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 Success Stories - Post 'em If You Got 'em! 
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Site Admin

Joined: Fri Jul 16, 2010 2:56 am
Posts: 90
Post Success Stories - Post 'em If You Got 'em!
One of our long time posters approached me about making a 'sticky' post about success stories. I thought it was a good idea that would put these stories where new people can see what has worked for some of you.

Remember, this isn't a sales forum. A week ago we were getting three new (and now gone) posters who were selling all kinds of stuff. We can't do that here. Post what has helped you get back to your old self.
Thank you!

_________________
Follow the Code of Conduct and the Forum Rules, they are required reading, and try to set a good example for everyone else. The main website is http://www.Prostatitis.org - Administrator


Tue Jul 11, 2017 9:59 pm
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Joined: Sat Jul 08, 2017 7:51 am
Posts: 3
Post Re: Success Stories - Post 'em If You Got 'em!
My journey to complete recovery after being diagnosed with prostatitis

Pre-diagnosis
Prior to being diagnosed with prostatitis, I had a previous history of being given antibiotics to treat minor symptoms that my doctor (general physician) called “Urinary Tract Infections”. However on every occasion, urine and blood tests had never shown any evidence of infection. That physician had previously referred me to prestigious Urological Surgeon for review. As part of the specialist review, they arranged for me to have ultrasounds, blood tests, and a special x-ray involving injecting a dye into my veins. While friendly, knowledgeable, and genuinely interested in helping me, the specialist was ultimately not able to add anything new to understanding my symptoms.

The Diagnosis
At 34, I went to another doctor’s office with pain in my pelvic area that had lasted almost two weeks and alarmed me because it seemed to be getting worse. After performing a manual prostate examination, my doctor diagnosed bacterial prostatitis. I was prescribed a strong antibiotic called Ciprofloxacin. I was again sent back to the specialist who discussed with me the possibility of performing a cystoscopy, although with hindsight I am glad he chose not to proceed with this given my young age meant that the risk of bladder cancer was negligible and there was limited likelihood of the cystoscopy revealing anything new about my symptoms, and there are potential risks in terms of side effects and discomfort.

Sadness
Even after 6 weeks on Ciprofloxacin there was no meaningful improvement in my symptoms. The specialist had (helpfully) warned me that symptoms of prostatitis often take quite some time to resolve so I still held out hope that things might improve with time. I felt sad about the idea that perhaps I had a bacterial infection that was untreatable and wondered if perhaps I would experience this chronic pain for the rest of my life.

The discovery
After reading online, I discovered the idea that perhaps most ‘prostatitis’ was in fact “non-bacterial” from a website. I followed up on this by ordering a book called “A Headache in the Pelvis”. It talked further about the idea that most ‘prostatitis’ is not bacterial and not a result of an infection at all. This book provided me much mental relief, as I had a new sense that maybe somehow, there was a solution out there. However the book also said that the solution would require many months of patience and daily practice for perhaps an hour every day to learn to meditate and relax the muscles in
my pelvic area.

The frustration
After six months of tolerating the pain and sitting on a special cushion at work, my symptoms were manageable but nonetheless still a real problem. And I lived with the fear that they might one day again become unmanageable to the point that the pain would keep me awake at night again as it once had. Driving was uncomfortable sometimes.

The breakthrough
About a year after my initial diagnosis, I went to a specialized personal trainer that helps train athletes for events like the Olympics. I went to become stronger to help me with my sport. My intention was to do strengthening work, but as part of my training she first began by training in a physical stretching regime called ELDOA. Within a couple of months, I noticed my symptoms of pelvic pain had mysteriously disappeared. Then we moved on to more strengthening work and I let the stretches lapse. The pelvic area pain returned. It was at this point I realized that the book “A Headache in the Pelvis” had given a fabulous pointer in the right direction that my ‘prostatitis’ was not caused by bacteria but rather chronic tension and pain in certain muscles in my pelvic area. However the book’s solution for this chronic tension (including an hour of daily meditation) was not the only one or the best one for me. I quickly learned that every time my pelvic pain returned, it could always be resolved completely resolved within 48 hours by twice daily performing two of the key stretches I had been taught by my personal trainer that only take a few minutes. Looking back, I now realize that I was doing much more of activities that put my pelvic floor muscles into tension in the months before my symptoms first emerged. Since then I occasionally get the pain back if I neglect the stretches, but I deal with it quickly and with confidence. What worked for me may not work for everyone, but I wanted to share that it works for me in case it makes a different for others somehow.


