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 I really am suffering......please help if you can. 
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Joined: Fri Mar 23, 2012 5:18 pm
Posts: 73
Post Re: I really am suffering......please help if you can.
England.
It is a known fact a biopsy has caused infections in 7 out of 10 men.
If he is looking for cancer then a PCA-3 URINE TEST can show the same thing.


Sat Jan 12, 2013 5:16 pm
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Joined: Tue Jan 15, 2013 1:43 pm
Posts: 7
Post Re: I really am suffering......please help if you can.
Hi England,

I have been struggling with CP for about 5 years now first tree years I did not do much with this condition. I took one day at
time suffering doctor said this was a non bacterial prostatitis.

But last year I was put on Antibiotics 300mg Tetralysal this worked initially but after about 10 day this crap returned but not with
the same strength so something happened. Then I started to research this CP a lot to find out if there is some form of cure out there.
But this is a very complex disease. But there is hope to get control over the pain and at least feel better this i no cure but will probably
help.

First and for most if this is a non bacterial chronic prostatitis it is a inflammation of the prostate for some reason if this is a bacterium
or virus or some sort of pathogen is a open question. For me there is nothing showing up in blodwork etc.

But I found out a very interesting thing about inflammation that is sugar this is a bad bad bad thing, reason for this is that fructose that is
50% of the sugar molecule do that when you eat this you will get high values of uric acid after about 2-4 hours drink a soft drink or
what ever that contains fructose. So avoid all food witch contains a lot of fructose, apples, oranges and other fruits are okay but
not soft drink and other food with a lot of sugar inn it. Uric acid will burn the inflammation

Bad stuff
Sugar
Alcohol
Coffee
Smoking
Beer :-) or should I say buhuuuu

try to not get to much of omega 6 and more omega 3 from fish and other good seafood sources. Omega 3 is good against inflammation.

And this things has help me a lot

Probiotics and yoghourt with Probiotics inn it
C-Vitamins now I use about 1 gram could maybe go much higher I am experimenting with this now. Spread the dosing out thru the day.
Zinc and Magnesium and Saw Palmetto

Best Regards
GM


Tue Jan 15, 2013 2:18 pm
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Joined: Fri Mar 23, 2012 5:18 pm
Posts: 73
Post Re: I really am suffering......please help if you can.
Very interesting Ghost,
I thought any sugary fruit was no good.
I do use sugar in my coffee each morning and 1 at noon.
Hmmm
Think I need to stop it all as well as the rest you said.
I have read this by many on this web page.

I think England fell off the earth.


Wed Feb 06, 2013 8:21 pm
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Joined: Thu Feb 21, 2013 1:32 pm
Posts: 132
Post Re: I really am suffering......please help if you can.
england,

has your girlfriend picked up any of your issues? i assume she is a different girl than your first encounter that possibly brought this on. i suffering the same and am afraid to have sex.


Sat Feb 23, 2013 2:07 pm
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Joined: Sat Dec 08, 2012 4:30 am
Posts: 817
Post Re: I really am suffering......please help if you can.
England,
Just checking in to see how you're doing. It's been awhile since your last post. Give us an update when you have time.


Fri Mar 08, 2013 3:31 pm
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Joined: Thu Oct 11, 2012 5:35 am
Posts: 21
Post Re: I really am suffering......please help if you can.
Getting a bit worried about England, if you are still out there get in touch.

Jack


Sun Mar 10, 2013 2:44 pm
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Joined: Thu Oct 18, 2012 10:06 am
Posts: 9
Post Re: I really am suffering......please help if you can.
Are you still about England, may nightmare still going on too mate, just had a cystoscopy with hydrodestention 2 weeks ago under general anasthetic to check for Interstitial Cystitis, again drawn a blank, waiting in an mri on my back now, i had a disc bulge diagnosed at L5S1 in 2010, my pain doc thinks it could be the cause if all this, anyway hope your not doing too bad mate, life is pretty crap here still. Dan


Sun Mar 10, 2013 11:19 pm
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Joined: Sat Jun 09, 2012 2:06 pm
Posts: 94
Location: England
Post Re: I really am suffering......please help if you can.
Hey again dudes,

Apologies for not replying sooner I've had issues trying to log into the forum?

