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 New member here need some guidance please 
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Joined: Sun Sep 23, 2018 2:43 pm
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Post New member here need some guidance please
Hi all,
I’m new here. Hoping I can get some guidance as I am lost like most. I’m trying to find a urologist, Doctor anyone at any place that will test prostate secretions or semen or whatever the right thing to do is. I’m willing to go anywhere, just want to get some answers. I’m only in this 3 months but just want to not waste anymore time as I feel like it’s important to treat this right early. But all my urine tests show no bacteria all std tests negative but this is common so I don’t take that as an answer. I’d appreciate anyone’s advice. I’m from NYC but I’ll go anywhere as I’m fed up with the constant indecisiveness of what to do and zero guidance from Doctors and urologists I’ve seen as they don’t want to be bothered.


Thu Nov 22, 2018 11:55 pm
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Joined: Sat Dec 08, 2012 4:30 am
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Post Re: New member here need some guidance please
In the area you live I would think you have a large pool of Drs to choose from. I recommend a regular family Dr over a Urologist unless you want to go down the road requiring scopes or other tests they specialize in. Not to be discouraging but if you read much here you’ll discover that after having numerous tests many are left with the same problem they began with. There’s a thread here about Drs in certain areas you might want to read. You can post some of your symptoms and people who have similar might have useful suggestions you can try.


Fri Nov 23, 2018 11:26 am
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Joined: Fri May 08, 2015 2:59 pm
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Post Re: New member here need some guidance please
Urine tests and STD tests aren't for prostatitis. Prostatitis typically is inflammation of the prostate gland caused by an infection, there can be other reasons though. The best guys will do an EPS or semen analysis to try to find a bacteria then treat with the relevant antibiotics. Try Dr. Toth in NYC.


Fri Nov 23, 2018 3:15 pm
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Post Re: New member here need some guidance please
You can try Dr. Robert Moldwin at Northwell Health in New Hyde Park. He is their top guy for CP/CPPS and I believe he tests secretions. There is a thread on him if you search by his last name. I have an appt in January. Good luck and feel better.


Fri Nov 23, 2018 7:30 pm
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Post Re: New member here need some guidance please
Well the urologist That I saw said I have chronic prostatitis based on symptoms which where frequent urination, perinium pain, lower abdominal pain, irritated urethra like a pressure is in there, scrotum pain. Most pain I would describe as an inflamed ache pain, not a sharp pain. Mornings are best and as the day goes on they start to come on more. Basic urinalysis is useless I know, I did chlamydia, ghonnorea, trich pcr naat tests 3 times and all negative. I would like to get semen pcr testing for all bacteria but don’t know where to get this done. You would think in NYC there would be all sorts of doctors that could help but everyone I’ve spoken to says urine is just as good as semen and no one does prostate secretion testing. So don’t know what to do.


Fri Nov 23, 2018 8:01 pm
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Post Re: New member here need some guidance please
Also Toth isn’t in NYC anymore he’s in Florida and doesn’t do testing anymore he no longer has a lab he just looks at your secretions and does a transrectal ultrasound and apparently can tell if you have an infection just off that which sounds ridiculous to have injections based on such a lame analysis.


Fri Nov 23, 2018 8:44 pm
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Post Re: New member here need some guidance please
Yeah, but maybe he is doing this different method because it works. It's hard to tell. He probably isn't an idiot.

Lab analyses aren't that good, there are a lot of false positives. There are arguments therefore for not even doing them, maybe it is best just to go with your local urologists advice. I think people usually do like 1-2 months of antibiotics. Especially if it started with a sexual encounter suggests it is an infection, most people that come by here it started with something like that I'd say.

It does usually go away by itself or calm down a lot


Sat Nov 24, 2018 2:59 am
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Post Re: New member here need some guidance please
The urologist is giving you a well-considered, yet common diagnosis, I think. If you intend to rule out other possibilities, getting other, basic tests is one route. Another is MicroGenDX or a similar place that scrapes DNA from a sample rather than relying on mRNA of a more traditional test. What medicines / herbs / diet changes and such have you tried? Anything work yet, even a little bit?