Wed Jul 12, 2017 3:09 am
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Joined: Thu Dec 15, 2016 4:38 pm
Posts: 6
Post Re: Success Stories - Post 'em If You Got 'em!
Partly bacterial but Cured with tricyclic antidepressants and others...

Hi guys,

Today after 9 months of sickness it's finally time for me to give my contribution to this forum. After being a lot, lot better and getting back my normal life, I want to help people that fight this disease as much as I can.

This will be a quite long message but I think it's necessary to put everything to not omit an important detail. You can go directly to the summary if you want the short story

Sorry for my bad english.

Presentation:

I'm a French guy, 30 years old.
Medical antecedents:
Phimosis (circumcision for medical reason)
Symptoms of irritable bowel when I m frustrated.
Quite anxious in general.

History :

Summer 2016:
My girlfriend is pregnant. I'm very anxious about my future life.

October 2016:

After unprotected oral sex with a prostitute, I have red meatus and discomfort at tip of my penis.
Weird sensation when I pee.
After 1 week, I go to the doc that prescribe me urethra analysis and give me doxycycline.
My anxiousness is really very high, as I fear to be infected by something and potentially pass it to the future baby.
I wake up one night with a shooting pain somewhere between testicle and anus prostate.
Next day, horrible feeling of electricity in that area not in the middle but in left side.
The glans penis became over sensitive. Just touching the top of the glans was provoking hyper tingling sensation. I thought that I had a skin problem. Started to worry about all possible STD I could have.
Analysis reveals nothing. Anxiousness fall and I feel better.
After starting to work, hyper sensitivity came again, either in my glans or in the groin area also big pelvic pain
Multiple STDs tests are negative.
Urologist think it's a prostatitis, so he give me cipro for 15 days.

November 2016:
Cipro has no effect apart from giving me foot pain after sport.
This over sensibility is continuously moving from tip of the penis to perineum in the left side.
I now see that it is not related to skin but it's neuropathic.
When I don't have this over sensibility , I have pelvic pain moving from right to left side.

Interesting thing is the pain is NEVER at multiple places at the same time. It's always moving.

I'm really bad. Feels like a zombie. My life has totally changed. I'm in hell.

December 2016
A semen test revealed nothing.
Ask my urologist to do a prostatic fluid analysis after reading about this on the Internet. Found e-coli and enterococcus faecalis. Almost no White blood cells

Urologist give me 21 days of Augmentin and Linezolid (zyvox)

I also have hemorrhoids at this time.
Took some vacations between Christmas and new year eve. Things get better during that time.

January 2017
After reading on the Internet I go to a physical therapist specialized in pelvic pain.
She told me that pelvic muscles are in tension and my nervous system is irritated. Start internal muscles relaxation.
Pain decreased a little bit but continue to come and go and move during the day.
I'm still very bad in general. Sometimes think about suicide or living alone far away.
New semen tests that reveals e-coli and enterococcus faecalis in small amount like the prostatic fluid tests showed previously.
No white blood cells.

February 2017
Go to an infectiologist. He doubt that I have an infection. Prescribe me another semen test that show only e-coli this time.I didn't take any antibiotics since last test. Still no WBC.
Pain continue to fall down a bit.
Sometimes I have pain under my hear, on cervical area, shoulder or near the elbow.
Start to believe I could maybe survive to this.
Start to take quercetin.