I'm ok, had a prostate massage and a cystoscopy yesterday, the consultant said everything looked ok, he took a direct sample of prostatic excretion of 3ml and has sent that away for microbiology and culture.

The urological team also said I have reactive arthritis caused most probably by the cipro.

Woke up today and man do I feel better! That prostate massage is the way to go dudes! Feeling so much better, I know il feel rubbish again in the next few days but wow if you want some relief get a vigorous massage done.

I'm still off work for the time being. No mate both my partners show no signs whatso ever of any infection and both have been tested. Every urologist I have seen has said there is no infection present, but.....this direct micro culture of prostate fluid my yet yield a result, although the doctor said its very very unlikely.

Hope you guys are doing well, again apoliges not getting online sooner, I thought the forum had closed?

All the best dudes


Fri Mar 15, 2013 9:40 am
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Joined: Sat Jun 09, 2012 2:06 pm
Posts: 94
Location: England
Post Re: I really am suffering......please help if you can.
I'm now on tramadol and Amitriptyline - cut down on the caffeine intake from tea also.

Damn inner leg pains and that stabbing horrible pain in ya butt still driving me insane, along with the worst testicle ache. But after that massage my general feeling is much better guys, finally smiling for once.

Also had another pelvic MRI I'm awaiting on, although pretty sure its going to be clear.
This new Uroligist I have is very optimistic that he can cure me in the next 3-6mnths? His a great dude who's very sympathic towards my grief. No idea what he has planned..... But he insisted that I have regular "vigorous " massages.

England


Fri Mar 15, 2013 10:31 am
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Joined: Thu Dec 06, 2012 8:17 pm
Posts: 10
Post Re: I really am suffering......please help if you can.
I've now accepted that my infection is also gone but still have some ball ache and burning . Nothing like the nightmare you're having .
I'm now moving to homeophathy as I feel traditional medical treatment can't help me . Try and see a good local homoeopath, can't do any harm !

I'm taking this yarrow for ball ache and it really helps : http://prostatitis.org/redirect.php?lin ... B0012NNR86
Give it a shot, it costs next to nothing .

Check out this for your cipro issues , that is nasty stuff , i now refuse to take all floxins !
http://prostatitis.org/redirect.php?lin ... ty?fref=ts

Good luck mate


Fri Mar 15, 2013 11:02 am
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Joined: Thu Nov 29, 2012 1:46 pm
Posts: 345
Post Re: I really am suffering......please help if you can.
Im in same situation but i refuse to think infection is gone i was all good before exposure... Specialist wanted me to believe in muscle issue!!! Anyway im no specialist and i know what started this and im gone a treat it like infection.

What is so crazy about this is that dr will offer all kind of believe test but will not do a trus because they cant read them for prostatit... Therefore im going to California to get evaluation from Dr.Bahn he the only dr i had good review on.

Hopefully he can tell me what happening in there!!!

On my part i refuse to believe its not infection!!! Im maybe crazy not believe uro but they did not help me at all!!! Therefore i'll fight like i think i need to fight!!!


Fri Mar 15, 2013 12:29 pm
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Joined: Sat Jun 09, 2012 2:06 pm
Posts: 94
Location: England
Post Re: I really am suffering......please help if you can.
Shaky,

Mate I'd have to agree on you there.....but. After all the urine/semen/swabs bloods and even this direct testing of the prostate fluid itself( provided its clear) come out negative.......I'm goin to have to succumb to the fact that no infection is present. All though it maybe an unidentifed organism? I don't know.....

Like you before exposure it wasn't there and now it is......


