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 Success Stories - Post 'em If You Got 'em! 
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Joined: Fri Oct 27, 2017 6:34 am
Posts: 20
Post Re: Success Stories - Post 'em If You Got 'em!
Quote:
Strangely, I've had the mind-body pain creep up elsewhere, trying to get a foothold. It hasn't. For instance, I've had 'tendonitis' in my foot that goes away after running on my foot for a few minutes (my body is seriously strange) and after cursing it in my head telling it that it isn't real. The mind is an odd thing.


Good to know that you have overcome the prostatitis c90danielw. Regarding the pain in your foot that goes away with a bit of running, do get your uric acid tested. It's a simple blood test. This pain is symptomatic of a high level of uric acid, and it can sometimes be linked with prostatitis pains as well.


Tue Jan 30, 2018 11:34 am
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Joined: Thu Aug 11, 2016 11:12 pm
Posts: 3
Post Re: Success Stories - Post 'em If You Got 'em!
pranav wrote:
Quote:
Strangely, I've had the mind-body pain creep up elsewhere, trying to get a foothold. It hasn't. For instance, I've had 'tendonitis' in my foot that goes away after running on my foot for a few minutes (my body is seriously strange) and after cursing it in my head telling it that it isn't real. The mind is an odd thing.


Good to know that you have overcome the prostatitis c90danielw. Regarding the pain in your foot that goes away with a bit of running, do get your uric acid tested. It's a simple blood test. This pain is symptomatic of a high level of uric acid, and it can sometimes be linked with prostatitis pains as well.


Thanks for the info! The foot issue only hurt when I stepped on my foot (back of foot pain - more consistent with an achilles bursitis pain), and occurred after I was wearing some very floppy boots. I think uric acid issues (gout?) is more a red swelling pain?

But since I was able to go from extreme pain to no pain in a matter of seconds, while doing things that formerly triggered the pain (like heel raises in floppy boots) and simultaenously using mind-body techniques, I'm pretty sure this was mind-body deal. No bursitis here, I'm happy to report! :)


Wed Jan 31, 2018 5:48 am
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Joined: Fri Oct 09, 2015 7:38 am
Posts: 178
Location: Emil-Andresen-Straße 12, 22529 Hamburg, Germany
Post Re: Success Stories - Post 'em If You Got 'em!
pranav wrote:
I travelled to Georgia in Eastern Europe for the treatment.

How did you find a trustworthy clinic whose doctors would not accidentally inject you with something harmful? How much money did you pay for the clinic?

PS: There was also Enterococcus Faecalis found, but "too little to justify antibiotics".

As I am not gay and those bacteria are found in the anal region, I think I should consider this a pathogen.

_________________
My Prostatitis/CPPS-Blog: http://prostatitis-cpps-heilen.blogspot.de
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Prostatitis wiki: http://prostatitiscure.bplaced.net


Thu Feb 08, 2018 10:13 am
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Joined: Thu Feb 08, 2018 12:17 pm
Posts: 13
Post Re: Success Stories - Post 'em If You Got 'em!
Hello All -

What I am going to write today may help a lot of us who have been suffering from this serious problem. While I know everyone's case is different, hopefully my experience could be useful to some or many of us....
I have suffered for 1.5 years now. My intentions are not to judge anyone but to ONLY help us all in our journey of recovery! I am NOT fully cured (almost there!) but have in most of the aspects over-powered this nonsense and am on the road to full recovery with my determination and willpower....

Very briefly, few important points:

1. I am 35+ man who is still single. Last GF almost 6 years ago...and probably that's where I got entangled into this nonsense when I started masturbating more frequent. But my frequency was nowhere near as compared to people who have either mentioned the same in this forum or maybe few other forums I have read. But probably I was watching porn for longer hours and not masturbating properly...maybe i used to press the penis during ejaculating and hence not fully ejaculating out the semen...

2. I Do NOT Drink, Smoke, drugs, no coffee or tea also...I know seems like I am good man...but then we all are!

3. My symptoms HAVE ONLY been frequent urination...NO pelvic pain, or painful urination. Though for the first 3-5 months felt a very bad burning/hotness sensation constant throughout the day and debilitating, and after any nightfall/ masturbation episode even worse feeling of hotness and frequent voiding (16 times/ day initially).

4. I have the greatest luck of my father being a homeopathy doctor, which definitely have helped in recovering faster I believe. He has provided his best work!....

5. My urologist has no idea what could have started this...but he says if at times semen keeps going back in the body and didn't getting ejaculated properly that may cause some inflammation in prostate. But what western doctors do NOT realize that in some way over-masturbation or masturbating during this condition is NOT healthy. And my urologist said that my continuation should in no way aggravate the situation (WHICH IS NOT TRUE as I found). The only med he gave me all this time is Flomax. And his PA even said to masturbate regularly. I tried for a month and my condition was worse after every masturbation.

So what has cured me to a greater extent? My recovery path was a trying many things as time progressed, but I will come straight to the main solution -

1. STOP Masturbating....and I mean At ALL! I am clean for the last 1 year (out of the 1.5 years) and that has helped big time.

