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 An Explanation and Cure for a common cause of CPPS - Update! 
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Joined: Thu Feb 14, 2013 5:33 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
flyhi42 wrote:
Thanks for your reply Richard! I also find that yoga helps tremendously and I go to a 'Fit Camp' style gym (not crossfit) that is a pretty intense workout. I find during that class I forget about ALL of my symptoms and I feel great afterwards for a little while.
I'm still trying to figure out how much of this is my mind vs. physical symptoms. That may take a while :lol:


If your pelvis is twisted then your neck muscles will be tight too. Since the blood supply to your brain travels through your neck it is normal to feel depressed and anxious. The brain isn't getting the supplies it needs to function well. For me it feels similar to how I might feel if I've been upto 3am. My head feels heavy, my eye sight is sensitive/blurred, I can't concentrate and I generally feel battered.

It's all part of having a twisted pelvis.


Wed Sep 03, 2014 9:19 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
[quote="getthisoverwith"]My original post is MIA so I'll basically give a quick summary on why I think David88's theory is probably the answer for most of those suffering from CPPS.

I've had a ton of tests ( regular bloodwork (3 times) X Ray on torso, CT scan of abdomen, urine tests (3 times), std tests including hiv (2 times) ultrasound of abdomen) done that show no sign of infection anywhere. I saw an osteopath to see I'd it would make a difference and felt immediate relief. It was ridiculous. Almost all of my symptoms ( with the tightness in my lower abdomen still present ) were gone within my first visit. The most notable difference was I was able to walk much better while standing straighter.

Then during the week since the visit I noticed the symptoms slowly coming back. The symptoms came back slowly starting with a little pain on the left side of my back and pain coming from my left butt cheek. It went from there back to where most of my back pain and abdominal numbness was felt: on my right side.

My questions for David88:

What treatment did you choose in treating your foot?

Do you think it's better to see an osteopath again to address this or to a podiatrist?

Thanks for sharing your experience as well.

I ended up having surgery to remove all the bone spurs and then had an artificial cartilage replacement put into the joint. The alternative was having a fusion of the two bones which would have seriously messed up my bio-mechanics.

I think you should see everyone but know that it is probably only YOU who will understand the whole picture. It's a depressing situation but sadly all these people only understand a certain part of the body. They do not generally speak to each other or bother to learn other disciplines. They like the safety of the text books.


Wed Sep 03, 2014 9:23 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
jg6075 wrote:
Hey David, just thought I'd spew out a bunch of muscle-related observations in the hope other people with similar problems will see them,

I think this post and some more research has been leading me slowly in the right direction. I've noticed a lot of muscular oddities being noticed independently by various professionals, which have been adding evidence to what was just a bunch of theories. For example, every chiro and massage therapist has noticed how tense I am and have trouble relaxing muscles. Then recently, a separate therapist noted that I had extremely tightened abdominal muscles and Iliacus was very tense. I also recall get an x-ray of the pelvic region, and the notes on the film mentioned muscle spasms.

I've had back problems for awhile. I can't stand for long periods of time without pain. Standing up for awhile murders my shoulders and lower back, even resulting in lower back numbness. My back muscles oftentimes get tense and hurt at my office job. Sitting, running, standing for long periods of time, and almost any workout all seem to make symptoms get worse. I also get other weird things like a tingling pain down my leg when I lean forward during a flareup, as well as a minor brush burn type pain on my upper thigh sometimes.

Also, my chest muscles commonly feel pulled out of place and hurt if I do certain motions. For instance, one time putting a seatbelt on caused a ton of pain in my left pec, to the point where it hurt to raise my arm.

Anyway, the tl;dr is: tons of weird back/muscle problems over the years, certainly not a coincidence. Some are worse now. Where should I look, given these possibly related symptoms? More deep tissue massage? How do I know if where I'm going is effective?

Huge thanks again



It sounds like you've got a bio-mechanical fault causing a chain of tight muscles through your body.

Is there any joints or area's of your body which are stiff or enlarged? Arthritis anywhere? Any previous surgery?