Fri Mar 15, 2013 2:19 pm
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Joined: Sun Mar 03, 2013 8:58 am
Posts: 15
Post Re: I really am suffering......please help if you can.
Pleased the prostate massage helped. I have an old school urolgist friend who has been retired now for 10 years. He studied prostatitis and the prostate extensively. His advice is to do prostate massage, culture, treat infections found with acid based antibiotic. Keep doing this on a regular basis till symptoms are gone. I am willing to try it but am now allergic to fluroquinolones after taking extensive courses of cipro and ofloxacin. Far too many tendon issues, dry eyes, ears ringing etc. These drugs are toxic.


Fri Mar 15, 2013 2:32 pm
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Joined: Thu Nov 29, 2012 1:46 pm
Posts: 345
Post Re: I really am suffering......please help if you can.
England have you had a dna test for mycoplasma? anyway the only thing i know is i've been suffering for 8 months and been doing research and it seem that the only real help we can get is from injection or massage plus antibio... I think we need to treat it as infection!!!

England so many guys get this from oral sex i dont what in the mouth that destroy are prostate but there something for sure!!! I will let you know how my injection goes with Bahn!!!

Im getting scare because i see guy with this crap for 10 years and just decide to remove it!!! I dont want to get there!!!

Good luck brother


Fri Mar 15, 2013 2:55 pm
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Joined: Sat Jun 09, 2012 2:06 pm
Posts: 94
Location: England
Post Re: I really am suffering......please help if you can.
Steve,

I've had and continue to have major issues with the 4months of cipro I was prescribed. Bruising aching weakness headaches sore joints depression......anyone considering taking a course of the same family of anti biotics needs good warning first. Ok I agree in many many cases it saves lives, but in others it can just as easily destroy them.


Fri Mar 15, 2013 2:57 pm
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Joined: Sat Dec 08, 2012 4:30 am
Posts: 817
Post Re: I really am suffering......please help if you can.
Steve wrote:
Pleased the prostate massage helped. I have an old school urolgist friend who has been retired now for 10 years. He studied prostatitis and the prostate extensively. His advice is to do prostate massage, culture, treat infections found with acid based antibiotic. Keep doing this on a regular basis till symptoms are gone. I am willing to try it but am now allergic to fluroquinolones after taking extensive courses of cipro and ofloxacin. Far too many tendon issues, dry eyes, ears ringing etc. These drugs are toxic.


You're correct about fluroquinolones. People need to speak up and refuse to take them. If a family Dr or Urologist try to prescribe them just insist on something else.
I'm in good shape at the moment so fortunately have no need of antibiotics but if I did I would probably ask for erythromycin.


Fri Mar 15, 2013 3:14 pm
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Joined: Sat Jun 09, 2012 2:06 pm
Posts: 94
Location: England
Post Re: I really am suffering......please help if you can.
Shaky,

Yes mate I have had 2 mycoplasma DNA urine tests. At the very beginning of my grief.....negative. Semen cutures / urinine tests man you name it ive tried it. Spent a fortune on private testing too. Ureplasma tests mycoplasma testing .....but nothing.

Also had a urethral "sweep" a nasty procedure the worst ever. The urologist scrapes the while length of the inside of your penis, looking for the hard to diagnose nasties.....yet all negative. Was in pain for day urinating blood.

If your injections work, il join ya!


Fri Mar 15, 2013 4:43 pm
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Joined: Thu Nov 29, 2012 1:46 pm
Posts: 345
Post Re: I really am suffering......please help if you can.
Sounds good England i will let you know!!!
Im travelling really far to get those injection!!! I hope they work!!!


Fri Mar 15, 2013 5:47 pm
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Joined: Thu Oct 11, 2012 5:35 am
Posts: 21
Post Re: I really am suffering......please help if you can.
I'd go with the regular massage england it can work. Check out the drainage pages on this site to see if you can do it yourself or get someone to do it for you.

But be prepared for some good and bad days and hang in there.

I have had a bumpy ride these past 5 months fair screwed my life up. Massage works a bit for me but its like car maintenance, stop it and the whole thing can break down. You'll see that on the site.