2. My father's homeopathy meds...if couldn't cure, really helped in recovery as I was only taking those meds initial 4 months. Flomax later helped to some extent in controlling the urge to urinate. Though after taking everyday for 1 year, I have dropped the dosage to only once every 2 days. This helped bringing down urination frequency to 6-7 times/ day.

3. Take natural non-inflammatory products and herbal tea. I started drinking 1 glass (250 ml) of water with 25% or little less of teaspoon turmeric (2ice a day). Eat garlic (natural anti-biotic) and ginger in food. Herbal teas - chamomile with honey.

4. MOST Importantly - What took the recovery from lets say 90% to 98% (which is VERY crucial) is the following-
ISHA Foundation (a spiritual practice non-profit organization) - Famous guru named Sadhguru (and he is no quack, I have lived my life as an atheist, and i can tell you this man is a stronger human...watch his videos on youtube). They have a 4-day Inner Engineering program (ISHA Kriya) which entails few yoga postures and amazing breathing techniques (Kriyas). This I have done 2 times a day (it takes 35 mins for one session of ISHA Kriya), and in just last 3-4 months have changed my life! They also have meditating techniques which will SURELY help.

Also as already a decent Yoga practitioner myself, I have found few good Yoga postures specific to cure this condition (another great guru BKS Iyengar Yoga) which I have now added with this ISHA Kriya. And I am on a roll! Now I can tell you most of the times I feel healthy in that region. I can take 3-4 quick succession nightfalls without impacting my urination frequency. Though when I tested with more # of quick nightfalls (by watching porn in the day), I found that creates some irritation...but man the recovery from that state is very fast!!!

I would also mention here that at times our stress and depressing mindset during this period will also add to this suffering, so pls allow yourself to heal. I know most of you can not have access to step 2 above, but still step 1, 3 and 4 MUST help you improve...Also, try to live a sober life for sometime...And find a good partner (who are single like me) and keep the sexual relationship off for sometime (if u already have a partner)....

This is my Journey...I hope all of you will find your peace. Let's fight and win this battle.


Last edited by rocky888 on Thu Feb 08, 2018 6:47 pm, edited 1 time in total.



Thu Feb 08, 2018 12:37 pm
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Joined: Thu Dec 31, 2015 4:11 pm
Posts: 577
Post Re: Success Stories - Post 'em If You Got 'em!
Sorry to say this but I feel I must be honest here. No one "guru" or yoga is going to cure this. That's all a bunch of BS. I know what I'm talking about because I was going to an ayurvedic doctor like one year and he only blamed me for "thinking too much" when the one to blame was him, who couldn't even grasp that my problem was a chronic prostatitis and couldn't cure me. I write this because I think that the part of the above comment which says that the "guru" was the most helpful thing can be misleading, specially to desperate people.

I would advise people to stay away from "gurus" and ayurvedic doctors to cure this because they will only take your money. Ayurveda and yoga may help in other mild health problems but not in chronic prostatitis.


Thu Feb 08, 2018 3:49 pm
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Joined: Mon Feb 12, 2018 9:55 am
Posts: 2
Post Re: Success Stories - Post 'em If You Got 'em!
I've had Chronic Prostitis off and on for years, countless urologists and off and on Cipro and others. Finally I listened to my last urologists. For me, its all about diet and exercise and only having sex 2-3 times a week)(ate least once). My triggers are masturbating too often and and doing Ab exercises. Also too much caffeine and alcohol. I began writing everything I did and ate and drank. All of a sudden my symptoms began to disappear. Not overnight but eventually they were gone. If they came back, i was eating fried stuff and drinking too much, maybe masturbation. I know everyone is different, but everyone here has had the agony of this ailment. I thought for sure I had an STD, or that it would never go away. I believe Non Bacterial prostitis can be cured if you listen to your body and make the changes it tells you make. I'm only writing on here because I have seen such a difference and I know how debilitating this can be!
If you don't make changes and write it all down, you may live with it forever. I was living with Prostitis for years and refused to make changes. Now I feel great and I know you can get rid of it too.
I take all the regular vitamins too
Saw Palmetto
Zinc
Cranberry
I also saw a big difference when I took Cialis, not sure if it opened up everything or not, but I def saw a difference. I only take the Cialis for a few days if i feel like it might be coming back.
The answer is to stay clear of all the triggers and see what happens. It wont happen right away, but I am now drinking beers, drinking coffee and enjoying my old life. I'm just very careful what I eat and what exercises I do
I also do Hot yoga twice a week
I hope some of this helps, I've never written in a forum before
DIET
EXERCISE
and whatever else are your triggers!
I lived with this for years and now feel great


