Visit Prostatitis.org    
View unanswered posts | View active topics It is currently Sun Sep 24, 2017 11:34 pm



Reply to topic  [ 118 posts ]  Go to page Previous  1, 2, 3, 4, 5
 battling this stupid condition!! (new member) 
Author Message

Joined: Thu Nov 17, 2016 3:20 pm
Posts: 188
Post Re: battling this stupid condition!! (new member)
Most of my test results are in. Urine and semen cultures all negative. Thats the 5th urine test or culture and always neg. First semen culture i have done and everything was negative. On the uranalysis i did come up with trace amounts of leukocyctes...basically white blood cells in urine. That is considered abnormal...sign of some infection. But all tests negative so far. Last test im waiting for is dna semen and urine tests...also going for prostate ultrasound next week.
Will update when i do....tough to choose treatment when there isnt a know cause.
Urethritis persists.
So no yeast found in semen...can i rule out candida?


Sun Jun 11, 2017 2:44 pm
Profile

Joined: Sun May 01, 2016 9:48 am
Posts: 522
Post Re: battling this stupid condition!! (new member)
About the only thing left to try is a post-massage urine or semen test. If that also comes back negative then I'd assume your CP is not the bacterial type. If you're taken fluconazole and no improvement in symptoms then that's a pretty sure bet that candida is not the source of your CP either.


Sun Jun 11, 2017 3:44 pm
Profile

Joined: Sun Nov 06, 2016 12:59 am
Posts: 252
Post Re: battling this stupid condition!! (new member)
I don't trust the regular lab tests for urine and semen especially after a long course of abx. Wait for the dna test result so you can see if you have get rid of the pathogens and TRUS to determine if there's still an inflammation or calcification in your prostate. I remember you were tested positive for Candida at one point. I was never tested positive for it but I responded well to a very strict Candida diet as well as to anti candida supplement with various visible die off symptoms. That's when I decided to go with the anti-fungal drug and it gave me a remarkable progress. Your dna test result will help you determine if you still have an infection or just a remaining inflammation. Inflammation can stay for a long period of time sometimes even years after the infection that's why a potent anti inflammatory supplement is necessary. I am experimenting with some herbal treatments right now and will message you soon.


Sun Jun 11, 2017 4:41 pm
Profile

Joined: Thu Nov 17, 2016 3:20 pm
Posts: 188
Post Re: battling this stupid condition!! (new member)
Prostate454...the urine test with white blood cells was taken post prostate massage at the dr office. He sent me again following week and no WBC in urine. So post massage did show sign that didnt show otherwise.
Yea Yak, i did test positive.for candida last dna test that didnt show up on culture...will get those results soon.
The last uro i saw did give me celebrex for inflammation, it did nothing. He also mentioned maybe trying a steroid to help. Im thinking a topical cream or something.


Sun Jun 11, 2017 9:43 pm
Profile

Joined: Thu Nov 17, 2016 3:20 pm
Posts: 188
Post Re: battling this stupid condition!! (new member)
So, just back from doctor. Dna semen and urine were negative for mycoplasma and candida. Ultrasound for prostate was normal and no calcification. All urine and semen cultures were negative...although ilya has no faith in cultures for prostatitis. He does believe in the dna testing and i am now negative for everything. Still white blood cells in prostate fluid so he feels low level infection.
So, he rx me 30 days of doxy with a daily low dose of cialis. The cialis is suppose to open up the blood flow in the area.
I did do 10 days of doxy in the begining before the urethritis when my only symptom was heavyness in testicles.
Thats where i am at....


Tue Jun 20, 2017 10:31 pm
Profile

Joined: Thu Nov 05, 2015 5:48 pm
Posts: 411
Post Re: battling this stupid condition!! (new member)
i'd ditch Ilia after this round if I were you. WBC = inflammation, not always infection.

Let us know how the Cialis works.


Wed Jun 21, 2017 11:51 am
Profile

Joined: Sun Nov 06, 2016 12:59 am
Posts: 252
Post Re: battling this stupid condition!! (new member)
freakinfrustrated wrote:
So, just back from doctor. Dna semen and urine were negative for mycoplasma and candida. Ultrasound for prostate was normal and no calcification. All urine and semen cultures were negative...although ilya has no faith in cultures for prostatitis. He does believe in the dna testing and i am now negative for everything. Still white blood cells in prostate fluid so he feels low level infection.
So, he rx me 30 days of doxy with a daily low dose of cialis. The cialis is suppose to open up the blood flow in the area.
I did do 10 days of doxy in the begining before the urethritis when my only symptom was heavyness in testicles.
Thats where i am at....



I'm glad that all your tests are now negative. I agree with the low level infection. Presence of WBC in the prostate fluid less than 10 per power field may suggests inflammation but anything more than 10 or clumps of WBC per power field may suggests a low level or dormant infection. This was my case back in July last year when I decided to stop seeing Ilya. Three months later I had a full blown relapse and had to start my treatment again from square one. If I were you I would continue my doxy and Cialis. After that you need a strong immune booster and supplement that are prostate specific. I'm experimenting right now on how to boost my immune system with different anti oxidants. My next appointment is July 8. As of now I continue to enjoy a 95% - 98% symptom free life. On my next appointment if my prostate fluid continue to be clean then I can say that my experimentation is a success. I'll share it to you.


