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 [Updates] Initially tested positive for bacteria at a GP,... 
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Joined: Mon Dec 31, 2018 10:24 am
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Post [Updates] Initially tested positive for bacteria at a GP,...
23M, undergrad. Had all the normal symptoms, feeling like incomplete voiding, urinary frequency/urgency and pelvic pain. Went to a GP, a dipstick urine test showed positive nitrites/leukocytes. Had yellow chunks in my white ejaculate. Got diagnosed with a UTI.

Started some antibiotics (1 dose fosfomycin + 10 days cipro), got better initially but went back to normal, so cipro didn't seem to do anything. Symptoms gradually got worse, and I started feeling really sick and tired/feverish all the time on top of the urinary stuff. Get chills and sweats a bunch. My cold tolerance's normally amazing.

After repeatedly going through this cycle with various antibiotics (doxycycline, which seemed to help but caused acid reflux, clarithromycin, which didn't help at all) I finally decided to go see a specialist.

I was just off antibiotics for like two days, specialist tried to culture the semen, and and post-massage urine, and all the tests were negative (the post-massage urine had blood in it though, doc thinks it's just from the massage). Did an ultrasound too, was told normal. Ever since the negative tests he's treated me very dismissively, and told me that all my symptoms were psychological (which I really doubt, because psychologically I've been at a really good place this year)

I've read about how prostate massages might help, and the SO and I got a prostate massager (it was all the excuse we needed), but it seemed to worsen the symptoms big time, so we stopped completely.

Two weeks later, (by this time I was feeling absolutely horrendous, pelvic pain turned sharp and intense) I saw a stand-in urologist as the original one was on overseas leave. The stand-in urologist did a rectal exam and said one side of the prostate was obviously swollen (and it was very painful when he touched it), and that I "obviously" had bacterial prostatitis despite the negative tests, which he chalked up to recent antibiotics screwing with the accuracy. Apparently the lump ruled out nonbacterial prostatitis or something?

He started me with 7 days levofloxacin just to cover me until I can get back to my original urologist. 3-4 days into the levofloxacin, I felt good. Every symptom resolved and I had forgotten how well I used to normally feel. The original urologist was going to discharge me and ask me to not see him again, but then I told him about the levofloxacin helping me so much, and he agreed to start me on a 5-week course.

So for 4-weeks I've been feeling back to normal and like a champ, and then recently the symptoms came back again, while I am still on antibiotics. This is the first time this has happened and just the malaise that accompanies the symptoms absolutely wrecks me, and I am thinking of withdrawing from my upcoming student exchange to London, which I had really looked forward to. Went back to the urologist and this time he is even more certain that all my symptoms are psychological, and refused to change meds. FBC's normal.

Feeling so EXTREMELY fatigued, and not well enough to be up and about, even when I sleep sufficiently and well.

I'm really at a complete loss as to what to do now. Miserable and crushed. Just wanted to vent here and hear your thoughts. I guess the doctor had good grounds to be very sceptical, since all the standard tests came up with nothing, but I've been responding so well to antibiotics I really cannot imagine why it might suddenly stop working halfway.


Overall updates:

Lots of this stuff can be found in my replies below but I thought I should compile everything to try to get everything as well documented as possible for my own future reference.

Since the chills and malaise was completely debilitating, I took a semester off from university to focus on fixing this.

Things had gotten really weird, if that was possible at all. I went to a second urologist after the first diagnosed me my issue as entirely psychological. The new doctor felt it was definitely a bacterial infection given the history, and put me on a two week course of Bactrim.

No improvement. By that time I was feeling so ill my GP pushed for me to get admitted. In hospital I received intravenous ceftriaxone, which I initially thought helped, but didn't really. After five days, I got discharged.

Everyone's stumped and I got referred to an infectious diseases specialist, who ordered an MRI, which confirmed prostatitis. He put me on doxycycline and I would go down daily for the ceftriaxone, but things just got worse and by the end of two weeks I was practically bedridden with intense chills and fever-like symptoms, even though I never actually got a real fever. (It did go up to 37.4C oral and stuff like that though)

This time we did another post-massage urine test, and this time it showed RBC counts in the hundreds, and WBC count of 10. The urine also contained "few" bacteria via microscopy, but the culture of the sample was negative once again. At this point we are all convinced it's some kind of bacterial infection, and the fact that the ceftriaxone didn't improve things at all was perplexing.