Mon Feb 12, 2018 3:23 pm
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Joined: Thu Nov 05, 2015 5:48 pm
Posts: 435
Post Re: Success Stories - Post 'em If You Got 'em!
jwalk229 wrote:
I've had Chronic Prostitis off and on for years, countless urologists and off and on Cipro and others. Finally I listened to my last urologists. For me, its all about diet and exercise and only having sex 2-3 times a week)(ate least once). My triggers are masturbating too often and and doing Ab exercises. Also too much caffeine and alcohol. I began writing everything I did and ate and drank. All of a sudden my symptoms began to disappear. Not overnight but eventually they were gone. If they came back, i was eating fried stuff and drinking too much, maybe masturbation. I know everyone is different, but everyone here has had the agony of this ailment. I thought for sure I had an STD, or that it would never go away. I believe Non Bacterial prostitis can be cured if you listen to your body and make the changes it tells you make. I'm only writing on here because I have seen such a difference and I know how debilitating this can be!
If you don't make changes and write it all down, you may live with it forever. I was living with Prostitis for years and refused to make changes. Now I feel great and I know you can get rid of it too.
I take all the regular vitamins too
Saw Palmetto
Zinc
Cranberry
I also saw a big difference when I took Cialis, not sure if it opened up everything or not, but I def saw a difference. I only take the Cialis for a few days if i feel like it might be coming back.
The answer is to stay clear of all the triggers and see what happens. It wont happen right away, but I am now drinking beers, drinking coffee and enjoying my old life. I'm just very careful what I eat and what exercises I do
I also do Hot yoga twice a week
I hope some of this helps, I've never written in a forum before
DIET
EXERCISE
and whatever else are your triggers!
I lived with this for years and now feel great


Thanks for your story. What were your symptoms?


Mon Feb 12, 2018 6:57 pm
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Joined: Fri Aug 11, 2017 3:35 am
Posts: 5
Post Re: Success Stories - Post 'em If You Got 'em!
jwalk229 wrote:
I've had Chronic Prostitis off and on for years, countless urologists and off and on Cipro and others. Finally I listened to my last urologists. For me, its all about diet and exercise and only having sex 2-3 times a week)(ate least once). My triggers are masturbating too often and and doing Ab exercises. Also too much caffeine and alcohol. I began writing everything I did and ate and drank. All of a sudden my symptoms began to disappear. Not overnight but eventually they were gone. If they came back, i was eating fried stuff and drinking too much, maybe masturbation. I know everyone is different, but everyone here has had the agony of this ailment. I thought for sure I had an STD, or that it would never go away. I believe Non Bacterial prostitis can be cured if you listen to your body and make the changes it tells you make. I'm only writing on here because I have seen such a difference and I know how debilitating this can be!
If you don't make changes and write it all down, you may live with it forever. I was living with Prostitis for years and refused to make changes. Now I feel great and I know you can get rid of it too.
I take all the regular vitamins too
Saw Palmetto
Zinc
Cranberry
I also saw a big difference when I took Cialis, not sure if it opened up everything or not, but I def saw a difference. I only take the Cialis for a few days if i feel like it might be coming back.
The answer is to stay clear of all the triggers and see what happens. It wont happen right away, but I am now drinking beers, drinking coffee and enjoying my old life. I'm just very careful what I eat and what exercises I do
I also do Hot yoga twice a week
I hope some of this helps, I've never written in a forum before
DIET
EXERCISE
and whatever else are your triggers!
I lived with this for years and now feel great


There are natural products like Chinese herbs and homeopathy that will do the same thing as Cialis also - just so you know.

ADMIN NOTE: I am not allowed to let you to link to your personal website of products. If someone wants to message you, that is on them. Thanks.


Mon Feb 12, 2018 10:12 pm
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Joined: Mon Feb 12, 2018 9:55 am
Posts: 2
Post Re: Success Stories - Post 'em If You Got 'em!
My symptoms were
Constant urge to urinate 15 times a day
Pain up my anus and testicles
Constant pain in the tip of my penis
Lethargy
Pain after ejaculation

I also forgot to say I took a hit bath every night, even when I really did t want to take one
And no seltzer, any fizzy water caused pain


Mon Feb 12, 2018 11:20 pm
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Joined: Fri Apr 27, 2018 10:41 am
Posts: 1
Post Re: Success Stories - Post 'em If You Got 'em!
hi just wanted to share my experience. I was diagnosed with bacterial prostatitis, which I believe to be a correct diagnosis, in February 2017. I was on Cipro, then Bactrim and doxycycline and back on Bactrim.
The pain and discomfort were awful. It felt like a someone shoved a cantaloupe up my ass. Difficulty urinating, depression I ended up taking a month off of work. I was on antibiotics for over 3 months and was very worried and depressed. I thought it would never end. I would like to share what I did to get better.
1) I started exercising. Mostly walking. I couldn't sit anyway.

2) I went to a therapist to help with the depression. She helped put this affliction in perspective. It could always be worse. It would eventually end and even the discomfort I was in, wasn't life ending it just sucked. Sometimes life is difficult, but it will pass.

3) Prostate PQ is a supplement with rye grass pollen extract. It is the only dietary supplement with clinical trials that support it's claims. It is effective but not cheap. It can be purchased online without a prescription, but my doctor did prescribe it.