Sat Nov 24, 2018 3:38 pm
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Post Re: New member here need some guidance please
So far I was prescribed cipro which after 6 days I had bad reaction to so I stopped and wasn’t changing any of my symptoms anyway. So he switched me to Bactrim which I couldn’t take since I’m allergic to sulfa, then he put me on Doxy I took that and after 3 weeks of no real change

I started to have less urinary symptoms and by week 4 no longer had lower abdominal pain and not much urgency. Pain/inflammation reduced. little back story I was in extreme depression / stress for about a month and a half before any treatment with maybe 1-2 hours of sleep a night catastrophizing about how my life is over lost 10lbs from having no desire to eat. I changed my diet completely around the time the urologist saw me.

I Was a very heavy coffee drinker and pretty much ate whatever I wanted since I’ve always been in shape and never got sick. Now my diet is lots of water, boiled eggs for breakfast, salads for lunch, no sugar no junk food, lean healthy foods. probiotics, NAC, multivitamin, vitamin E, quercetin, turmeric, vitamin D (I was very low) , Zinc.I got put on Ativan and finally started sleeping which was amazing.

Also taking antidepressant which I’m not sure has helped much. So I’d like to say it’s any one thing that has helped but I can’t. My pain/discomfort I’d say has gone from a 4/5 out of 10 to a 1/2 out of 10 but then again I don’t know what a 10 is yet.. The more physicallly active I am the quicker the discomfort comes on. My symptoms have been pretty steady for the past 3 weeks. Hoping it doesn’t get worse and hoping I can figure out the cause so I can address it instead of sitting around hoping it all goes away. I’d do anything ..,injections go to Greece whatever it takes to be normal again.

Just wish I could find a doctor or someone that could definitely rule out bacteria with proper testing so I know what to do. I had a PT assessment since my uro said I could have CPPS but the physical therapist felt that I need to stretch more to strengthen my pelvic floor. But I find it hard to believe all this is from a need to stretch more. Anyways any advice from you guys is greatly appreciated just wondering what you guys would have done differently in your early stages that you feel would have been beneficial.


Sat Nov 24, 2018 8:07 pm
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Joined: Wed Oct 24, 2018 11:19 am
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Post Re: New member here need some guidance please
Sounds like you are doing everything right. You might want to consider Graminex.


Sat Nov 24, 2018 8:49 pm
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Post Re: New member here need some guidance please
The physical therapist I went to was basically saying the same thing, and so was the pelvic floor physiotherapist (a specialist!). There's a crude assumption that strengthening the pelvic floor is going to get rid of the pain and other problems. In almost every case I've read, it worsens it. It worsened it for me when they had me doing "yoga" bridges and such. I've said it before, the nervous system aspect of prostatitis / CPPS is not well-understood by most health practitioners. Do they conduct these same practices and exercises with fibromyalgia, CNS, and other chronic pain patients? I think it is yet another foray into the guinea pig testing ground because they think they've run out of answers or because they actually have thus far.

Changing diet is one aspect, but it's only continuous in effect in the short-term in my experience. I suggest avoiding extensive stretching of pelvic muscle if it's causing problems. Did you hear about California romaine lettuce? More dietary intake of leafy greens and certain 'lean' foods may mean higher susceptibility to known pathogens. After all, it's less and less heard of to contract something from meats, cheeses, and whole grains. And there's no dodging the gluten-free train without becoming a master-level vegan (which is non-existent I think). So I also advise questioning some of the modern rhetoric about what constitutes healthy and good. It most likely wasn't a supposedly gluten-free sandwich or other item that prediagnosed you with CPPS.


Sun Nov 25, 2018 2:31 pm
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Post Re: New member here need some guidance please
I agree 100% food didn’t do this. Although I do believe that changing my diet will assist my immune system and body to fight whatever is causing this and assist in healing. Same thing with taking Ativan to get sleep, I never took any prescription pills in my life never really needed to but if you don’t get sleep everything gets worse. Believe me I love eating whatever I want and coffee was my best friend but I’ll do just about anything to go back to feeling normal again. I’m considering going to Toth and saying screw it and just check that off my list, if it works then great if it doesn’t then at least I can say I tried and not regret it.