Wed Sep 03, 2014 9:26 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
Guys,

I'm happy you are all continuing this thread with your own experiences.

Keep posting and sharing information and you'll get there.

It might feel like a slow crawl but every move gets you closer to being well again.

This is your challenge and I'm sure you'll meet it.


Last edited by David88 on Wed Sep 03, 2014 10:00 pm, edited 1 time in total.



Wed Sep 03, 2014 9:32 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
If you live in England I'd recommend the following two people.


1. FOR MASSAGE

Andrew Croysdale, Tui Na Massage, Project ME, Crouch End London

http://prostatitis.org/redirect.php?lin ... us/find_us

An incredible massage therapist using Tui Na techniques


2. FOR FINDING THE SOURCE OF YOUR NERVE ISSUE

John Taberman Pichler

http://prostatitis.org/redirect.php?lin ... teo-ak.com

A brilliant diagnostic Osteo/Chiro/Kinesiologist


Wed Sep 03, 2014 9:36 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
There is also another ailment called pudendal neuralgia or pudendal nerve intrapment.


Wed Sep 03, 2014 9:47 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
Jeremy wrote:
This is all highly unlikely.

Most men with CPPS have no back or foot problems.

The vast majority of men with back and foot problems do not have CPPS.

Use Occam's Razor, peeps.


CPPS stands for Chronic Pelvic Pain Syndrome

The most common cause of back pain in Sacroiliac Joint Dysfunction.

The Sacroiliac Joints are IN the Pelvis.

So you can see the link between Pelvic Pain and Back Pain.

I personally didn't have any pain in my foot. The arthritis and muscular tension around the damaged joint meant it no longer moved very much.

Without a knowledge of the nervous system I never would have looked at my toe as the cause of my issues.


Wed Sep 03, 2014 9:51 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
Richard1969 wrote:
There is also another ailment called pudendal neuralgia or pudendal nerve intrapment.


Usually pudendal nerve issues are just a symptom of having a twisted pelvis AND/OR tight pelvic muscles.

The pudendal nerve travels from your Sacral Nerves into your penis. Along the way it controls your anal and bladder sphincter.

Not a nerve you want to irritate!

Release the twist in your spine and the muscle tightness and you Pudendal nerve should be released and all symptoms vanish.

Been there, done it, got the hat.


Wed Sep 03, 2014 9:58 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
ying_yang_36 wrote:
Hey guys. So after reading David's post, I felt really enlightened. It changed my perspective to what could be going on in my body. I booked assessments with a pelvic floor therapist and a chiropractor. My pelvic floor therapist says that my pelvis seems aligned fine. She noted that my abdominal muscles and pelvic floor muscles are very tight and definitely cutting off proper circulation in my body. My chiropractor assessed me today. He noted tightness in my hamstring muscles, improper movement of my tail bone and my left leg being slightly longer than my right. None of them noted Sacro Iliac joint dysfunction though. I'm going to keep seeing my chiro for lower lumbar adjustments and my physio for pelvic muscle tissue work. I'm hoping this is the right direction for me. If not, I have an appointment with a neurologist that specializes in the pudendal nerve. I'm thinking all he's gonna do is injections though which doesn't really solve anything, just put it off. Fingers crossed though. Hope everyone else is getting better.


So you have a twisted pelvis. Something is stimulating one of your hip flexor muscles to become too tense and it's rotating the pelvis.

A twisted pelvis will give the ILLUSION of a leg length discrepancy. This is called a FUNCTIONAL LEG LENGTH DISCREPANCY This is because the Femur twist in the joint and makes the leg appear longer. This discrepancy should go when the Chiropractor puts your pelvis straight.

A real ANATOMICAL leg length discrepancy is rare and usually has come from Polio, broken leg or a disease.

Don't let anyone put a heel lift in your shoe until you are certain is ANATOMICAL and not FUNCTIONAL.