4) After a while I noticed my symptoms would escalate and and abate quickly. Good days / bad days. This is when I really started to tune in to what my body was telling me. I noticed when laying on my stomach If I really relaxed in a dark quiet room I could feel the muscles in my pelvic area relax and release their tension. That enlarged sensation in my rectum would lessen. I could urinate better. I think when you have prostatitis you start to clench the muscles in your pelvic region because of the pain and discomfort. Clenching also helped me not wet my pants! Whenever I would bend or sit it felt like a lightning bolt through my penis and as a result I would clench up. I think after months of clenching you forget how to relax those muscles and the symptoms of prostatitis and pelvic floor dysfunction are very similar and easy to confuse.

5) Accupuncture, Accupuncture ACCUPUNCTURE!! OMG it really helped relieve the pain and it helped relax the muscles. I started 3x a week and cut down to 1x a week. I haven't been back in a few months but I will be back to it soon because some days it is hard to relax those pelvic muscles.

6) Relax, avoid stress. Treat yourself well. Be good to yourself, be kind to yourself. Stay social, see your friends, laugh. Seriously... laugh! It helps relax those muscles and reduces stress. Also hot soup. It is comforting and helps you relax
.
7) stay away from booze and drugs

8) Sex. When my prostatitis was raging sex hurt. When it switched over to the pelvic dysfunction sex would alleviate some of the symptoms. Also get an erection and let it go soft. Do it a couple of times. That really helped my symptoms. I dont know why, but it helped those pelvic muscles relax.

9) Advil, hot baths
I hope this stuff is relatable and it helps even one person. If you are reading this and you are suffering, you are not alone. It won't last forever. You can still enjoy life. Just try not to worry about it. I know thats not easy when you are suffering but my urologist told me the same thing and he was 100% right about it. Be well!


Fri Apr 27, 2018 11:27 am
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Joined: Sat May 19, 2018 5:52 pm
Posts: 1
Post Re: Success Stories - Post 'em If You Got 'em!
This post is WAY overdue. I spent some time reading here after having a persistent low-grade inflammation. I found it a great resource, but didn't see what I needed. (I may have failed to look in the right places).

All the credit for my recovery goes to ex-girlfriend, Nicole. She's one of those meditating, mind-bending, intuitive, universally connected, "woo" types. Anyway, she gave it a "huh, let me see." And then said. "Corn. I think it's corn. Stop eating corn."

So for the speed readers:

STOP EATING CORN!

Details... It's worth noting that I'd pretty much started to see chips and salsa a healthy late afternoon snack. I'd put down a couple bags a week, with tasty salsa of course. But I also ate plenty of other things with corn, like cereals. I stopped and it went away. 100%.

I'll get mild inflammation from time to time, but that's usually around drinking regular beer.

Worth noting too (probably) is that before the omission of corn, I was already 98% gluten free (yes that awesome bread at the fine dining... I'm hitting it).

I've felt long overdue to share my experience. Guys... DROP THE CORN, SEE WHAT HAPPENS!

I hope it works for you.

My suspicion is that all the stuff they do with GMO corn (which kills the insects that eat it... pesticides built right in!!) is having an impact on us. I actually think that same corn might be why gluten is becoming more of an issue.

I'm no doc, just trying to find my way.

Good luck!


Sat May 19, 2018 6:06 pm
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Joined: Wed Aug 31, 2016 3:30 pm
Posts: 7
Post Re: Success Stories - Post 'em If You Got 'em!
Diagnosed with Prostatitis in July 2016 after thinking I had an STI, or legitimate male UTI (following low risk activity with high risk woman outside of my marriage, and months of paranoia and STD tests and doctor consultations). Was given Cipro 1000mg x30, but had to stop 5 days in due to Tendon pain which remained with me for more than 6 months. I was starting to feel a lot better before i took the Cipro, but felt that the Cipro would cleanse me and put my mind at ease.

The main take away for everyone reading is that the stress, guilt and worry may very well cause or make worse the symptoms of Prostatitis, if it was bacterial or not. I think over masturbation may trigger it, and even incomplete ejaculations, like stopping half way during an orgasm. I will never know if mine was bacterial or not, but it did start to ease up 3 months after I started with symptoms before I even took any antibiotics.

Reason I am back on here is because I'm worried im starting to feel it again, and there is again a little bit of worry of having caught something like an Sti after a broken condom with someone of unknown Sti status, but this time around I don't have the guilt because the wife was there and partaking in the activities (yes, I am a VERY lucky man). After these activities my sex drive also spiked and I ejaculated 4 times in a 16hr window, and it is also possible that this has something to do with it

What I felt the first time: irritation in urethra with a very slight clear discharge, slow urine stream, pain when sitting down.
What I feel this time: Slow urine stream and Slight slight urethra irritation, it basically feels like my prostate has enlarged and is clamping down on my urethra.

Anyways, just wanted to share my story,

Good Luck guys.