The doctor put me on amoxicillin to account for enterococcus, and interestingly enough there was some degree of improvement. 5 days later I felt much better and my post-massage urine was clear of WBC/RBC, even though they still found small amounts of bacteria (negative culture still), and so it seemed like objective improvement.

But the improvement never went beyond a certain level and my symptoms started fluctuating around that point. It would get a lot worse, and then better again. Finally when it got a lot worse again on week 4 of amoxicillin, and a new post-massage urine test again indicated RBCs in the hundreds, and a WBC count of 18, and again, "few" bacteria in the sample (culture's still negative), we decided that it wasn't effective after all.

Right now I've got a PICC installed and I'm taking piperacillin/tazobactam intravenously. It is probably an extreme measure taken for this, but there doesn't seem to be many options. It is day 6 today and I'm still getting chills. Really hope it's gonna work out this time.

First half of 2018 was the best time of my life. I was confident and happy and found my lovely girlfriend who's been great. But ever since I caught this it has been straight-up hell for the past six months. I won't give up until we've explored every option, but the despair's creeping up on me and sometimes it feels like life as I know it is over.


Last edited by hengisme3 on Mon Mar 18, 2019 12:42 am, edited 1 time in total.



Mon Dec 31, 2018 10:30 am
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Post Re: Initially tested positive for bacteria at a GP, but sinc
Welcome to the condition which has no definitive cause or cure. If the DRE showed the prostate is inflamed at least you have some idea where to start. My advice get off fluoroquinolones. If you continue with antibiotics find a safer one to take. You are much too young to be risking the side effects associated with that class of drugs.

Also do not alter your life over this. If you have goals and dreams to follow then continue pursuing them. The mental toll of this condition is much greater than the physical once you give into it. There’s so much information here that can help you. You are just at the starting line of this and from what I read from your post I’m assuming other than going to a Urologist you haven’t tried to address this on your own. So more advice. Stop with the specialist. Find a GP you trust and allow them to try to help you. Urologists are great at doing tests, they are not great as caregivers because it isn’t their field.


Mon Dec 31, 2018 12:41 pm
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Post Re: Initially tested positive for bacteria at a GP, but sinc
Whichever antibiotics are working, stay on 'em. The malaise, lethargy, fatigue; it's all part of having an infection and chronic pain / symptoms, as well as immune system based loss of energy. It's similar to recovering from the flu or a horrible cold. Don't listen to the uro who is telling you it's purely psychological. It isn't. My GP said the same to me, and I'm going to do what I'm able to in order to switch to a different doctor soon. It seems that you're experiencing a resistant strain or species in regard to particular antibiotics. You should skip the trip to London. It's not even practical to think it'll be a good trip or a worthwhile endeavor if staying awake and alert in a foreign country is an unfamiliar difficulty. I also get sleepy and have to relax or rest when I knew I had enough sleep. I try to remember that it's not an unordinary thing with chronic pain, but don't concentrate on it too much. Stop getting tests from the one "it's psychological" uro, and go to a different office, whether GP or Uro or a different specialist. Check into a few herbs for energy and pain reduction or relaxation. Start small doses (in contrast to the various doses that are around), and increase steadily for safety.


Mon Dec 31, 2018 2:55 pm
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Post Re: Initially tested positive for bacteria at a GP, but sinc
Madcap wrote:
Welcome to the condition which has no definitive cause or cure. If the DRE showed the prostate is inflamed at least you have some idea where to start. My advice get off fluoroquinolones. If you continue with antibiotics find a safer one to take. You are much too young to be risking the side effects associated with that class of drugs.

Also do not alter your life over this. If you have goals and dreams to follow then continue pursuing them. The mental toll of this condition is much greater than the physical once you give into it. There’s so much information here that can help you. You are just at the starting line of this and from what I read from your post I’m assuming other than going to a Urologist you haven’t tried to address this on your own. So more advice. Stop with the specialist. Find a GP you trust and allow them to try to help you. Urologists are great at doing tests, they are not great as caregivers because it isn’t their field.


I'm definitely going to find another urologist asap. I suffered for weeks trying to convince myself that it was psychological and that I just needed to stop thinking about it, thanks to that doctor. Fairly certain it isn't the case now.