Wed Sep 03, 2014 11:21 pm
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Location: Lincolnshire, England
Post Re: An Explanation and Cure for a common cause of CPPS
Hi, quick update from them photos. Still have abit of a Swayback due to a weak core predominantly. I believe poor posture from weak and tight muscles caused my issues. I will post a update picture in around 2 months. Its better now but I am still learning new things everyday.

I think Dave mentioned this early on in his post. Get a couple of opinions from chiropractors etc, in hindsight mine was crap.


Mon Sep 15, 2014 2:56 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
I think it's genetic, something one is born with and then something happens that sets the gene off. I share the following but most of you probably won't believe me.

After I got out of high school I decided to go on a diet and lose weight, I went from 270lbs to 154 lbs. I was working out 3 hours a day with weights and then a 1 hour exercise bike ride, I was doing this 3 days on and 1 day off for rest.

I started taking ephedra, guarana diet pills, and every brand I took gave me different symptoms. I'm not going to put the brand names here for fear my post my not be allowed.

The first brand I took made my heart race and my chest pound where my breath was on fire, then a bought a walmart brand and it made me hallucinate I started seeing a white midget Jesus chasing after me and it felt like I was sinking through my mattress into hell. Then I tried a third brand of ephedra, guarana and this brand messed me up bad first it caused me to have constant bladder infections for some strange reason, then it cut down my exercise performance from 4 hours down to 30 mins and I constantly caught colds and was run down even after stopping the pills my immune system is still damaged to this day and it's very heard for me to fight off anything I catch. It also shrunk my penis from 7 1/2 inches erect to 4 inches erect. It was a nightmare to get rid of the infection I battled that thing for a whole year off and on oral antibiotics, and the doctors looked at me like I was nuts when I said diet pills caused this.

I believe that I had prostatitis even back then caused by the pills, because I had some of the symptoms I do now but they were so weak i didn't hardly notice them. Like if I sat for say couple hours fishing on a boat, I'd be the only one with a numb and sore rear end. Once every 5 months or so I'd get some left testicle pain out of nowhere it would last for a day and then disappear on it's own. the pills left me completely sterile to and unable to have kids.

I started messing around with body building supplements again in August 2010 to lose weight I put back on, and that is when things got really bad and I've had chronic prostatitis ever since.

I am aware that people take diet pills and supplements and have no reaction at all. I however believe that these set something off in my, quite possible something genetic wise in my prostate. My whole family on my fathers side is a sick bunch they suffer from diabetes, prostate cancer, high blood pressure, heart problems, eczema. I myself suffer from Chronic prostaitis, Chronic acid reflux, and plaque psoriasis


Thu Oct 09, 2014 10:54 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
Interesting theory but I don't think it's genetic.

Your bum hurts when you sit too long probably because your sacroiliac joint is out of alignment. Constant working out will only accelerate any muscle dysfunctions you are carrying.


Fri Oct 10, 2014 7:29 am
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Post Re: An Explanation and Cure for a common cause of CPPS
Can anyone work out how this might be the 'missing link' in figuring out Pelvic Pain and a variety of complex nerve conditions? (Fibromyalgia, etc)

Image


Tue Nov 11, 2014 4:07 pm
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Location: Lincolnshire, England
Post Re: An Explanation and Cure for a common cause of CPPS
Hi,

I thought I would post an update. My CPPS looks to be been brought on primarily by poor posture (lordosis) Here is a progress picture showing my progress, I believe it will be atleast another six months to sort it out completely. It is a really slow process, in my case there isn't a quick fix. Strengthening my core, glutes and hamstrings whilst stretching my hip flexors and quads. As well as deep tissue massage and foam rolling. The third picture is the wrong way round which is kinda annoying but you can still see the improvement. If you have a excessive curve in your back and your gut sticks and you need some guidance, let me know and I will share my workout program.

Image


Sat Nov 15, 2014 1:28 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
Updated 29/1

Image


Last edited by UKSufferer on Thu Jan 29, 2015 4:52 pm, edited 1 time in total.