Mon Jun 04, 2018 10:51 pm
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Joined: Tue Jun 05, 2018 4:50 pm
Posts: 4
Post Re: Success Stories - Post 'em If You Got 'em!
Cliff Notes:
-I've had chronic pelvic pain for 15+ years
-I've tried many medications and procedures and none have worked except myofascial/trigger-point physical therapy
-It took almost a year and now monthly PT visits, but my quality of life has improved significantly with pain dropping from 6-8 out of 10 to 2-4 out of 10


My advice on what to do:
-Confirm with your physician that you don't have an intrinsic and/or acute issue in an organ in the area (e.g. prostate, bladder, etc.)
-If there is no obvious infection or anything else your physician can identify then seek a licensed and experienced pelvic floor myofascial physical therapist - ideally in your area
I swear by Melissa Hines who is in private practice in Boston

If you're on the west coast I would suggest reaching out to Dr. Wise who wrote "The Headache in Pelvis"
-I would discourage you from leveraging a PT that focuses primarily on "bio-feedback" as this will likely fail (it did for me)
-My PT required a multi-pronged approach outside our visits that included restorative yoga, mindfulness meditation and stretching. The yoga/meditation is critical to help stop the mental components of the "pain cycle"



Long version:
In my last year or two in college around the year 2000 I started to notice pain in my pelvis. My symptoms were and remain primarily in my perineum (though much better now). I saw a primary care physician who assumed a prostate infection and prescribed multiple courses of antibiotics that were not effective. This is a common first-line treatment that fails most of the time because infections are not typically the cause.

He then referred me to a urologist that did an ultrasound of my bladder and ordered a CAT scan (or MRI, I forget). Both were normal so he suggested the drug Flomax. I took this medication for a year or two but never found relief. OTC medications like ibuprofen never touched it either. As the pain varied over the years, in some years I was more active in seeking treatment.

A few years after the pain began I found this NYC Dr. Toth (a fertility doctor) that believed that CPPS in men was caused by bacteria in the prostate that oral antibiotics could not treat due to dilution. His procedure included IV antibiotics for a few days and a few direct injections of antibiotics into the prostate. As you can imagine this was an incredibly uncomfortable procedure and required regular travel between Boston (my home) and NYC. Thankfully I was able to convince my health insurance provider to cover it or it would have been several thousand dollars. It didn't work.

Some time after that failed procedure, I sought out another urologist in Boston at a prestegious local hospital. The urologist also found nothing wrong with my prostate and recommended the medication called Neurontin (gabapentin). This is an drug sometimes used for neuropathic pain. Unfortunately, the side-effects (tiredness/difficulty concentrating) outweighed the limited benefits so I didn't take it for very long.

Again years passed and I had another bad "flare up." I did my usual search online to try to find new treatments/hope and found a story about a guy that found relief through a multi-disciplinary approach at a local Boston hospital. I forget the details, but it included a pain doctor, physical therapist, urologist, etc. Armed with this I went to the local "Women's Health" clinic of the same local prestigious hospital. The physical therapist I worked with was compassionate, but focused primarily on biofeedback. Specifically trying to "re-train" my pelvic floor. After seeing no improvement in 4-5 visits, she suggested that I go to the pain clinic to see a specialist there.

In retrospect at the time (circa 2010 maybe), I wondered why I never went to a pain specialist before. The specialist was also very compassionate and committed to try to help. She suggested I try valium suppositories. This was the only medication that ever provided some relief for me and in retrospect now, I understand why (due to relaxing pelvic floor tension). It obviously had some undesirable side-effects that I didn't like including drowsiness/difficulty focusing. This was problematic working in a mid-level position at a healthcare tech company and having hobbies like racing cars. She also tried some direct nerve blocks in my lower back that failed and a relatively new procedure of a "lidocaine infusion" that also didn't help. At that point she was out of ideas.

A couple of years passed with using the valium to help manage the pain when I again went online to search for a solution and at that time I found Melissa Hines. Melissa has since opened a private practice: To set the right expectations, she did not "cure' my pelvic pain, but significantly reduced it and helped me understand the causes and how to manage it together.

Her approach includes education on the latest understanding of the pelvic floor and how the mind deals with pain. This is why her treatment includes not only internal/external trigger point release (as described by Dr. Wise in his book called "A Headache in the Pelvis"), but also restorative yoga, mindfulness meditation and stretching. She was cautiously optimistic from the beginning and said it would take months to help address the pelvic floor dysfunction I had developed over the years. With our mutual commitment, I saw slow progress and within a year was significantly better and now meet with her once or twice a month for "maintenance."

I didn't mention this before, but the likely trigger to my pelvic pain was a lower back injury I had from a fall in College (that I didn't connect at the time) and a predisposition to hold my stress/anxiety in my pelvis. What happens is that tension builds in the pelvic floor over time creating "trigger points" (kind of like knots in your neck) where poor blood flow/tension creates an inhospitable place for the surrounding nerves. The nerves send pain signals to your brain and over time creates more pain receptors because your body thinks something may be wrong. This in turn creates more pain and the cycle continues. This is why the mindfulness/yoga is important to help "reset" the brain as the tension and trigger points in the pelvic floor area is addressed.