I've been taking Now Food's Clinical Strength Prostate Health supplement on top of the levofloxacin. Not sure how well it worked since I've been taking it all this while and the symptoms both went away and then came back during this recent episode while I was on both the supplement and the abx.


Tue Jan 01, 2019 4:58 am
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Post Re: Initially tested positive for bacteria at a GP, but sinc
There are a couple of things you can do to reduce the inflammation. One is pick up a heating pad. Place it between your legs on the lowest setting for approximately 15 minutes several times per day. You could soak in warm water as well but the heating pad is more convenient. Also pick up a donut seat. You can find those in most drug stores or for a better variety use Amazon.

As for the Now supplement you are taking, depending on what’s in it, it could actually reduce the effectiveness of the antibiotic. You might want to look into that to be sure.


Tue Jan 01, 2019 1:19 pm
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Post Re: Initially tested positive for bacteria at a GP, but sinc
OP, think about these questions and answer them as honestly as you can.

1. When you have sex do you prolong ejaculation to provide a longer session for thr partner?
2. Do you have a history of abusing porn at times? (Be honest it's important for the next question)
3. When you masturbate do you find yourself edging often as you search for the perfect clip or image? Do you prevent yourself from orgasm even when kind of close?

The pelvic pain is most likely caused by inflamed seminal vesicles which are typically inflamed as an auxiliary condition of "prostatitis". There are 2 good papers out there that are actually kind of old but quite good detailing what a few doctors termed to be "vesicoprostatitis" or something like that. In the patients who experienced this they had all the typical symptoms and their findings were basically summed up as "even though this is treated often with ABX we are left wondering why as the condition typically does not consistently present with significant if any bacterial findings EVER". That's a really really shorthand paraphrase.

The docs found that for whatever reason similar conditions that occured to what they described as "preventing drainage" (if that makes sense) caused interruptions in normal drainages of the 2 organs. Physical examinations confirmed this and manual prostate and seminal vesicle massage ablated the symptoms if done regularly. There is a pretty specific method I believe and I'm not able to find well documented medical procedures for it but my guess is it is very different from sticking a wand up your ass and simply stroking the prostate. The seminal vesicles must also be massaged.

That's my opinion. In my opinion the condition somehow got hijacked. I suspect urologists are mostly only interested in cancers and vasectomies. Gland massages are "too gross" for them I bet. Transrectal ultrasound can confirm this issue for you as well as a CT scan. DO NOT let any urologist lie to you and tell you that a cysto is less invasive than a TRUS. Hope that helps.


Wed Jan 02, 2019 12:28 am
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Post Re: Initially tested positive for bacteria at a GP, but sinc
How are the seminal vesicles massaged?


Wed Jan 02, 2019 6:55 am
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Post Re: Initially tested positive for bacteria at a GP, but sinc
Madcap wrote:
There are a couple of things you can do to reduce the inflammation. One is pick up a heating pad. Place it between your legs on the lowest setting for approximately 15 minutes several times per day. You could soak in warm water as well but the heating pad is more convenient. Also pick up a donut seat. You can find those in most drug stores or for a better variety use Amazon.

As for the Now supplement you are taking, depending on what’s in it, it could actually reduce the effectiveness of the antibiotic. You might want to look into that to be sure.


Thanks! I'll definitely look into those! Right now my main symptom is actually the malaise though. The urinary frequency and the pain has significantly improved since I started the antibiotics. Really not sure why it suddenly recurred after 5 weeks.

The supplement contains Saw Paletto, Beta-Sitosterol, Lycopene, Zinc, Vitamin D-3, Stinging Nettle Root extract, Green Tea and Pomegranate extract, Trans-Resveratrol and Flax Seed extract. Admittedly I don't know what any of them does and I think I should probably stop for now.

I actually went to see a new urologist today and he agrees with the diagnosis of bacterial prostatitis, given that the original urine test at the GP tested positive, and that they found a lumpy tender nodule with the DRE. He thinks the tests are negative only because of recent antibiotic use, and switched me to trimethoprim-sulfamethoxazol. Here's hoping that it helps.

anonaccnt wrote:
OP, think about these questions and answer them as honestly as you can.

