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 I really am suffering......please help if you can. 
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Joined: Mon Sep 23, 2013 10:12 pm
Posts: 138
Post Re: I really am suffering......please help if you can.
I think the antibiotics help slowly with methenamine if you can take it and prostate massage. that's interesting about tendon damage with cipro, I don't get pain on cipro. I'm pretty sure this is a bacterial/fungal infection and maybe IV gentamycin is better


Wed Feb 05, 2014 3:27 am
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Joined: Thu Nov 29, 2012 1:46 pm
Posts: 345
Post Re: I really am suffering......please help if you can.
Hi England,

Just wondering how are you doing what are update on your situation?


Fri Nov 28, 2014 5:57 pm
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Joined: Wed Dec 17, 2014 12:09 am
Posts: 3
Post Re: I really am suffering......please help if you can.
Hey, England,
My story similar, after oral sex, 2 days I got urethral burning, after abs its gone deep to urethra and prostate I guess.
So my symptoms: urethral pain burning, its going deep to prostate or just inside penis,
Also my legs extremely sensetive to cold.

So second pants, i even sleeping in underwear pans and no ejaculations working for me.
Also I had it before, when i was 18, so treated perfectly with 10 intramuscular injections gentamycin in my country, i am from Poland originally. But problem I cant convince doctors in US to give me this shots!!!
They as hypnotized: Cipro, Bactrim.. Which is worked 70%, but i did mistake and had
8-9 ejaculation after and symptoms was coming in 24-48 hours, I feel like if i would do much sex and warm pants I would be fine.
So I did one month flomax, doxy and no ejaculations.. Symptoms fad, little bit.. So i will try sex without holding ejaculation , 1-2 times a week and lets see how its goes... And will set appointment to infectious disease to get just good intramuscular injections..

Bytheway sitz bath and any hot bath make me feel worse..

Sometime I using methol rab in perineum, little bit testis, penis before sleep... Dont do hard its burning, but reliving after little bit.

I am hear you same as other guys.. I was 36 athletic, guy, with hyper sexual performance, now just waiting to weekend to get under two warm blankets, pants and socks..very depressed and strange feeling which i never had before, I am done... As a men..

Any way, God what ever your trust Bless you all!
Have a good winter holidays

Lets just live guys, at least its not cancer..
Sincerely,
Rainbow


Mon Dec 22, 2014 8:49 pm
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Joined: Sat Jun 09, 2012 2:06 pm
Posts: 94
Location: England
Post Re: I really am suffering......please help if you can.
My apologies all for taking so long to reply. A lot has happened.

Finally I found the cause of so much of my grief these past few years. I was given a Thoracic MRI after a Doctor recommended one. "seriously degenerated, with severe compression fractures through T4-9. The MRI he showed me looked awful.

Anyway, of course I asked " would this condition/injury cause my Prostate Hell, and terrible leg pain/weakness.
He said that the nerves there at many roles. So he added it could be a possibility. He would not agree/not disagree that this could cause ALL my prostate symptoms, but added, "you have been extensively tested, it's a very good chance this missed spine injury, may be at fault.
He booked me in for 12 Facet joint injections latterally down the thoracic spine. He is a pain specialist.
Immediately following the injections, I began to feel better, the pains subsided.
Sadly it was very temporary lasting just a day or so. But it was a prelim to Denervation of the thoracic spine nerves. Soonest date is 13mths away.
He explained due to loss of spine height, my hamstrings become tight, and feel cramped and ache, causing inner thigh pains.
After almost every single test examination, going to different specialists, loosing your dignity, being mocked, being told there is no help, there is no cure..... Beginning to believe that it's in your head, it's anxiety...ugh in my journey I've been told that more than once! To finally have a solid diagnosis and albeit a long wait, it's hope, and hope sometimes is all you need.

All my best wishes to you all, I hope at least, this may help someone.


Tue Dec 08, 2015 4:52 pm
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Joined: Thu Sep 04, 2014 11:39 am
Posts: 609
Post Re: I really am suffering......please help if you can.
Thanks england. I also have inner thigh pain and I have a radically different hypothesis. Please keep updating.