I'm probably forgetting some details here and there and may not be consistent in answering questions. It took me over a year for me to even come back here to try to share my story.

Good luck to those dealing with this and hope this helps.

ADMIN NOTE: By the rules given me, I can't allow the links put in this article. This is NOT to say that these links were bad, but any time a first time poster comes here and posts the same two link two and three times in the same article, red flags go up. Anyone is free to message you via the PM system here and get that info from you. I have saved those links and will run them by the board to see if I can put them back in place.

To the original poster - I understand the enthusiasm you have here, but the site has some strict rules about what can be 'linked out' that were just further tightened by the Institute of Health. I will send these links to my 'boss' and if they tell me I can allow them, I'll put them back in the article.

Thank you.


Tue Jun 05, 2018 4:55 pm
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Joined: Mon Jan 05, 2015 11:57 pm
Posts: 120
Post Re: Success Stories - Post 'em If You Got 'em!
armyofone wrote:
Cliff Notes:
-I've had chronic pelvic pain for 15+ years
-I've tried many medications and procedures and none have worked except myofascial/trigger-point physical therapy
-It took almost a year and now monthly PT visits, but my quality of life has improved significantly with pain dropping from 6-8 out of 10 to 2-4 out of 10


My advice on what to do:
-Confirm with your physician that you don't have an intrinsic and/or acute issue in an organ in the area (e.g. prostate, bladder, etc.)
-If there is no obvious infection or anything else your physician can identify then seek a licensed and experienced pelvic floor myofascial physical therapist - ideally in your area
I swear by Melissa Hines who is in private practice in Boston

If you're on the west coast I would suggest reaching out to Dr. Wise who wrote "The Headache in Pelvis"
-I would discourage you from leveraging a PT that focuses primarily on "bio-feedback" as this will likely fail (it did for me)
-My PT required a multi-pronged approach outside our visits that included restorative yoga, mindfulness meditation and stretching. The yoga/meditation is critical to help stop the mental components of the "pain cycle"



Long version:
In my last year or two in college around the year 2000 I started to notice pain in my pelvis. My symptoms were and remain primarily in my perineum (though much better now). I saw a primary care physician who assumed a prostate infection and prescribed multiple courses of antibiotics that were not effective. This is a common first-line treatment that fails most of the time because infections are not typically the cause.

He then referred me to a urologist that did an ultrasound of my bladder and ordered a CAT scan (or MRI, I forget). Both were normal so he suggested the drug Flomax. I took this medication for a year or two but never found relief. OTC medications like ibuprofen never touched it either. As the pain varied over the years, in some years I was more active in seeking treatment.

A few years after the pain began I found this NYC Dr. Toth (a fertility doctor) that believed that CPPS in men was caused by bacteria in the prostate that oral antibiotics could not treat due to dilution. His procedure included IV antibiotics for a few days and a few direct injections of antibiotics into the prostate. As you can imagine this was an incredibly uncomfortable procedure and required regular travel between Boston (my home) and NYC. Thankfully I was able to convince my health insurance provider to cover it or it would have been several thousand dollars. It didn't work.

Some time after that failed procedure, I sought out another urologist in Boston at a prestegious local hospital. The urologist also found nothing wrong with my prostate and recommended the medication called Neurontin (gabapentin). This is an drug sometimes used for neuropathic pain. Unfortunately, the side-effects (tiredness/difficulty concentrating) outweighed the limited benefits so I didn't take it for very long.

Again years passed and I had another bad "flare up." I did my usual search online to try to find new treatments/hope and found a story about a guy that found relief through a multi-disciplinary approach at a local Boston hospital. I forget the details, but it included a pain doctor, physical therapist, urologist, etc. Armed with this I went to the local "Women's Health" clinic of the same local prestigious hospital. The physical therapist I worked with was compassionate, but focused primarily on biofeedback. Specifically trying to "re-train" my pelvic floor. After seeing no improvement in 4-5 visits, she suggested that I go to the pain clinic to see a specialist there.

In retrospect at the time (circa 2010 maybe), I wondered why I never went to a pain specialist before. The specialist was also very compassionate and committed to try to help. She suggested I try valium suppositories. This was the only medication that ever provided some relief for me and in retrospect now, I understand why (due to relaxing pelvic floor tension). It obviously had some undesirable side-effects that I didn't like including drowsiness/difficulty focusing. This was problematic working in a mid-level position at a healthcare tech company and having hobbies like racing cars. She also tried some direct nerve blocks in my lower back that failed and a relatively new procedure of a "lidocaine infusion" that also didn't help. At that point she was out of ideas.

A couple of years passed with using the valium to help manage the pain when I again went online to search for a solution and at that time I found Melissa Hines. Melissa has since opened a private practice: To set the right expectations, she did not "cure' my pelvic pain, but significantly reduced it and helped me understand the causes and how to manage it together.