1. When you have sex do you prolong ejaculation to provide a longer session for thr partner?
2. Do you have a history of abusing porn at times? (Be honest it's important for the next question)
3. When you masturbate do you find yourself edging often as you search for the perfect clip or image? Do you prevent yourself from orgasm even when kind of close?



1. We're kinda into orgasm denial, so I guess that's a yes.

2/3. Not really. I was very into NoFap recent years and had a record streak of some 4 months. I'm probably above the 95th percentile in terms of being abstinent from porn and masturbation amongst guys my age group, lol

anonaccnt wrote:
That's my opinion. In my opinion the condition somehow got hijacked. I suspect urologists are mostly only interested in cancers and vasectomies. Gland massages are "too gross" for them I bet. Transrectal ultrasound can confirm this issue for you as well as a CT scan. DO NOT let any urologist lie to you and tell you that a cysto is less invasive than a TRUS. Hope that helps.


That's the impression that I got too. The original urologist I was seeing noticeably lost interest the moment he knew I was talking about a inflammation/infection problem.


Wed Jan 02, 2019 8:53 am
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Post Re: Initially tested positive for bacteria at a GP, but sinc
Chavalote wrote:
How are the seminal vesicles massaged?


I would need to go back through my searches and find some of the details I read but it's somewhat similar to a prostate massage, the idea is not to just rub the gland, the vesicles and prostate must be milked in a top to down fashion and you cannot apply too much pressure. When I have some time I will attempt to comb through my searches and find those papers + auxiliary info and post it in another thread.


Wed Jan 02, 2019 12:58 pm
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Post Re: Initially tested positive for bacteria at a GP, but sinc
I personally avoid any doctor who says "its in your head". For some reason, a lot of Uros just aren't up to speed on CPPS/CBP.

Like you, my problem started with a defined bacterial infection (mycoplasma H, ureaplasma urealyictim) and the WRONG antibiotics.

Watch out for the levofloxacin. It can really mess up your tendons. Check google for side effects.

Please let me know how you get on with the trimethoprim. I was prescribed but could not find any without the Sulfa and hence never started it.

What country are you in?
What diagnostic tests have you had so far?


Sun Jan 13, 2019 10:49 am
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Post Re: Initially tested positive for bacteria at a GP, but sinc
AC1972 wrote:
I personally avoid any doctor who says "its in your head". For some reason, a lot of Uros just aren't up to speed on CPPS/CBP.

Like you, my problem started with a defined bacterial infection (mycoplasma H, ureaplasma urealyictim) and the WRONG antibiotics.

Watch out for the levofloxacin. It can really mess up your tendons. Check google for side effects.

Please let me know how you get on with the trimethoprim. I was prescribed but could not find any without the Sulfa and hence never started it.

What country are you in?
What diagnostic tests have you had so far?


Hey man, I'm from Singapore. I've cultured EPS and semen and post-massage urine, but nothing's showing. Docs say it's unlikely to be culturable while I'm still on antibiotics, and kept on with the empirical treatments.

So Bactrim didn't do much for me, I started alternating between healthy and sick days, and the side-effects were horrendous. Made me extremely nauseous and dizzy all the time I couldn't do anything.

After 8 days of that I was finally so ill my GP made me go to the A&E and get admitted. It's so weird, it's never a fever but it sure as hell felt like one. My temperature would go up to something like 37.4, which my nurses would later describe as a "low-grade fever", but apparently that's nothing something universally agreed upon. Aches, chills, didn't have the energy to get anything done and felt like death. A new urologist assigned to me also said that there was no point with attempting cultures while I've been taking antibiotics, and proceeded to give me some ceftriaxone on IV. I immediately felt so much better even as the first IV was being halfway administered. Got discharged after 5 days of that. Now he's put me on a double dose levofloxacin. I haven't been having side-effects from that, so fingers crossed nothing's gonna happen. =(


Tue Jan 15, 2019 3:34 am
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Post Re: Initially tested positive for bacteria at a GP, but sinc
I think you will be good. I am not a doctor but my theory is if you stamp this thing out early on the outcome is better.

The IV ABX I bet sorts this out for you.

I could never find a Uro who would give me an IV ABX and I wish I had pressed harder for that early on.

if you get cured, let us know.