Tue Dec 08, 2015 5:45 pm
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Joined: Sat Sep 26, 2015 12:00 pm
Posts: 102
Post Re: I really am suffering......please help if you can.
England, are you sure this is the cause? And what is the cause of your compression fractures?


Tue Dec 15, 2015 4:28 pm
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Joined: Fri Dec 11, 2015 5:04 pm
Posts: 306
Post Re: I really am suffering......please help if you can.
Englan

Read my post this sounds like my story.

I think you have ReA. Reactive arthritis morph into spondalytist. That may be csuing your back pain and joint cipro does cause issues but it's not systemic joint, other words it would cause localize pain to one joint only. Usually it's your ankle.

Trust me I'm allergic to all floxin meds...has your doc give u avelox? Better than cipro.

No one has answers and no doc will help you. Your simply a way for them to make money at this point.


Wed Dec 23, 2015 11:47 pm
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Joined: Sat Jun 09, 2012 2:06 pm
Posts: 94
Location: England
Post Re: I really am suffering......please help if you can.
Morning guys,

How is everyone doing, I hope many of you have found some coping measures to deal with the grief you guys are going through.

Just a quick update.

Visited a pain specialist last week, he has me booked in for thoracic and lumbar epidurals. He poked and prodded about in my groin/abdominal areas and believes he has allocated th source of the issues. He believes that the Illio Ingunal nerve running down is severely irritated, and this was evident when he began his examination. The pain in my left testicle was excruciating when doing so. I asked again, if this would cause prostate issues. He said almost certainly. The thoracic spine, isn't the most common place for injuries, but my MRI showed otherwise, as I posted before.
After my recent set of injections with steroids, I don't know why, but all my discharge and pain on having a crap, is gone. I still pee a lot, you know, you have a crap, 5mins later you need a wee again, is still there, but gradually it is fading away.
He explained, that as the injury was old, my body had compensated by using muscles to protect against the pain, and the tensing of these muscles, may well have caused a muscular issue and due to the region being very close to the prostate, this tensing probably has made things worse.

Now, I ain't convinced as yet, that this is entirely a tension disorder relating from a hidden injury, and I won't know until this next bout of epidurals has been completed. But, I feel better, and that's giving me lots of hope. The abdominal pain/the leg pain/ the testicle pain, and of course the tell tale burning of a nerve irritation.......it does add up.

I realise we all have issues with the prostate.....but it's a sensitive gland, prone to give men many problems indeed. But as we age, so does our body, and our spine, be it through injury or wear and tear, it certainly seems to be the issue in relation to my problems. If you haven't already, go see your doctor or GP, try and get a MRI- a thoracic and lumbar. It may well lead you to some answers.

That being said........u wish you all, a speedy recovery. Ty guys,


Thu Jun 02, 2016 4:54 am
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Joined: Sat Jun 09, 2012 2:06 pm
Posts: 94
Location: England
Post Re: I really am suffering......please help if you can.
Just to add to the previous comment by me - the recent pain specialist is different to the first Dictor who performed the facet joint injections.
The epidurals will be thoracic and lumbar. With an addition set into the Ingunal nerve.

Also - this doctor works in a private practice. Not my usual scene. This hospital made the NHS look like barbarians from the Stone Age.

Cheers guys


Thu Jun 02, 2016 5:16 am
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Joined: Tue Feb 23, 2016 6:49 pm
Posts: 133
Post Re: I really am suffering......please help if you can.
Hi england,

I havnt read thru all this thread since its pretty long, but just wanted to ask are you cured now?


Tue Jun 07, 2016 9:24 pm
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Joined: Sat Jun 09, 2012 2:06 pm
Posts: 94
Location: England
Post Re: I really am suffering......please help if you can.
Hi mate,

I guess from a urological view, I was cured the day I left the doctor with him saying, there's no infection, no sinister cause for my problems, take these 93days of cipro, and enjoy life......

No, I kept getting zero results from all the Gastro, Urology and neuro doctors. It wasn't until my third MRI and a good pain clinician found my problems to be related to my spine, that I began to feel better.