March 2017
Baby is born.
Go to a chronic pain specialized doctor. She explains me that sometimes brain pain path are over sensitive and we feel pain where normally we should not.
She prescribe me Lyrica 100mg /day.
Infectiologist continue to think that the cause is not an infection. However he prescribe me 6 weeks of Bactrim Forte to give it a try.
After 10 days of ineffective Bactrim, a rash starts. The doctor tells me to stop immediately the antibiotics.
Start acupuncture.
Continue physical therapy less often and externally only.

April 2017
My stress start to decrease.
Pain is stable but still continues to eat my life. I fill pain also around my left hip area sometimes. Pain now resides at 80% of the time in the left side.
Start to take cernilton equivalent ( Rye pollen)
Lyrica seems to have no effect. Doctor give me a small dose of tricyclic antidepressants called Anafranil (clomipramine) 10mg on the morning & 10mg on the evening.

May 2017
Stress decreased a lot.
Have a lot of pain improvement . pain is now 100% in the left side. Feeling lot better between the big flares up .
Start to take melatonin 10 mg / every evening.
Do pelvic MRI scan that reveals nothing.
Sometimes have some neuropathic pain in the abdominal left area and little bit pain at ejaculation

June 2017
Things get better and better for pelvic pain.
Pain doctor tells me to continue Anafranil for the next 4 months.
Continue to take also quercetin, cernilton equivalent and melatonin.
Continue acupuncture.

July 2017
Almost no pain at all. Life back entirely to normal.
Stop acupuncture.

Summary

Symptoms by order of appearance

Red and irritated tip of penis.
Feeling of fever.
Neuropathic pain in left groin ( electric then tickling sensation)
Neuropathic pain in glans penis(over sensitivity) in top and then left side.
Pelvic pain that move between right and left side.
Pain under hear, in cervical area, shoulder and near the elbow
Pain around left hip.
Pain at ejaculation (rare)
Neuropathic pain in left abdominal area.
Important thing is I almost never had bladder or urinary problems.

Particularities of pain appearance

During my sickness I noticed weird things about my pain.
I had pain in a lot of points on my body particularly in my pelvic area but the pain was NEVER at multiple points at the same time. It was always moving.
During the two first months when I suffered a lot, doing sport or take a hot shower provoked a general tingling sensation in my body and stopped pain.
Eating a good meal, focusing on a task, spending time with friends, drink alcohol almost released the pain.
Was better when I was on holiday or when having activities where I had freedom feeling.
Frustration, anxiety, boring time, catastrophic feeling increased the pain.

Things that I think helped me to cure by order of probability

• Tricyclic antidepressants. Anafranil (10mg morning / 10 mg evening)
• Reduction of stress, force brain to be occupied by something pleasant. When have pain focus on my brain and try to trigger euphoric feeling (ask me if you want to know more about this)
• Acupuncture
• Melatonin (10 mg on the evening) / Cernilton (Rye pollen)
• Quercetin (500 mg per day)
Apart from acupuncture, I continue this treatment today

My opinion about this state.

This illness appears to be a non sense from A to Z at first, there is no really helpful tests, symptoms are always in evolution, it seems on some ways connected to sexual activities but also to brain.
Thus, doctors are really, really bad to treat it. They try to apply the same patterns they use for non chronic illness but that's not working because it's not the right approach. It's like Lyme, fibromyalgia, interstitial cystitis or other chronical states.

You go from doc to doc because they are just not capable to see things as a general illness and admitting that they simply don't know what is the root cause.
Some of them think it is an infection, they declare war to bacteria and they give you antibiotics like candies during months.
Others say to you arrogantly: "It's all in your head" but when you ask them how to removing it from your brain they of course send you to a psychologist. Which is over simplistic and a complete non sense.

Based on my story and on things that I saw on forums and research, I think this is far more complex and the cause of this may be multi factorial.

Some authors tried to describe this, it's seems there is a kind of vicious circle alimented by Infection, auto-immune and inflammatory processes, nervous system state and psychological factors.