Tue Jan 15, 2019 10:41 am
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Post Re: Initially tested positive for bacteria at a GP, but sinc
99.3, or 37.4 C, is a low fever... not nothing. However, it may not be as dangerous as it felt. Though how it felt was probably a health risk. This is expected, apparently, when antibiotics are working. It's part of what happens during the flu to fight a virus. Not sure if it entirely holds true in all cases.


Tue Jan 15, 2019 2:53 pm
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Post Re: Initially tested positive for bacteria at a GP, but sinc
Update:

After I got discharged, I immediately got pretty sick again, the urologist, puzzled, gave me some doxycycline, and there was a really slow but steady improvement in the symptoms. It took more than a week before I felt my energy improving.

Got a referral to an infectious diseases specialist, and he sent for a prostate MRI, which basically confirmed prostatitis. The inflammation was localised at the peripheral of the prostate, and the doc theorised that this + the fact that I've been partially treated by antibiotics throughout this time caused all the false negatives despite the repeated testing. It also seems that whatever bug's I've got became resistant to levofloxacin halfway through the course.

So now we're in a bit of a fix since we haven't been able to culture anything from the semen/post-massage urine, but it is all but certain I have a bacterial infection from the history. Might have to go for a prolonged IV abx course at the hospital every day, if the doxycycline doesn't work out.

Dropped my exchange program and am taking a semester off from university to get this all sorted out. It's incredibly frustrating because the localised symptoms like pelvic pain and frequent/urgent urination has been super super mild these days, but the occasional chills and the malaise in general just murders me completely, after all these months. Sometimes I wonder if I'm being overly wimpy to these symptoms. I don't even get any elevated temperatures anymore. Just a consistent energy drain from my immune system trying to get something going, it seems like, and it's awful.

At least we know objectively for sure that it's not psychological now, lol... Lost a good few weeks trying to "tough it out" because that first urologist wouldn't believe me. Shucks


Sun Jan 27, 2019 5:19 am
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Post Re: Initially tested positive for bacteria at a GP, but sinc
New update:

Symptoms flared up again, and my infectious diseases doc decided to get me on an IV regimen. Probably getting a PICC line in eventually, but for now I've been going down to the hospital everyday for 2g of ceftriaxone, and we keep taking the doxycycline since it seemed to help a little.

It's day 8 now and I'd like to think that the prostate pain is gradually improving slowly. Really not that sure though. Urinary symptoms started to surface, but it's really mild and fades in and out throughout the day. Worst of all is still the chills/sweats/general sense of illness that comes in waves. Some days I immediately feel better after the IV, days 4 and 8 has been really rough though.

God I am honestly absolutely terrified by this disease. I'm taking a semester off school already and I'm not sure there's an end in sight. I'm not sure what I will do if this regimen doesn't work. I was supposed to be in London having the time of my life as an exchange student. First half of 2018 was maybe the best six months of my life, I was confident and happy and doing great in school, found my girlfriend. And then wham, life's been pretty much ruined by this 6 months of hell.


Sat Feb 09, 2019 8:08 am
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Post Re: Initially tested positive for bacteria at a GP, but sinc
New update:

Two weeks into the ceftriaxone it doesn't seem to be working. Still getting really bad low-grade fever and malaise. Couldn't go out with my girl on Valentine's and tomorrow's my birthday, too, and everything's completely ruined. Doctor's pretty unsure of what to do next either.

I just want to live life again. Help!


Thu Feb 14, 2019 8:58 am
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Post Re: Initially tested positive for bacteria at a GP, but sinc
If it's not working within 2-3 days, you really want to consider stopping. Long term antibiotics can harm, and cause all sorts of nasty things. Gastritis, leaky gut, food allergies, nephritis, etc. Instead, rebuild your immune system via organic diet, immune boosting natural supplements, eat fermented foods (probiotics), cut all sugars for a while including fruits. Eat garlic often, cut up the clove sections and include it with meals. Prostatitis won't resolve overnight, you have to fight through it. You will overcome, tell yourself that. When you begin to feel better, add some cardiovascular exercise to increase oxygen and blood flow. It's a combination of efforts that will lead to this resolving. Once you're off of all meds, you can try other things as well, like ReMag. I've had some success with that relaxing the pelvic floor muscles.


