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 New Member--does anybody else share these symptoms? 
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Joined: Fri Mar 01, 2019 10:55 am
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Post New Member--does anybody else share these symptoms?
I am new to this organization and find many of the postings useful/helpful. I am hoping I can learn something about the prostatitis symptoms I have by comparing notes and observations with others on this site.

I am 53 years old. For about the past five years I've dealt with frequent urination at night--typically 3-4 times. I also noted in the past few years I would suffer from sudden onset of flu-like symptoms. Nothing like the full blown flu that would put you in bed for the day, something much more subtle, but noticeable--I found that I could dispatch the symptoms and go about my day by taking a couple of aspirin. So I've lived my life like this for about the past 5 years, assuming it is just part of aging. Yes, I know--stupid. My wife was telling me that for the past 5 years, as well.

Last October, my symptoms suddenly worsened. The flu symptoms and lethargy/fatigue worsened to the point where it was difficult to go about my daily business with self medication. Then I developed a burning sensation which felt like it was concentrated at the tip of my penis and a frequent need to urinate--day and night. The burning sensation and the strong feeling of a need to urinate was very intense, even if I drank only a few ounces of water. The burning sensation and urgency was worse at night, making it very difficult to fall asleep. I was up every 20-30 minutes. I was forced to visit my family doctor, who decided to start cautiously and treat for a UTI with 10 days of Bactrim, 2X per day. The urinalysis culture later came back negative. My sister is a medical doctor and she told me, basically, that guys don't get UTI's in the absence of prostatitis. This was the first time I heard the word "prostatitis". The symptoms continued to worsen over the next couple of days despite the Bactrim, so I decided to make an appointment with a Urologist. The urologist did a digital rectal prostate exam and concluded that my prostate was only slightly inflamed. However, based upon my symptoms he diagonsed prostatitis and prescribed a 14 day course of Cipro and Tamsulosin 0.4mg once a day to help the symptoms. He also prescribed Uribel for urethra pain, but I found that this medication did absolutely nothing to mitigate the burning sensation.

Over the next 4-5 days after visiting the urologist, I kept a daily spreadsheet of my medications, symptoms, and urinary habits. I found that if I went outside and performed any type of physical, strenuous activity, my symptoms would completely resolve. Raking leaves, cutting wood, chopping wood--complete elimination of pain, burning and need to urinate, while I was active. Once I stopped and came inside, symptoms would return immediately. I found this hard to believe, so I would actually drink some water, develop urgency and burning, and go outside to do work to test the effects. I found that even if I started work with the need to urinate, I would lose the pain, burning and urgency once I started my physical exertion. Very strange. I shared all of these symptoms with my urologist, but he really had no comment or feedback on my observations. Over the 14 days of taking the Cipro, the flu like symptoms seemed to resolve, but the burning and urgency was only modestly reduced, not eliminated. The Tamsulosin helped me to sleep but after 3-4 days, it did not seem to work as well. I had to start taking tamsulosin 2x per day to get an effect.

After the 2 weeks of Cipro were completed, I felt I was back to "normal" most days for the next 2 weeks. Then the burning and urgency returned and I went to see the Urologist again. I was prescribed 30 days of Cipro 2x per day, basically for the entire month of December. Again, the Cipro seemed to help reduce the symptoms, especially the fatigue and flu symptoms, and the urinary symptoms were improved by not eliminated. I last took Cipro on December 27 of 2018.

Mid-January 2019, the pain and burning sensation started to return. I noticed a distinct burning sensation down my legs and into the bottom of my feet. Whenever the pain/burning sensation in my penis returned and I had the urge to urinate, the burning in the bottom of my feet was also more severe. At times, the burning in the bottom of my feet was worse then the urinary symptoms, but they always showed up at the same time. I began to suspect that inflammation was putting pressure on nerves in the area that also sense pain in the legs and feet. Has anybody else suffered from this sensation of burning at the bottom of the feet with prostatitis? I returned to my urologist in early February and he did not want me to take any more antibiotics. He prescribed Gabapentin for nerve-related pain, but my experience is that this medication did nothing more or better than aspirin for the pain, and can have undesirable side effects, so I stopped taking it.

The last couple of weeks, my symptoms have followed a very consistent and predicatable daily pattern:
1. Up at 6:00 am--feel great, perfectly normal, exercise and have coffee--everything is good
2. 9:00 am-12:00 pm--flu like symptoms start up, burning in penis, urgency to urinate frequently
3. 12:00 pm - 6:00 pm--flu like symptoms and lethargy worsen thru the afternoon. If I need to go anywhere or do anything, I have to take aspirin to be functional; burning in groin/penis/bottom of feet gets worse as they day goes on
4. 6:00 pm to 8:00 pm--burning in groin/bottom of feet severe--sitting is pretty much intolerable; take the dog for a walk and all is fine until I stop walking
5. 8:00 pm--take two aspirin and go to bed/ up a couple of times between 8:00 pm-12:00 am to urinate; burning and discomfort
6. 12:00 am--6:00 am decent rest/sleep--if I do wake up, I feel pretty good--normal with no burning

Has anybody else experienced these symptoms of burning in the bottom of feet? Does it seem to resolve overnight and be gone in the morning, only to return as they day goes on?