See:
http://prostatitis.org/redirect.php?lin ... MC3591463/

http://prostatitis.org/redirect.php?lin ... didymitis/

http://prostatitis.org/redirect.php?lin ... ieuse.html (in french)

Moreover, the persons who gave me a theory that seems quite logical and corresponding to my condition was my physical therapist who said that the central nervous system was at a moment for unknown reason going crazy, so it irritates nerves and then creating some muscular tension in pelvic muscles.
In my case it could be the infection and the stress caused by the fear of being infected and the feeling of guilty.

And also my specialized doctor in chronic pain who explains me that sometimes, we feel pain where normally we should not because of chemistry in the brain (lack of serotonin, dopamine, endorphin, etc….). That's maybe why the tricyclic antidepressants that capture serotonin are working for me but also activities that produce dopamine and serotonin.

Also the classification of prostatitis (bacterial/ non bacterial / non bacterial inflammatory) is probably not very relevant.
For example, mine could be considered as infectious because I had e-coli / enterococcus faecalis, but antibiotics were not helping.

Considering this, don't assume that my treatment is the magic recipe against prostatitis. Some people will find relief with antibiotics for example.
However I hope it will help some people that have the same "type" of prostatitis than mine.

I sincerely wish you all the best for the future, guys. There is hope.[/quote]


Wed Jul 12, 2017 1:14 pm
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Joined: Fri May 08, 2015 2:59 pm
Posts: 525
Post Re: Success Stories - Post 'em If You Got 'em!
Got this curse about 3 years ago after eating some Indian herbs.

Tried: brocolli treatment, curcumin, NSAIDs, myofascial butt massage, chinese doctor, magnesium, diet changes

What made it worse: eating red meat, chili peppers, tomatoes, sex, cycling

Did not get anywhere until about 2 years ago. Then it randomly improved a lot, still pain when walking, could not have sex more than a few times a week. Went to a homeopath (royal homeopathic hospital in London - Peter FIsher) after a few months the pain had gone, but my nerve pain in joints got worse. Did not go back to the homeopath, it isn't a placebo trust me...

I now live symptom free most of the time, but I cannot cycle that triggers it again. Limiting sex to once every few days just in case, but no pain, rare discomfort. Nerve pain is annoying, but I am free of the degrading pain in the prostate region....

Chris


Thu Jul 13, 2017 8:12 am
Profile

Joined: Mon Jan 05, 2015 11:57 pm
Posts: 108
Post Re: Success Stories - Post 'em If You Got 'em!
KiwiGuy wrote:
The breakthrough
About a year after my initial diagnosis, I went to a specialized personal trainer that helps train athletes for events like the Olympics. I went to become stronger to help me with my sport. My intention was to do strengthening work, but as part of my training she first began by training in a physical stretching regime called ELDOA. Within a couple of months, I noticed my symptoms of pelvic pain had mysteriously disappeared. Then we moved on to more strengthening work and I let the stretches lapse. The pelvic area pain returned. It was at this point I realized that the book “A Headache in the Pelvis” had given a fabulous pointer in the right direction that my ‘prostatitis’ was not caused by bacteria but rather chronic tension and pain in certain muscles in my pelvic area. However the book’s solution for this chronic tension (including an hour of daily meditation) was not the only one or the best one for me. I quickly learned that every time my pelvic pain returned, it could always be resolved completely resolved within 48 hours by twice daily performing two of the key stretches I had been taught by my personal trainer that only take a few minutes. Looking back, I now realize that I was doing much more of activities that put my pelvic floor muscles into tension in the months before my symptoms first emerged. Since then I occasionally get the pain back if I neglect the stretches, but I deal with it quickly and with confidence. What worked for me may not work for everyone, but I wanted to share that it works for me in case it makes a different for others somehow.


I am very interested in ELDOA, but I found that only a few people in the world know the method. Is there any material or stretches you can share that specifically helped your pelvic pain?