Thu Feb 14, 2019 12:40 pm
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Post Re: Initially tested positive for bacteria at a GP, but sinc
Update:

After two weeks of ceftriaxone I was practically bedridden with intense chills and fever-like symptoms, even though I never actually got a real fever. (It did go up to 37.4C oral and stuff like that though)

This time we did another post-massage urine test, and this time it showed RBC counts in the hundreds, and WBC count of 10. The urine also contained "few" bacteria via microscopy, but the culture of the sample was negative once again. At this point we are all convinced it's some kind of bacterial infection, and the fact that the ceftriaxone didn't improve things at all was perplexing.

The doctor put me on amoxicillin to account for enterococcus, and interestingly enough there was some degree of improvement. 5 days later I felt much better and my post-massage urine was clear of WBC/RBC, even though they still found small amounts of bacteria (negative culture still), and so it seemed like an objective sign of improvement.

But the improvement never went beyond a certain level and my symptoms started fluctuating around that point. It would get a lot worse, and then slowly better again. I thought that might be because of amoxicillin's limited penetration into the prostate. It got a lot worse again on week 4 of amoxicillin, and a new post-massage urine test once again indicated RBCs in the hundreds, and a WBC count of 18, and again, "few" bacteria in the sample. Culture's still negative.

Right now I've got a PICC installed and I'm taking piperacillin/tazobactam intravenously at home. It is probably an extreme measure taken for this, but there doesn't seem to be many options. It is day 6 today and I'm still getting chills. Really hope it's gonna work out this time, but I really don't know...

First half of 2018 was the best time of my life. I was confident and happy and found my lovely girlfriend who's been great. But ever since I caught this it has been straight-up hell for the past six months. I won't give up until we've explored every option, but the despair's creeping up on me and sometimes it feels like life as I know it is over. On the bedridden days I've taken to staying in bed and just... crying. My peers are all going on internships and exchange programmes and here I am. The suffering is horrific


Mon Mar 18, 2019 12:37 am
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Post Re: [Updates] Initially tested positive for bacteria at a GP
Any updates?

This is a mental battle as much as a physical battle. I find that listening to some Jordan Peterson has helped me immensely. He is a Canadian psychologist and he has quite the youtube presence.

Peace.
A


Tue May 07, 2019 12:53 pm
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Post Re: [Updates] Initially tested positive for bacteria at a GP
Judging from your story of recently meeting new gf, you may have caught this from her. Has she been cultured? Whatever you have she probably has and it would be much easier to culture on her than on you.


Tue May 07, 2019 1:41 pm
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Post Re: [Updates] Initially tested positive for bacteria at a GP
I was thinking the same thing after reading your post.

The forum is full of stories of guys like me who 'caught' prostatitis from a sexual encounter - in my case Oral sex with no condom.

dom_hend wrote:
Judging from your story of recently meeting new gf, you may have caught this from her. Has she been cultured? Whatever you have she probably has and it would be much easier to culture on her than on you.


Wed May 08, 2019 1:01 am
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Post Re: [Updates] Initially tested positive for bacteria at a GP
Why do the docs keep trying the same antibiotics? Whether it actually is Entero f. or another prostatitis-associated species, it's obvious that those drugs aren't working. One or two courses should be enough to get rid of it. No. The problem is the antibiotics primarily prevent growth and reproduction of the bacteria...so if the bacteria is at a high amount / population(s), then it's going to be drastically difficult for your immune system to complete the elimination of the bacteria. This is most likely why you're experiencing such continuous and extreme fatigue / malaise. When fighting the flu, the body drops in temperature to compensate for energy levels, yet it may not even know that it doesn't need to do so. Basically, I'm saying it has the right idea, but doesn't go far enough with it, or doesn't have the correct next step to do. So, you need something to propel yourself into energy increase, but to sustain it too for longer than usual, not simply an energy snack or drink, or an herbal pill a few times a day. To do this, the doctors need to stop feeding you intravenously, change antibiotic, and provide you with clean, fresh water in addition to energy-producing foods in which you don't need to rely on exercise and staying active to keep it up. An attacked body needs recovery and to be sustained after having recovered. It's why soldiers aren't allowed to return to active duty until it is certain they're no longer sick or downtrodden by an illness / health problems. Without telling you what to do or say exactly, I suggest having some determination when approaching the doctor(s) about next efforts to compel this bacteria away. Repeating the same lame methods is not going to produce an optimum result, and probably is going to be worse each next turn of it.