Then there’s the part of me that says if it makes things worse and or nerve damage just when you think things can’t get worse. God this sucks. My understanding is the antibiotics even if they are the right ones will still not penetrate enough to eradicate the bacteria. So what Toth does, does sound more promising than chucking antibiotics down my throat hoping things temporarily get relieved. I’m just scared of this thing being bacterial and getting worse, spreading going to a hospital that type of nightmarish scenario.


Sun Nov 25, 2018 7:17 pm
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Post Re: New member here need some guidance please
As far as food goes I don’t believe it has anything to do with acquiring prostatitis but it can aggravate the condition after you get it. Stress is the main thing to avoid and you are obviously stressed. That isn’t helping. My take on Toth is what it’s always been. People who accept no type of insurance, and last I heard he didn’t, are not to be trusted. The reasons they give for not accepting it are not the truth.
You are only 3 months into this, and not to downplay your problem but 3 months is nothing. You seem to be taking the approach that you’ll do or try anything. That’s how you end up worse. You need to step back and research all your options before trying anything.


Sun Nov 25, 2018 9:19 pm
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Post Re: New member here need some guidance please
So that’s my question what are the options... PT which I’ve started although I don’t think this will help but I’ll keep it up as I’m open to anything and insurance covers it. Antibiotics already been on those (very possible helped but never been completely rid of symptoms) changing diet already doing that, supplements already doing that. So what are the other alternatives, just wait and see? And I don’t think 3 months is a long time there are guys suffering far longer with far more pain but as all of you I’m sure remember those first 3 months are the worst because of the stress of not knowing what the hell to do and how to make it better before it gets worse. That’s why I’m here trying to get advice from guys that would have done things differently in those first 3 months if they could have and what they’d have done.


Sun Nov 25, 2018 11:19 pm
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Post Re: New member here need some guidance please
Arcpls0413 wrote:
So that’s my question what are the options... PT which I’ve started although I don’t think this will help but I’ll keep it up as I’m open to anything and insurance covers it. Antibiotics already been on those (very possible helped but never been completely rid of symptoms) changing diet already doing that, supplements already doing that. So what are the other alternatives, just wait and see? And I don’t think 3 months is a long time there are guys suffering far longer with far more pain but as all of you I’m sure remember those first 3 months are the worst because of the stress of not knowing what the hell to do and how to make it better before it gets worse. That’s why I’m here trying to get advice from guys that would have done things differently in those first 3 months if they could have and what they’d have done.


No matter what I would have done or what order I did it in I doubt very much it would have made a difference. The 1 thing I can say with certainty that would have helped would have been to concentrate on relieving the stress. That would have made it easier to cope. When you fall victim to stress that leads you to make decisions without taking the time to explore the pros and cons. There is no shortage of theories and people pushing them but if there is no legitimate science behind it, with trials to back it up, then it’s just a fantasy. So just because it sounds reasonable doesn’t mean there’s any legitimate research to support it. The first thing you have to do is decide on a treatment plan. Then you have to have the patience to see if it works. Nothing happens quickly with this condition. You might think it came on suddenly but the problem could have been building a long time before the symptoms became noticeable. The treatment can take just as long.


Mon Nov 26, 2018 2:22 am
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Joined: Fri May 08, 2015 2:59 pm
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Post Re: New member here need some guidance please
I don't think Toth would inject you, its only been 3 months, but I don't know that much about him, perhaps Madcap is right about him. I know injections are a desperate attempt to help the situation and have little science backing, it seems they can help or make things worse. The other desperate thing people do is get their prostates removed. These options are extreme.

It is best to be patient at this stage and work on the more conservative options, like improving your diet. Supplements tend to be pretty conservative and safe, but rarely help, usually because people just go crazy and take all kinds of random stuff.