_________________
Symptoms (starting 12/2014): Low libido, poor sensitivity; occasional urinary burning
Past Treatments: 6x Heparin bladder Injection. Elmiron (2x daily), Meriva Curcumin (500mg 2x daily), Physio (good!), Vistaril, Uro Prostate Massage (helpful!), Flower Pollen, Antibiotics (for about a month),


Thu Jul 27, 2017 4:06 am
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Joined: Thu May 12, 2016 6:30 pm
Posts: 191
Post Re: Success Stories - Post 'em If You Got 'em!
I gained relief using NAC - N-acetyl cysteine, initially 600 mg 3x/day. Now just need 400 mg 2x/day. I cap up my own and use calcium hydroxide 24% by weight to neutralize the acidity. Most people can tolerate it ok as is. My prostate is asymptomatic but I do have vas deferens discomfort. I started this in April 2016. See the full post here: viewtopic.php?f=2&t=1663


Thu Aug 03, 2017 6:51 pm
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Joined: Sun Aug 06, 2017 12:19 am
Posts: 1
Post Re: Success Stories - Post 'em If You Got 'em!
For over 16 years I suffered from chronic prostatitis. I visited over 20 doctors and urologists through the years without any real success. All I ever received were negative tests for anything specific, countless prescriptions for antibiotics - which seemed to help but never completely cured me - and one doctor who told me it was all in my head. Ozone therapy, acupuncture, saw palmetto – nothing seemed to work. Over the course of the last 4 of the 16 years my PSA numbers started ramping up. After my PSA results passed 4 my doctor said it was time for me to get a biopsy. I could not believe that poking a hole in the organ that I was having trouble with and creating a pathway for bacteria was a good idea. I was getting beyond desperate.

It was then that I was thankfully introduced to http://prostatitis.org/redirect.php?lin ... loodiq.com and took a blood test – blood chemistry is unique for each individual - and for the first time received a report of what all of the numbers in my blood test really meant. Based on the results of my blood test and the accompanying interpretation, it was evident that key nutrient deficiencies were creating problems for the prostate organ. For years I had known I was low in Vitamin D and iodine is difficult to come by in my diet, but never had anyone made the connection between nutrients and prostate health. The interpretation provided with my blood chemistry gave me a pathway to improved health – and something that was totally under my control.

Within three months after starting the recommended supplements to support the prostate and adjusting my diet, my PSA numbers started dropping and the prostatitis went away. For the past three years I have been pain and antibiotic free. PSA numbers have stayed under 2. My quality of life today is dramatically different than what it was before learning about My Blood IQ. Supplements – the right supplements - are working for me. I hope they will work for you.


Sun Aug 06, 2017 12:28 am
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Joined: Fri Aug 11, 2017 3:35 am
Posts: 3
Post Re: Success Stories - Post 'em If You Got 'em!
kiwiguy - what are the two exercises?
would love to try them myself
Please PM me

thanks very much


Fri Aug 11, 2017 4:33 pm
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Joined: Fri Aug 11, 2017 3:35 am
Posts: 3
Post Re: Success Stories - Post 'em If You Got 'em!
how do we personally contact a member?
i'd like to ask kiwiguy for the two exercises he has found successful

Admin Note:
I apologize guys. I had a family issue pop up that took me out of Internet range and I was gone for about three hours.

As to contacting a member - Click on his PROFILE and then in the middle left, you'll see a button to PM the member.


Fri Aug 11, 2017 4:34 pm
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Joined: Fri Aug 11, 2017 3:35 am
Posts: 3
Post Re: Success Stories - Post 'em If You Got 'em!
Where do I find a member's profile?

ADMIN NOTE: http://athleticproductions.net/images/Profile.png


Fri Aug 11, 2017 5:25 pm
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Joined: Mon Jan 05, 2015 11:57 pm
Posts: 108
Post Re: Success Stories - Post 'em If You Got 'em!
Why PM? Why not share with the rest of us who are suffering and may benefit from such exercises.