I have had to go for surgery now as I am 65 my prostate has become enlarged and I think - be interested in any comments on this - has caused my previously mild symptoms to flare. Hope the TURP reduces things a bit I am not expecting a total cure but a reduction in symptoms would be good enough.

Jack


Fri Mar 15, 2013 6:23 pm
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Joined: Sat Jun 09, 2012 2:06 pm
Posts: 94
Location: England
Post Re: I really am suffering......please help if you can.
Hey there Jack mate,

Thanks for the info. I've considered asking to have my prostate removed....infact I consider it everyday. My last urologist said my prostate was "non occlusive" no idea what that means. Although he told me it was enlarged.

I hope the turp procedure is successful for you Jack, I've been suffering for very nearly 2 years now....


Fri Mar 15, 2013 6:59 pm
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Joined: Thu Oct 11, 2012 5:35 am
Posts: 21
Post Re: I really am suffering......please help if you can.
Hi England,

Have you posted on the British from here is a link on the home page. Many URO's won't remove the gland as there are risks and no guarantee of a cure but I know how you feel.

My URO hopes that a TURP might work, I get BPH symptoms quite a lot so it is justified. I think occlusions are small stones in the gland good that they aren't there but I don't suppose it helps the patient one way or another.

Come on to the British forum and share all of this.

Jack


Sat Mar 16, 2013 7:58 am
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Joined: Sat Jun 09, 2012 2:06 pm
Posts: 94
Location: England
Post Re: I really am suffering......please help if you can.
Jack,

Mate that's a great idea. More of us that get together the more ideas we can get in the table and try figure this thing out.

Seems a lot of the guys are choosing the injection route to find a cure. At the moment I'm goin to persist with the regular prostate massages. Ok the relief my only last a few days but my girlfriend is more than willing to help me out. She notices the difference in me once I've had it done, and it's like being my old self again, albeit for a short period but il take that any day of the week ATM.

Cipro / cipro family anti biotics dudes, stay clear and away from that crap if you can, it's bad news.

England


Sat Mar 16, 2013 11:16 am
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Joined: Thu Oct 11, 2012 5:35 am
Posts: 21
Post Re: I really am suffering......please help if you can.
Look forward to your postings England.

Jack


Sat Mar 16, 2013 12:04 pm
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Joined: Sun Mar 17, 2013 6:53 pm
Posts: 8
Post Re: I really am suffering......please help if you can.
England,

You need to start thinking about fungal prostatitis. If you have had a lot of antibiotics your gut will be totally messed up and this will lead to fungal overgrowth. Once fungal overgrowth in the gut gets out of hand it will become mycelial and break through the barrier of the gut (leaky gut syndrome) and spread to any organ it likes. The prostate and bladder are common sites of fungal overgrowth.

So antifungals may help, candida diet, taking probiotics. Urologists don't look at this aspect of things. They only look at the organs. Western medicine is far too compartmentalised. It always looks for disease.... it does not look for the root cause giving everything a "disease" label. Doctors will not acknowledge candida and systemic candida and fungal dysbiosis but it is the cause of so much chronic illness. Keep giving antibiotics is just making the whole situation worse. Like pouring fat onto the fire.... will just make it explode even more. Fungal overgrowth gives off toxins which cause massive inflammation. Prostatitis is not just to do with the prostate it is a whole body thing. The doctors have completely lost the plot. Just google prostatitis and candida - read up on leaky gut syndrome.


Sun Mar 17, 2013 8:00 pm
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Joined: Sat Jun 09, 2012 2:06 pm
Posts: 94
Location: England
Post Re: I really am suffering......please help if you can.
Lakes,

Thanks for the post. Very interesting. It would explain a great many things....

Out of curiosity I'd like to compile a list of the most common bothering symptoms everyone has to find
Links and similarities. If everyone doesn't mind can you dudes post the symptoms you have (and when you have them)

Just a paragraph or so will do, I'd like to compare results.

England


Mon Mar 18, 2013 11:42 am
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