Months of massages antibiotics did nothing. Because there was never a bacterial element to fight. Much the same as many other guys on here. Your handed a massive prescription of antibiotics and waved out the door.

I fully expect after a round or two of epidural injections into my spine, and a few steroid injections into my ilio Ingunal nerve, il feel right as rain. It's just a shame I swallowed all their cipro, with no regard to what they may do. Well who does? At that point I'd have done almost anything to feel better.....

I'd suggest, if you have no clear cut and decisive proof of a bacterial infection, you seek help elsewhere, if I was you, whoever is reading, go grab an MRI of your spine, a good pain doctor and stop swallowing a mountain of antibiotics Or chasing an infection, which may not even exist.

I've heard of guys from my urologist of removing prostates, and then with no improvement, and even more problems, they top themselves.
I probably had a bout of NSU, from oral sex when this began, some irritation of the urthrea, made me go into overdrive with worry stress tension and all sorts. Then I started swallowing cipro, and other std busting bacterial drugs, and that's when it became an obsession......100% convinced myself I had some nasty infection, and the guilt drove in, I lost everything, and I mean everything, including whatever pride and dignity I had left.

Ask yourself, what's the biggest issue, mine was pain. Pain in my legs, my testicle and my back. It's taken a few years, but now, I'm not always on Google, not thinking of suicide, and getting on ok.

If your microbiological cultures and tests are clear, consider seeing a pain specialist and have a full work up. I never once told my pain doctor I had prostate issues.......he already knew, and yes he has seen this before.....much the same when your urologist has told you "it's a poorly understood condition, I'm sorry there isn't much else I can do"

My case, I realise is different to many, but I really hope this helps someone.

Gastro - clear
Neuro - clear
Microbiology - clear
Std testing - clear
Urology - clear

Sound familiar?

All my best


Wed Jun 08, 2016 7:14 am
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Joined: Tue Feb 23, 2016 6:49 pm
Posts: 133
Post Re: I really am suffering......please help if you can.
Hi thanks for your reply england

I was diagnosed with chronic bacteria prostatitis however, since they found streptococcus bacteria in my prostate. So the only cure for me will be taking antibiotics, which I have taken before and they did results to me, but I need one that is strong enough to be able to penetrate into my prostate and possibly prostate massage.


Wed Jun 08, 2016 9:20 am
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Joined: Thu Nov 05, 2015 5:48 pm
Posts: 454
Post Re: I really am suffering......please help if you can.
where do you live Twister?


Wed Jun 08, 2016 10:29 am
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Joined: Sat Jun 09, 2012 2:06 pm
Posts: 94
Location: England
Post Re: I really am suffering......please help if you can.
Same here Twister - My cultures revealed same thing. It's classed as normal skin flora. So I'd be slightly inclined to return to your doctor regarding this.


Wed Jun 08, 2016 2:17 pm
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Joined: Sat Jun 09, 2012 2:06 pm
Posts: 94
Location: England
Post Re: I really am suffering......please help if you can.
Probably an issue is the Normal skin flora - now a while back I confronted both my General practitioner and various specialists regarding exactly what is skin flora, and it's normal healthy locations.
Now when my cultures returned, more than once I posted on here after speaking with Shaky/David and Nvrlookback.

But, don't go paying a fortune on doctors and prescriptions for natural healthy bacteria which is supposed to be there. Just because that's all they could find. In my case I blitzed an array of massive doses of Cipro and other antibiotics and it fucked me over big style.
Now I'm all for using antibiotics on confirmed infections which are proven to eliminate the offending bacteria.....but that being said in my case not once in over 4/5 years have I ever been confirmed in having an infection. So, due to savage side effects and now being disabled due to ongoing tendionpathy, I've been left in .... state. So I decided to consult a solicitor, and now I have a fantastic case which they took on, to sue my employer and the doctor who gave me a 93day course of ciprofloxacin with Naproxin. Il hear back very soon when I attend the court case. Funnily enough, the combination of fluroquinilones and NSIADs should not be given without constant medical guidance, and a confirmed infection. To add to this, the doctor conveniently lost my medical notes, as did my employer. Something the attending judge at the tribunal asked them to explain why.
Needless to say, I will get a result, and it will be medical neglect. So if you find yourself now, crippled and with cipro related tendon issues, it may well be worth looking legal to get a claim going. After all, it wasn't your fault, and other better drugs are available to treat CBP.


