by suffering1 and athlete10, they were in a pretty similar boat to me.


Jammy - Vesicare helped a little bit but it wasn't really a solution for me, I took quite a powerful dose and I would say it made me 15% better at a guess. I will pop back now and again for the next week or so to this post.


Tue Aug 12, 2014 6:34 am
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