I am trying to decide if my symptoms are due primarily to bacterial infection and insist on further antibiotics, or do I pursue some other course of action?


Fri Mar 01, 2019 2:46 pm
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Joined: Thu Dec 31, 2015 4:11 pm
Posts: 694
Post Re: New Member--does anybody else share these symptoms?
All of my symptoms are always worse in the morning. It seems that while sleeping all gets worse.

I also have sometimes mild burning in the pelvis, legs and even arms, hands, shoulders... All of those symptoms fluctuate. I guess it's inflammation but why it fluctuates is a mystery to me.


Fri Mar 01, 2019 5:23 pm
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Joined: Sat Dec 08, 2012 4:30 am
Posts: 819
Post Re: New Member--does anybody else share these symptoms?
Welcome to the board. Just a quick observation but I’ll try to post more over the weekend if I think it can be helpful. You say you wake up feeling fine, a couple of hours later the symptoms start up. Coffee/Caffeine is a known trigger for prostatitis symptoms. One of the first things you need to do, and one of the first things you should have been told is get off the caffeine.


Fri Mar 01, 2019 10:34 pm
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Joined: Sun May 01, 2016 9:48 am
Posts: 647
Post Re: New Member--does anybody else share these symptoms?
Burning in the bottom of the feet...are you sure you aren't experiencing sciatica and confusing that with prostatitis symptoms?


Sun Mar 03, 2019 4:40 pm
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Joined: Fri Mar 01, 2019 10:55 am
Posts: 3
Post Re: New Member--does anybody else share these symptoms?
The burning sensation in the bottom of my feet is only present when I have the burning/prostatitis related pain in my groin--so I believe it is not sciatica.


Sun Mar 03, 2019 7:01 pm
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Joined: Sun May 01, 2016 9:48 am
Posts: 647
Post Re: New Member--does anybody else share these symptoms?
An inflamed prostate shouldn't impact your sciatic nerve. The bottom of your foot is served by your L5 nerve root - google nerve dermatome. It's possible a tight pelvic floor can cause radiating nerve pain but again I have a hard time associating that with pain in your feet. Pelvic pain would typically not radiate past the groin. My other problem is that activity resolved your symptoms, this also seems like back issues.

That said, the rest of your symptoms do represent as prostatitis so I can't say for sure either way. It's an interesting case for sure.


Sun Mar 10, 2019 10:11 pm
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Joined: Tue Apr 12, 2016 11:55 am
Posts: 429
Post Re: New Member--does anybody else share these symptoms?
Yes, I've had pain in the bottom of my feet, and on the sides of my feet. It's often in one foot or the other, usually not both. I don't have it everyday, and I have pain everyday most of the day. But I've had it a number of times, and there was a time when I had it almost every day for at least a week or two. Now for what I know, think, and have learned or heard from professionals and the internet.

I went to a Pelvic Floor Physiotherapist, a specialist at the local Mary Free Bed pain clinic, and she told me there is an area of my brain which is immediately next to the area that controls / processes signals for the pelvis. This area is the one that controls / processes signals (including pain and chemical signals) for the feet. She said they often find that patients who present with pelvic pain and similar issues also experience foot / feet pain.

It's also an issue with sciatic problems and restless leg syndrome. The pain I experienced was usually a burning and/or dull to sharp aching, and would often be so sudden and severe that I thought something was wrong with my foot only. Or I thought I had blood flow problems. The problem, this specialist explained, is the pain signals get mixed up by the brain and the body. As its understood, nerves are primarily channels through which signals travel, and contain receptors (some in the channel, and some at the tips / endpoints) that also produce pain and the sensation & perception of it. When a pain signal is repeatedly sent and received between my body and brain, which is one of the primary causes of inflammation and also a primary result of inflammation (hence a cycle), those signals can get mixed up and become error-prone or simply be wrong.

So a pain signal that is intended for my pelvis can be instead sent to my feet, or something along that concept of mixed and messed up pain signaling. The solution, from what she surmised or was learning / was taught in her profession, is to retrain my brain and body to correctly process the signals, and modify or alter in such a way(s) that those signals are no longer sent. This is done by reducing pain via various modes of physical therapy, rest and relaxation (more so than I was doing, and more so than is commonly considered necessary), mild exercise, and also a change(s) in awareness and thinking. During one session she told me about my brain, and/or me in my mind, magnifying the pain and chronically bad situation I'm in, resulting in the perception of the pain I experience being greater or worse than it actually is or could be.