Her approach includes education on the latest understanding of the pelvic floor and how the mind deals with pain. This is why her treatment includes not only internal/external trigger point release (as described by Dr. Wise in his book called "A Headache in the Pelvis"), but also restorative yoga, mindfulness meditation and stretching. She was cautiously optimistic from the beginning and said it would take months to help address the pelvic floor dysfunction I had developed over the years. With our mutual commitment, I saw slow progress and within a year was significantly better and now meet with her once or twice a month for "maintenance."

I didn't mention this before, but the likely trigger to my pelvic pain was a lower back injury I had from a fall in College (that I didn't connect at the time) and a predisposition to hold my stress/anxiety in my pelvis. What happens is that tension builds in the pelvic floor over time creating "trigger points" (kind of like knots in your neck) where poor blood flow/tension creates an inhospitable place for the surrounding nerves. The nerves send pain signals to your brain and over time creates more pain receptors because your body thinks something may be wrong. This in turn creates more pain and the cycle continues. This is why the mindfulness/yoga is important to help "reset" the brain as the tension and trigger points in the pelvic floor area is addressed.

I'm probably forgetting some details here and there and may not be consistent in answering questions. It took me over a year for me to even come back here to try to share my story.

Good luck to those dealing with this and hope this helps.

ADMIN NOTE: By the rules given me, I can't allow the links put in this article. This is NOT to say that these links were bad, but any time a first time poster comes here and posts the same two link two and three times in the same article, red flags go up. Anyone is free to message you via the PM system here and get that info from you. I have saved those links and will run them by the board to see if I can put them back in place.

To the original poster - I understand the enthusiasm you have here, but the site has some strict rules about what can be 'linked out' that were just further tightened by the Institute of Health. I will send these links to my 'boss' and if they tell me I can allow them, I'll put them back in the article.

Thank you.


Thanks for sharing this, and I hope people take this one seriously as it seems such a common cause for chronic sufferers (more than bacteria, food/diet, or other causes) based on stories I've read on this forum. You succinctly capture what I have learned over the past couple years, and am trying to practice. Was wondering what your symptoms were. Did you, like myself and others on this forum, have a loss of libido? Or was it solely pain? My pain is like 1-2 at its worst, but it seems I have no sexual energy or sensation. I was basically told the same thing as you with stretching/etc, and holding tension/stress in the pelvis, which constricts nerves, and then libido is gone. So I seem to have the same puzzle pieces and solution as you, just curious if the symptoms also match up.

_________________
Symptoms (starting 12/2014): Low libido, poor sensitivity; occasional urinary burning
Past Treatments: 6x Heparin bladder Injection. Elmiron (2x daily), Meriva Curcumin (500mg 2x daily), Physio (good!), Vistaril, Uro Prostate Massage (helpful!), Flower Pollen, Antibiotics (for about a month),


Wed Jun 06, 2018 2:04 am
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Joined: Tue Jun 05, 2018 4:50 pm
Posts: 4
Post Re: Success Stories - Post 'em If You Got 'em!
To the ADMIN - I totally understand the need to be careful with new members posting links and potentially preying on people with this terrible problem. No worries about that.

Anyone can feel free to PM me for info on the licensed PT and myofascial pelvic floor specialist in the Boston area that I used.

In general though, my point is to seek one in your area after you've ruled out any intrinsic condition as cause.

@Fantom451 - My symptoms were primarily pain in the perineum as I noted. If we're defining loss of libido as a lower desire to have sex, then I would say to some degree yes - as ejaculation would cause pain - but no ED problems. Re: sensitivity, all is normal with exception of some loss due to my use of SRRI's for anxiety (also a common co-morbidity to CPPS).

In my experience working with my PT, she has noted that people present with many different symptoms and many can be attributed to some type of pelvic floor dysfunction. It sounds like you're already pursuing treatment here. In my case, I need the regular internal/external trigger point release as I don't think self-stretching would be enough. I do admit that I've failed at continuing the meditation and yoga on my own even though I know it would help me more.


Wed Jun 06, 2018 12:14 pm
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Joined: Fri Jul 06, 2018 3:23 am
Posts: 5
Post Re: Success Stories - Post 'em If You Got 'em!
Administrator wrote:
One of our long time posters approached me about making a 'sticky' post about success stories. I thought it was a good idea that would put these stories where new people can see what has worked for some of you.

Remember, this isn't a sales forum. A week ago we were getting three new (and now gone) posters who were selling all kinds of stuff. We can't do that here. Post what has helped you get back to your old self.
Thank you!

Great thread and I hope I can post a story in this thread very soon.


Mon Jul 09, 2018 3:53 am
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Joined: Thu Aug 16, 2018 7:25 pm
Posts: 1
Post Re: Success Stories - Post 'em If You Got 'em!
Hello Everyone,

I have felt the need to post my success story after battling prostatitis for a year and half. It was the worst time of my life for many reasons.