Thu Jun 09, 2016 8:37 am
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Joined: Tue Feb 23, 2016 6:49 pm
Posts: 133
Post Re: I really am suffering......please help if you can.
Hi again england,

I live in Sweden.

Did the doctor also found Enterococcus faecalis in your test samples?

How did Ciprofloxacin cripple or hurt you?

From what i've read, Cipro is the only med that can cure CBP. And several others have taken this medicine without any prob, that's why im asking.


Fri Jun 10, 2016 4:49 am
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Joined: Thu May 12, 2016 6:30 pm
Posts: 191
Post Re: I really am suffering......please help if you can.
Even normal skin flora can cause prostatitis if colonizes the prostate, which it can, a person's immune system is reactive to it. OTOH it is terrible to have become disabled due to tendinopathy. Where docs fall down in this matter is (1) in general, failing to inform patients to be alert to the warning signs of adverse effects of meds, and (2) anyone taking fluoroquinolones should also be taking magnesium some hours apart. Fluoroquinolones do their damage by complexing with magnesium in the tendons (and elsewhere).


Sat Jun 11, 2016 4:30 pm
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Joined: Wed Feb 28, 2018 7:13 am
Posts: 2
Post Re: I really am suffering......please help if you can.
Hi,

I was wondering if English has any further updates?
I am 32 year old male and been suffering with chronic prostatitis for 2 years. Symptoms are red tip/opening urethra, discharge, slow urine flow and general pelvic pains. I have had everything tested and 2 cameras inserted into bladder but to no avail. Strangely, I was diagnosed with lumbar spondylosis (lower discs crumbling in spine) around the same time as prostatitis symptoms appeared.

Any update would be great to hear. From you post I have been to the GP this morning and have been referred to hospital for MRI on spine to see if any nerve damage. I have also been looking into a STI called Mycoplasma Ureathiritis? It has same symptoms as prostatitis but isn't tested in any sexual health clinics and has to be done privately if this helps anyone.

Thanks


Thu Mar 01, 2018 10:21 am
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Joined: Tue Aug 04, 2015 6:50 pm
Posts: 1118
Post Re: I really am suffering......please help if you can.
I'm wondering if they can culture semen for fungal species. I felt better after 3 weeks of diflucan, and it didn't really come back after that.


Fri Mar 02, 2018 3:20 am
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Joined: Sat May 26, 2012 11:38 am
Posts: 109
Post Re: I really am suffering......please help if you can.
Dannymoons wrote:
Hi,

I was wondering if English has any further updates?
I am 32 year old male and been suffering with chronic prostatitis for 2 years. Symptoms are red tip/opening urethra, discharge, slow urine flow and general pelvic pains. I have had everything tested and 2 cameras inserted into bladder but to no avail. Strangely, I was diagnosed with lumbar spondylosis (lower discs crumbling in spine) around the same time as prostatitis symptoms appeared.

Any update would be great to hear. From you post I have been to the GP this morning and have been referred to hospital for MRI on spine to see if any nerve damage. I have also been looking into a STI called Mycoplasma Ureathiritis? It has same symptoms as prostatitis but isn't tested in any sexual health clinics and has to be done privately if this helps anyone.

Thanks


Whats your massage routine been in the last 2 years?


Mon Mar 05, 2018 8:38 pm
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Joined: Wed Feb 28, 2018 7:13 am
Posts: 2
Post Re: I really am suffering......please help if you can.
Hey Neverlookback. I have never had a massage? When my lumbar spondylosis was first diagnosed I was given 3 sessions of accupuncture on the NHS and I never kept up with it after that as too snowed under with Newborn and work. But my back and sides pains really are a continuous strain. All day, everyday I have a hot water bottle.on my back to help with the pain.

Maybe I should look into massages?


Tue Mar 06, 2018 2:07 am
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