It's also part of why I would have the sensation that my prostate or my perineum was swelling worse than it was. It may not have even swelled much, or no swelling, but I felt it was at least partly because of the problem with the brain and body mis-perception. I recall getting hurt in a sport (in soccer my foot was stepped on which fractured a number of small bones, and made me unable to walk without crutches for around two weeks), and how when I started to get a reduction in the initial pain, my foot felt like it was swelling and was much larger than it looked. It's also similar to an incident where a bee stung my eyelid, and my eye and surrounding tissue swelled to the point it was sticking out rather than its normal size / shape / position. It looked worse than a mere black eye. And it felt like it was bigger than that.

Essentially, this is not an uncommon nor rare experience to get pain in one area and it seems related or associated with another problem(s) that by "logical" connection would be unrelated and separate / distinct and therefore not occur. There is a disease that is based on the diagnosis of it, actually, but I don't remember what it's called. I stopped seeing that specialist because she was trying to force me to see a psychologist / counselor, claiming if I didn't go to the counselor that she would stop treating me. I don't have the feet pain as much as I did before, but I've had it lately a bit.

It is important to become aware of potentially unconscious habits of generating and projecting stress / tension, or even conscious actions of that type. The "fight or flight" response, as its most often deemed, is capable of producing strange, unfamiliar reactions and even habits of dealing with stress and anxiety, and other problems. So it's probable that mixed / messed up pain signals is one odd reaction and/or it is a cause of the pain and instinctive / physical responses associated with chronic pain. There's other possibilities too.

One thing I noticed is this: that foot pain I got almost never occurred while I was active or exercising, almost always when I was sitting or laying. This, in my hypothesis, points to a nerve issue rather than strictly a pelvic inflammation problem. It could be both, and I think it definitely does have to do with my brain incorrectly processing signals. I'm considering trying Valerian Root again, but a lower dose. When I tried it before, it was more effective than acetaminophen, naproxen, ativan, and even massage. I just couldn't get it because I didn't have the money or the means to drive to get it. I was also getting super sleepy from one pill of it, which I think was 500 mg.

Try light exercises with your feet, stretching by expansion and contraction of the toes / arch. Don't force it a lot. Ease into each rep, and keep lower legs calm and loose. Do 10-20 at most, and don't look at them when doing it. Be aware, like when working out and doing a simple lifting technique. I might even try foot spa if I have it again.


Sun Mar 24, 2019 3:51 pm
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Joined: Sat Dec 08, 2012 4:30 am
Posts: 819
Post Re: New Member--does anybody else share these symptoms?
Presto, about the foot pain. You mentioned you only get it while sitting or laying down. Same here. My feet never hurt walking or standing, only when laying down. Has to be a nerve issue.


Sun Mar 24, 2019 7:08 pm
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Joined: Tue Apr 12, 2016 11:55 am
Posts: 429
Post Re: New Member--does anybody else share these symptoms?
I think it is a nerve issue for me too. It's difficult to describe or explain how the pain sometimes shifts, or seems to, from my pelvis to my foot. In certain instances, the pain starts a bit in my pelvis, near my groin or around the hip / sides, then suddenly it's like it travels to my foot...but not entirely through one of my legs to the respective foot. The pain in my foot is low some cases, and more intense other cases. I tried to get on neurontin when I was going to a pelvic floor specialist physiotherapist, but initially she said I would need to discuss it with a different specialist at the office, and said she would schedule me with her. But it didn't transpire. I've read that I can get certain medicines at the pharmacy if I have my insurance card, and the insurance covers it for being non-authorized. However, I don't know if I'm really able to or not for neurontin. Several years ago, my symptoms were primarily foot pain, perineum pain/swelling, pelvic / groin discomfort (not the burning / sharp / aching pain I have now), and urinary issues (frequency, leaking, delay, etc). One herb that was effective in relaxing and calming me prior to my current situation is Valerian Root. I was taking 500 mg, I think, and it was highly effective. But it would also make me so tired, I thought it was not helping me get proper sleep, at a time when I was actually having extreme difficulty sleeping. I'm considering trying it again, yet at a lower dose (at least half less), because it's also pain relieving and numbing.

As for the foot neuropathy, one aspect to consider is if you're putting your feet up on something while sitting or standing. I have a habit of putting my feet on the edge of the desk's lower platform, and also turning them sideways so my soles are pointing at each other. That could be a source of tension and abnormal positioning for the condition I'm in currently with pain and my health, or perhaps in general. If there's a stressor to the lower legs, or enough tension in my ankles / heels, those could also potentially produce neuropathic pain.


Sat Mar 30, 2019 4:35 pm
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