Thu May 09, 2019 6:48 pm
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Post Re: [Updates] Initially tested positive for bacteria at a GP
AC1972 wrote:
Any updates?

This is a mental battle as much as a physical battle. I find that listening to some Jordan Peterson has helped me immensely. He is a Canadian psychologist and he has quite the youtube presence.

Peace.
A


Hi,

Bit of an update - it's been almost nine weeks on the piperacillin and things have been... weird?

On some fronts there's definitely been improvement. I'm no longer bed-ridden sick on most days (which I was in February while on ceftriaxone), and generally my energy seem to have improved. No longer having to sleep 10-11 hours a day. I rarely suffer from really hot and awful night-sweats anymore, although it still happens to a lesser degree.

The problem is despite all that I still get pretty bad flare-ups every now and then. I will experience chills and severe malaise (which stops me from being able to do anything) which takes three days or so to go back down to a bearable level, and even on good days I still feel a bit of the chills and general unwellness that doesn't seem to go away. I would say even on good days I don't really feel well enough to be functional beyond just staying at home. (Used to exercise regularly to relax, even though I'm not exactly fit)

The pelvic pain is also just going up and down, although that has never been my main problem.

Post-massage urine tests no longer show inflammation most of the time, which is really weird, because it spiked back up on week 6 or so (which was the original intended length of the course, which is why it had to be extended). We also discovered that prostate massages frequently cause severe flare-ups, just like when I used the prostate massager toy in the past. I would leave the doctor's room and suddenly be hit by severe bodyaches and chills by the time I'm waiting for payment. Doctors thinks this might be a good thing because it could be a sign of bacteria being squeezed out enough for the body/drugs to hit, but nobody can be sure because apparently this is quite unheard of, lol.

I would have liked to extend the course even further since there's been at least partial improvement and since I've read about 12-week courses in academic literature, but my liver enzymes have been moderately elevated in the past week or two which is most likely due to the drug causing some toxicity there. Really not sure what's going to come next, life still kinda sucks. Might have to stop everything for a bit or at least switch antibiotics...

dom_hend wrote:
Judging from your story of recently meeting new gf, you may have caught this from her. Has she been cultured? Whatever you have she probably has and it would be much easier to culture on her than on you.


AC1972 wrote:
I was thinking the same thing after reading your post.

The forum is full of stories of guys like me who 'caught' prostatitis from a sexual encounter - in my case Oral sex with no condom.

dom_hend wrote:
Judging from your story of recently meeting new gf, you may have caught this from her. Has she been cultured? Whatever you have she probably has and it would be much easier to culture on her than on you.


We've actually never done any more than handjobs/fingering prior to catching this infection =/

presto423 wrote:
Why do the docs keep trying the same antibiotics? Whether it actually is Entero f. or another prostatitis-associated species, it's obvious that those drugs aren't working. One or two courses should be enough to get rid of it. No. The problem is the antibiotics primarily prevent growth and reproduction of the bacteria...so if the bacteria is at a high amount / population(s), then it's going to be drastically difficult for your immune system to complete the elimination of the bacteria. This is most likely why you're experiencing such continuous and extreme fatigue / malaise. When fighting the flu, the body drops in temperature to compensate for energy levels, yet it may not even know that it doesn't need to do so. Basically, I'm saying it has the right idea, but doesn't go far enough with it, or doesn't have the correct next step to do. So, you need something to propel yourself into energy increase, but to sustain it too for longer than usual, not simply an energy snack or drink, or an herbal pill a few times a day. To do this, the doctors need to stop feeding you intravenously, change antibiotic, and provide you with clean, fresh water in addition to energy-producing foods in which you don't need to rely on exercise and staying active to keep it up. An attacked body needs recovery and to be sustained after having recovered. It's why soldiers aren't allowed to return to active duty until it is certain they're no longer sick or downtrodden by an illness / health problems. Without telling you what to do or say exactly, I suggest having some determination when approaching the doctor(s) about next efforts to compel this bacteria away. Repeating the same lame methods is not going to produce an optimum result, and probably is going to be worse each next turn of it.