Mon Nov 17, 2014 9:18 am
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Post Re: An Explanation and Cure for a common cause of CPPS
please post your workout for glutes, hamstrings, core and hip flexors


Sun Jan 04, 2015 10:11 am
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Location: Lincolnshire, England
Post Re: An Explanation and Cure for a common cause of CPPS
Hello,

I have updated the photo above with my most recent progress. Still some work to do, however making good progress. Most the time I am symptom free now (since mid December), however I do find stress can cause a little bit of frequency to come back. It isn't by any means what I had in the past, its like going 8-10 times a day rather than 6.

I will get round to doing a step by step guide from beginning to fix it, to making progression. Nevertheless, here are a few things which I have found the most effective. On my journey I believe my exercise and stretching form hasn't been ideal, these exercises don't leave as much room for error. More importantly these exercises wont cost you a penny.

Hip Thrusts 3 x 10 - I do these on the edge of the sofa, make sure when you are doing them to imagine you are trying to hold a coin in between your butt cheeks - pro tip lol.


Plank 3 x 15-20 seconds - People usually hold planks for up to 60 seconds, less can actually be more. When you do the planks make sure you squeeze your glutes - (holding that coin) and do really deep breaths into you belly. The deep breaths into your belly will make your abs ache like crazy; it will feel really intense.

3 x 30 seconds Standard hip flexor stretch - Make sure you kneel tall, keeping your back straight and engaging your glutes.

Twice a day

Optional extras

Foam roll your quads/hip flexors/itb bands/piriformis
Go to a sports massager who get your back massaged

And so

Getting my pelvis in alignment has helped me, it also has decreased my back pain and improved my athletic performance. I am not suggesting its everyone's answer however getting your posture perfect is always a good thing.


Thu Jan 29, 2015 5:18 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
I know this thread is a little old but I felt I had to comment. I've been suffering relatively minor symptoms for many years and had a major flair up of prostatitis that started in April of 2014. Over the last several months nothing I did helped. The symptoms would come a go. I discovered tt was muscularly aggravated. Anytime I did any type of physical labor the symptoms would return. I rotated the tires on my truck in August of 2014, when I felt completely recovered, which really set it off and I just didn't seem to recover from that.

On 2/6/15 I had an appointment with a pelvic floor physical rehabilitation specialist who is an incredible person. She examined me and basically said exactly what your original post says. I have had two appointments with her and she has done massage therapy on the pelvic musculature, and nerves, and has done chiropractic adjustments at each visit because my hips were out of align. She has also given me some exercises and stretching to do. I feel 100% better than before. I've actually had two full days of no symptoms at all.

Everyone is different. And when one person finds their cure they think that is what everyone has and thinks that's the cure for everyone. This is not necessarily the case but, personally, I completely agree with your assessment. I believe that's exactly what is going on with me and believe I'm on a path to 100% recovery.

Thanks...


Mon Feb 16, 2015 1:31 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
Thanks for posting that message.

I'm very happy you are on the road to recovery.

I would say that the key to lasting health is to figure out why the body changed it's gait in the first place. What is it protecting? Are there any joints that are damaged that the body wants to offload.


Mon Feb 16, 2015 2:30 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
You are correct. I have a natural hip thrust forward while standing. I've had this for at least 20 years. My brother stood the same way. The PT has identified postural issues also. It was just amazing to me to have visited this PT and that she said just what I've been reading for months and exactly what your first post mentioned. I was beginning to think that only a very specialized subset of people recognized this type of issue/condition. I found her after visiting a new urologist in a city about three hours away who recommended me to the rehab group and she just happened to be the closest, 1.5 hours, to me. I consider myself lucky to have found her. Also, I consider the prostatitis that I recently went through a notification of sorts to me and my body that something was wrong and needed fixed.


Mon Feb 16, 2015 3:13 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
I cannot find any studies that link sacroiliac joint dysfunction to CPPS or prostatitis.

The one link I can find is from epididymitis (testicle pain) and sacroiliac joints. Google this exact phrase for more info: "Lifting and Testicular Pain"

Found no links between "lordosis" and CPPS or prostatitis.