_________________
Symptoms (starting 12/2014): Low libido, poor sensitivity; occasional urinary burning
Past Treatments: 6x Heparin bladder Injection. Elmiron (2x daily), Meriva Curcumin (500mg 2x daily), Physio (good!), Vistaril, Uro Prostate Massage (helpful!), Flower Pollen, Antibiotics (for about a month),


Fri Aug 11, 2017 5:35 pm
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Joined: Wed Feb 10, 2016 6:43 pm
Posts: 40
Post Re: Success Stories - Post 'em If You Got 'em!
Hi ADMIN ,

I would like to make a suggestion.

This is a great idea of a post (though sad how few actually have positive stories to share).

However, I would prefer if this post only included the actual success story from the original poster.

Over time , some posts become quite long because of the exchanges of communication. Some of it , may be useful but alot of it is not and makes it difficult to get to the important bits of the post. David88 .. common cause of prostatitis being a good example.

Naturally , people will have questions.

I would like to see this post to be used as a reference and for members to post a topic separately to discuss and exchange communication in more detail.

What do you think?


ADMIN NOTE: Let me think of how to work this.


Fri Aug 18, 2017 6:02 pm
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Joined: Wed Feb 10, 2016 6:43 pm
Posts: 40
Post Re: Success Stories - Post 'em If You Got 'em!
Hi ADMIN ,

I was just reading through some of the stories in the 'it works for me' section. I would like to know how the foundation got hold of these stories? As this section is not part of a forum how did these people get the story across?

Forgive me for asking but are these all genuine? They all seem quite old.

Thanks

ADMIN NOTE: I only run this part of the site, but I think those were put up before this forum was put up and run under the kind of admin actions we do now. Prior to me stepping in back in 2010, the spammers, scammers, and clowns kept taking it down.


Sat Sep 02, 2017 9:33 pm
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Joined: Sun Sep 10, 2017 5:39 pm
Posts: 10
Post Re: Success Stories - Post 'em If You Got 'em!
3 days taking N-acetylcysteine (NAC) - 600mg 3x per day. Feeling 95%+ better. Can't believe it.


Sun Sep 10, 2017 6:22 pm
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Joined: Mon Jan 05, 2015 11:57 pm
Posts: 108
Post Re: Success Stories - Post 'em If You Got 'em!
maxprostate wrote:
3 days taking N-acetylcysteine (NAC) - 600mg 3x per day. Feeling 95%+ better. Can't believe it.


Great!
What were your symptoms, how long did you have the condition, and why did you just make an account on this forum yesterday on the very same day you posted your magic cure?

_________________
Symptoms (starting 12/2014): Low libido, poor sensitivity; occasional urinary burning
Past Treatments: 6x Heparin bladder Injection. Elmiron (2x daily), Meriva Curcumin (500mg 2x daily), Physio (good!), Vistaril, Uro Prostate Massage (helpful!), Flower Pollen, Antibiotics (for about a month),


Mon Sep 11, 2017 1:39 am
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Joined: Sun Sep 10, 2017 5:39 pm
Posts: 10
Post Re: Success Stories - Post 'em If You Got 'em!
Fantom451 - see my other post with all of my details.
viewtopic.php?f=2&t=2149

worked out last night, still feeling okay, but slightly worse again last night. just taking it day by day.

Not a magic cure. I was very anxious about feeling better - not hopeful it would last.


Mon Sep 11, 2017 8:07 am
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Joined: Fri May 08, 2015 2:59 pm
Posts: 525
Post Re: Success Stories - Post 'em If You Got 'em!
I actually agree with Pritesh that we should keep this thread just for success stories and follow up to success stories (for example if someone decided something didn't work a few weeks later). That would mean changing the title of the post to include this info, or the first post, or the admin would have to delete the extra comments. If it is 100 pages long it will be difficult for people to get through. I don't know what other people think?


Tue Sep 12, 2017 3:25 am
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