Everything in the literature suggests that bacterial prostatitis generally responds very well to antibiotics though... Especially considering how levofloxacin gave me huge improvements for 5-weeks or so (until it just stopped working halfway through for whatever reason) I still feel like antibiotics should be helping... I suppose it's just us unlucky lot that end up on these forums to discuss our not-so-common cases. T_T


Sun May 12, 2019 2:59 am
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Joined: Sat Dec 08, 2012 4:30 am
Posts: 809
Post Re: [Updates] Initially tested positive for bacteria at a GP
Hengisme3, you mentioned a flair up after a prostate massage and the Drs saying this is unheard of. You might want to reconsider your Drs if that’s the level of their knowledge concerning the prostate. There’s a misconception on this board about why more Drs do not do or believe in massages today. You will read that Drs are too lazy to do it or won’t take the time to do it. Both those reasons show a lack of understanding about what medicine actually is. It’s a business. Just like any business where money changes hands. If the medical community thought prostate massage was beneficial they would have someone on staff trained to do it because prostate problems are a common reason men go to the Dr. In other words if their is money to be made on something that can easily be done in the office they would do it. But the fact is the majority opinion is that massage can lead to more problems than it helps. Now before the pro massage people get upset let me be clear. I am not saying no one gets relief or help from a prostate massage. What I’m saying is the modern day belief is those people are in the minority, so rather than risk making someone worse prostate massage is not done by the majority of Drs.

Now back to your flair up after a massage. The very 1st time I went thru this I had been on a course of antibiotics for a few months and was feeling like I was almost past it. Went back to the Dr and he wanted to recheck my prostate. After that DRE all my symptoms returned twice as bad as before overnight. All from just having it mashed around for a few seconds. That’s all it took to throw me into 6 more months of hell. So the moral of this story is now when I have any sort of flair going on the Dr I currently have doesn’t even touch mine, because the fact is just a simple DRE can set off your symptoms when a prostate is already not good. So a Dr telling you a massage causing a problem is unheard of is either incompetent or uninformed or both. It most certainly can make a bad situation worse.


Sun May 12, 2019 11:53 am
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Joined: Mon Dec 31, 2018 10:24 am
Posts: 17
Post Re: [Updates] Initially tested positive for bacteria at a GP
Madcap wrote:
Hengisme3, you mentioned a flair up after a prostate massage and the Drs saying this is unheard of. You might want to reconsider your Drs if that’s the level of their knowledge concerning the prostate. There’s a misconception on this board about why more Drs do not do or believe in massages today. You will read that Drs are too lazy to do it or won’t take the time to do it. Both those reasons show a lack of understanding about what medicine actually is. It’s a business. Just like any business where money changes hands. If the medical community thought prostate massage was beneficial they would have someone on staff trained to do it because prostate problems are a common reason men go to the Dr. In other words if their is money to be made on something that can easily be done in the office they would do it. But the fact is the majority opinion is that massage can lead to more problems than it helps. Now before the pro massage people get upset let me be clear. I am not saying no one gets relief or help from a prostate massage. What I’m saying is the modern day belief is those people are in the minority, so rather than risk making someone worse prostate massage is not done by the majority of Drs.

Now back to your flair up after a massage. The very 1st time I went thru this I had been on a course of antibiotics for a few months and was feeling like I was almost past it. Went back to the Dr and he wanted to recheck my prostate. After that DRE all my symptoms returned twice as bad as before overnight. All from just having it mashed around for a few seconds. That’s all it took to throw me into 6 more months of hell. So the moral of this story is now when I have any sort of flair going on the Dr I currently have doesn’t even touch mine, because the fact is just a simple DRE can set off your symptoms when a prostate is already not good. So a Dr telling you a massage causing a problem is unheard of is either incompetent or uninformed or both. It most certainly can make a bad situation worse.


I guess it's not so much as "unheard of", but he told me that he had quite a number of patients who report an improvement in symptoms after the massages, while in my case I immediately get an explosion in systemic infection symptoms like chills and aches, and honestly I couldn't find any reference of that in any of the medical literature available on the internet either. (other than massages potentially causing sepsis in acute infections)

So far this ID doc has been the best doctor I've got so far and he's also pretty renowned in my country, and he also has all the antibiotics in the world. He was the first doctor to believe me despite the negative test results and he gets me to text him nightly to update him of my symptoms... I'll stick with him for a bit before searching for another (a fifth(???)) opinion if nothing works out :(


Sun May 12, 2019 12:29 pm
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