Links between pudendal nerves and CPPS or prostatitis, google exact phrase prostatitis “Active Release Technique”


Wed Mar 25, 2015 5:42 am
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Location: Lincolnshire, England
Post Re: An Explanation and Cure for a common cause of CPPS
Jeremy, the people that have been cured through correcting sacro/muscle dysfunctions on this site are not trying to conn you. We have all made it through, you can search to your hearts content but the reality is, the majority of studies focus on drugs. It isn't the answer for everyone but it has been for me, Dave and many more.


Wed Mar 25, 2015 4:21 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
I agree. We are not trying to con anyone. We are just relaying our stories in the hopes that it may be beneficial to others. Additionally.. I've always felt that stress/anxiety has an effect on us. Two weeks ago I had a particularly stressful situation. Let's just say it was about as stressful as I've encountered in the last several years. During that week I had a couple very bad days with symptoms. When I went to my pelvic floor physical therapist I was still internally very wired up about it but tried to show a relatively calm exterior. She began the pelvic muscular massage and it was the worst it's been since I've been seeing her. It was even worse than the first time I had went to see her. Interestingly I went back to her last week when the stressful situation had been resolved and I was completely different. The massage was easy all of the muscular tension from the previous week had nearly disappeared. I only had a couple "trigger points." It was amazing to me to actually experience the muscle tension because of stress and feel it completely gone when the stress was gone. Again, everyone's experience is different. For me, this seems to be working. Good luck everyone!


Wed Mar 25, 2015 7:27 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
Guys, I'm new here as I've just recently entered my second bout of this nonsense. The first was four years ago and at that time, antibiotics cleared it up. This time around, the antibiotics have helped some, but I've got new symptoms I never had the first time around. I'm trying to get ahead of this thing before I spend months or even years looking for what might help. I was intrigued by this thread regarding pelvic alignment because I've had pelvic alignment issues for years. I've got one leg slightly shorter than the other and it hasn't really bothered me for years, but I definitely have a hip tilt/twist to one side.

I'm thinking you guys may be on to something, so what I'm trying to nail down is where should I start? Get to a chiropractor and have a real assessment done? Do some of the home exercises that UK has mentioned and identified? I'm looking for help from those who have been there and done that and are seeing the light at the end of the tunnel or are completely out of the tunnel.

Thanks guys and wishing you all find the cure that gets you back on track.


Sat Mar 28, 2015 8:42 pm
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Post Re: An Explanation and Cure for a common cause of CPPS
HI - usafbvr - I'm sorry to hear you are going through this. Again, everyone is different and anyone could feel relief from a variety of options. Just to throw in my 2 cents. I was a true believer in chiropractic adjustment until recently. I'm still not against it but my feelings have changed. If I'm truly "out," I will go get an adjustment. I had been seeing my regular chiro for years. Then I decided to see a new one in town because of my SI joint issue just to get a second opinion. It just so happened that after seeing the new one I had my regular six week appointment with my regular one. One would "put me in" then the other would "put me in." Then I went back to the new one. It was just really weird. I guess my caution here is.. be careful.. :) - The new one found my left leg was "shorter" then my right because of a pelvic tilt. And was able to adjust me. My physical therapist found this too. My reg chiro never noticed. My suggestion, knowing what I know now and since you've already been to a urologist is to try and find a local pelvic floor physical therapist to do an exam. Mine is 1.5 hours away but well worth the weekly trip. They should also examine how your pelvis is sitting, sacroiliac joint, lower back, etc. (At least mine did.) It can't hurt. I don't know if it's like this everywhere but I needed a script from a DR to get into the PT. It was a new urologist that I went to in a major city. My local urologist had no clue this existed. I live in a small Pennsylvania town. Additionally, I've noticed that as I have gotten older my body is just less able to cope with things that it previously had no issues with and I'm just naturally a very "flight or fight" person.. quite tense too much of the time causing the pelvic muscles to tense which, in turn, causes my urinary issues. I'm 52. Good luck and let us know how you make out.


Sun Mar 29, 2015 10:11 am
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