Diagnosis:

I was initially diagnosed with bacterial prostatitis and quite frankly the first time I believe it was. I was treated with a course of antibiotics (Cipro) for 2 months and it went away. Several months later I experienced the same symptoms. Again, I went on antibiotics (Cipro), this time for almost 3 months and it went away. It then came back about a month later. At this point I went to a specialist because I felt maybe my general practitioner wasn't doing enough. The specialist ran some tests and decidid that it was bacterial and that instead of giving me Cipro he would prescribe Levoquin. It once again cleared up. After a month it came back and it was at that time that my doctor told me I had chronic prostatitis and that it was going to possibly flare up for the rest of my life. At this point he said to go off the antibiotics and take pain relievers and Flomax. I refused to believe that this what it was going to be for the rest of my life. I was a physically fit 44 year old that had never had any health issues before this.

What I did notice is that my pain WAS different than when I was first diagnosed with bacterial prostatitis so I do think that the first time or possibly second time that I did in fact have a bacterial infection but something kept causing it to come back and as it kept coming back it was very painful but was different than how it felt when I had a full blown infection.

One thing to note was that one time while on the antibiotics the pain started to go away and then one day I woke up with it flaring up. At that point is when I realized that in fact I did probably have some type of chronic inflammation because it wasn't reacting to the antibiotics.

Symptoms I had:

1. Pain, and lots of it.
2. sometimes I would have bouts of where I couldn't pee and bouts of needing to go to the bathroom all the time This would come and go.

WHAT I DID TO GET RID OF PROSTATITIS;

I started reading everything I could on how I could overcome chronic prostatitis and here is what ultimately got me completely free and clear of this terrible nightmare.

1. I started taking some herbs that are supposedly supposed to help. I cannot say if they did or not but all I know is they were part of my regime.
A. Stinging Nettle Tea - I would have this at night before bed. It will make you pee so continue to drink lots of water
B. Green Tea - I would drink this throughout the day. I gave up caffeinated coffee completely so I replaced coffee with green tea
C. I took a Saw Palmetto supplement (I bought one from GNC)

FOODS:
1. I started eating pumpkin seeds every single day. Along with trying to eat high zinc foods regularly.
2. I drank 8 oz. of tart cherry juice every single day.
3. I drank 8 oz. of cranberry juice every single day.
4. I would try to eat as much pinnapple and watermelon as I could each week. at least one portion of each.
5. I gave up coffee completely. I started drinking green tea or decaffeinated.
6. I basically gave up alcohol too. Only on various occasions would I have a couple drinks.

I was eating and drinking these foods and herbs for a while and then came across the primal diet from Mark Sisson and decided to basically give up carbs and sugar. I did not follow this diet to a T because i still ate fruits but I did give up all carbs and sugar and I do believe it had a huge impact on my prostatitis. It's one of the things I think had the biggest impact.

The other thing I did that I feel had a huge impact is that I had to reset my body and in order to do that I went on a 3 day water fast. All I drank or ate for 3 full days was water. Let me explain the reasons that I did this. When you completely remove any type of sugar or carb or food source from your body, your body will start to break down whatever it can to create energy. I firmly believe that if there are any bacteria, or any type of inflammation in the body, that being without any food substance in the body allows the body to heal while also using up anything it can find and burn to create energy. I even noticed a small flare up in day 2 of my fast but I think this was my body reacting positively to this.

Workouts:

I was always working out some, but it was mostly running. I was about 10 lbs. over weight but I wasn't heavy. I was a built 188 lb. 44 year old. When I went on the primal diet and did the fast I lost about 10 lbs. So I started weighing a healthy 179 lbs. I felt much better and I looked a lot better. I also think I felt better from not ingesting all those carbs and sugar. Eventually you can add some of these foods you love back into your diet as I have now but you have to get yourself over the hump and get rid of the inflammation in the prostate.

Instead of just running I started lifting weights again and here is where I also believe helped me. Lifting heavy weight helps to produce testosterone and I do believe that it helped eliminate my prostatitis. Men need testosterone and I don't think I was producing enough from just a couple of jogs per week. You need to lift heavy weight and/or run sprints. This is explained all over different health journals.

Tomorrow I will be completely pain free for 3 months. My sexual function is now back to 100%. Even though you become pain free it takes some time to get back to full sexual function.

Regarding masterbation. You always hear two different sides. It helps, it doesn't help. What I found is that when I listened to my body that is when I felt it helped. Don't force it but if your body is telling you and you have the urge then do it. The times that I forced it because I thought it would help just caused a flare up. When my body told me it was time that is when it seemed like it felt good and helped.

That's my story and I hope it helps someone. I've been wanting to write this for some time because I know what its like to go through this. It was terrible. I didn't think it was ever going to go away and I thought I was going to have to live with this for the rest of my life. You can get rid of this but I do think you have to get serious and strict about all the changes that I had to do above.

One thing I will add is while you are doing all these things above you do have pain every day. My aggravation and pain never went away. I continued to have it day in and day out. I day after my water fast is when it just disappeared and then it never came back and I have continued to do all the above to this day. I never want this to come back. Now that it's been 3 months I've added a little bit here and there but I still maintain my diet, workouts, etc. that got me to where I am today.


Thu Aug 16, 2018 8:12 pm
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