I'll just give you my opinion, take what you will. Probiotics might help especially if you have a digestive problem related to it, and if your digestion is fine, it is a long shot at best. NAC, well some one came on here saying it helped, so fair enough. Vitamin E, probably a waste of money. Quercetin that is worth a try for a month I'd say. Turmeric, I think it is a weak anti-inflammatory, you might have better luck with ashwagandha, boswellia, or reishi. Ashwagandha is very relaxing and can help sleep as well in my experience. So can reishi which also stimulates the immune system quite strongly. Vitamin D is a good idea. Zinc, probably a waste of money. You can get most the vitamins through a multi-vitamin and a good diet, people sometimes take more of vitamin D. Magnesium is also useful for relaxing muscles. If your in extreme pain, I use kratom, which is a strong pain relieving plant, and is relatively safe compared with synthetic alternatives in my opinion.


Mon Nov 26, 2018 1:22 pm
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Joined: Tue Apr 12, 2016 11:55 am
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Post Re: New member here need some guidance please
Arcpls, I'm not inferring that you blame the food you ate/eat because you're changing your diet. I've changed mine too. But not extensively because I won't refrain from eating and drinking certain things (meat, some spicy stuff like in Italian food, acidy foods such as fruits and sauces, milk, and gluten-containing breads and cereals and such). I never had problems with gluten-containing foods before, and I don't now. I tried to not drink much milk, and that didn't do anything. I was simply saying that certain diet changes would probably be effective at a more moderate or lower pace of change, and to question some of the so-called advice that's getting the bulk of attention on the internet and elsewhere. It's true that changing diet can be a healthy and side-effect free or minimizing way of seeing what's best. Two web pages I found that list conditions and symptoms experienced when deficient in the major vitamins and minerals. If you want links, pm me and I'll send 'em.

I think it vital to be careful about heeding too much advice in a short time because then it could be difficult to ascertain what's working and what isn't, and also how well each one is working. However, it's also a good idea since it could mean a short-term period of getting well.


Mon Nov 26, 2018 2:47 pm
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Post Re: New member here need some guidance please
Have any of you guys ever gotten prostate secretions tested in the states? I feel like this is impossible to find anyone to do this.


Tue Nov 27, 2018 9:11 pm
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Joined: Fri Jan 07, 2011 8:58 pm
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Post Re: New member here need some guidance please
You can try if you don't mind traveling to Philadelphia Dr Scott Hubosky is a very good and efficient Dr who will do all test necessary and find out what's going on. He's very friendly and will take the time to answer all your concerns and issues.
If you need more info let me know and if you like you can use my name as a reference.


Tue Nov 27, 2018 11:06 pm
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Joined: Mon Oct 29, 2018 5:15 pm
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Post Re: New member here need some guidance please
Hey man,

Getting this condition after stress is extremely common.

If I were you I would look into TMS. Google 'TMS Prostatitis"

Also look into Pelvic Floor Physical Therapists in NYC that treat men.

A lot of people on this board are searching for hidden bacteria when every tests they've ever taken has said this is not a bacterial problem.

The more you read here, the more worked up you're going to get. Google TMS Prostatitis and check out some of the success stories.


All the best.


Wed Nov 28, 2018 12:33 pm
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Joined: Wed Oct 24, 2018 11:19 am
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Post Re: New member here need some guidance please
I don’t know if you saw my comment above but I believe Dr. Moldwin will test your prostate secretions. He is in New Hyde Park and Garden City. Specializes in CP/CPPS. There is a thread on him. But you will have to wait a long time for an appointment.


Wed Nov 28, 2018 10:35 pm
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Post Re: New member here need some guidance please
Yea I made an appointment thank you for the info. I’ll update on my experience


Thu Nov 29, 2018 3:11 pm
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Post Re: New member here need some guidance please
When are you going? I go January 2, 2019


Thu Nov 29, 2018 3:28 pm
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Post Re: New member here need some guidance please
I had an appointment on January 15 but they moved me to December 4th to see the nurse practitioner which I was told is who most guys see anyway as she does the prostate massage for fluid and testing. I figured there’s not much difference since I’m more interested in getting proper testing.


Thu Nov 29, 2018 6:58 pm
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Post Re: New member here need some guidance please
That’s great, good luck


Thu Nov 29, 2018 7:23 pm
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