Wed Jun 21, 2017 3:33 pm
Profile

Joined: Thu Nov 05, 2015 5:48 pm
Posts: 411
Post Re: battling this stupid condition!! (new member)
"Presence of WBC in the prostate fluid less than 10 per power field may suggests inflammation but anything more than 10 or clumps of WBC per power field may suggests a low level or dormant infection" - where did you get this info

Are you still taking ABX Yakuh? What are you doing with Ilya at this point?

Glad to hear you are still feeling good.


Wed Jun 21, 2017 4:32 pm
Profile

Joined: Sun Nov 06, 2016 12:59 am
Posts: 252
Post Re: battling this stupid condition!! (new member)
WS1234 wrote:
"Presence of WBC in the prostate fluid less than 10 per power field may suggests inflammation but anything more than 10 or clumps of WBC per power field may suggests a low level or dormant infection" - where did you get this info

Are you still taking ABX Yakuh? What are you doing with Ilya at this point?

Glad to hear you are still feeling good.



Hi WS, I learned the phenomenon of Leukocytes agglutination or clumping of WBC in Med School and also as explained by different Urologists. Clumping is a way of WBC to fight infection.

I'm not taking abx anymore. I'm just taking prostate specific supplements. I am also doing the broccoli treatment and I'm following a strict diet of low carb, no sugar, gluten, hydrogenated fats, caffeine, acidic foods, spicy foods and dairy. I'm eating more vegetables and quality protein.

I still see Ilya once in every 2 months so I can monitor the condition of my prostate and my prostatic fluid. After my next appointment I might just see him once in every 3 months.

How are you feeling these days?


Thu Jun 22, 2017 1:31 am
Profile

Joined: Thu Nov 05, 2015 5:48 pm
Posts: 411
Post Re: battling this stupid condition!! (new member)
slowly improving. I have improved my diet and added yoga and exercise to the mix and have noticed a big improvement.

You seem to be very disciplined when it comes to your lifestyle and I have a strong feeling that is why you have seen the improvements that you have.


Thu Jun 22, 2017 9:59 am
Profile

Joined: Fri May 08, 2015 2:59 pm
Posts: 525
Post Re: battling this stupid condition!! (new member)
The holistic approach is the way forward.


Thu Jun 22, 2017 3:13 pm
Profile

Joined: Thu Nov 17, 2016 3:20 pm
Posts: 188
Post Re: battling this stupid condition!! (new member)
Thanks for the replies. I will keep you updated on cialis..im on low dose..5 mg a day. Its not coveres by my drug plan and isnt cheap..but worth a shot.
So i also saw dr jarvi the day after ilya. Told him all of my results and he said that it could be a nerve issue. I told him ilyas suggestion and he agreed it was a good option and also recomended it. So im doing the doxy cialis for at least one month. Also prostafil which i have to find still.
Dr jarvi also booked me for a procedure where he looks up urethritis with cam. Not all the way to the bladder..just a few inches into urethra. Not sure what its called...anyways, thats not till september. He also referred me to an infectious desease doctor. Doesnt really think he will find anything but worth a shot.


Fri Jun 23, 2017 12:34 am
Profile

Joined: Thu Nov 17, 2016 3:20 pm
Posts: 188
Post Re: battling this stupid condition!! (new member)
Ilya actually also said that some people who test negative for candida still respond well to candida meds and diet. Said that there are many types of candida but they only test for the most common one. Made me think of Yak as i know he has responded well to it.
Dr jarvi also mentioned drug for nerve issue in area but i think thats farther down the line. Will keep you posted if cialis doxy works...stay strong!


Fri Jun 23, 2017 1:23 am
Profile

Joined: Sun Nov 06, 2016 12:59 am
Posts: 252
Post Re: battling this stupid condition!! (new member)
freakinfrustrated wrote:
Thanks for the replies. I will keep you updated on cialis..im on low dose..5 mg a day. Its not coveres by my drug plan and isnt cheap..but worth a shot.
So i also saw dr jarvi the day after ilya. Told him all of my results and he said that it could be a nerve issue. I told him ilyas suggestion and he agreed it was a good option and also recomended it. So im doing the doxy cialis for at least one month. Also prostafil which i have to find still.
Dr jarvi also booked me for a procedure where he looks up urethritis with cam. Not all the way to the bladder..just a few inches into urethra. Not sure what its called...anyways, thats not till september. He also referred me to an infectious desease doctor. Doesnt really think he will find anything but worth a shot.



You can order Prostaphil from Amazon. I've been taking it since January. It's a prostate supplement to fight infection and supposed to help with non bacterial prostatitis. The procedure that you're gonna be having if not cystoscopy is probably ureteroscopy. This is to check your ureter for any stricture, blockage, abnormal tissues, polyps etc. I was once referred to an infectious decease doctor who did nothing but to wait for Ilya's test result of my urine and semen culture and later said there's nothing much he can do LOL. Doxy was the last abx I took last Feb. This is what Ilya usually give his patients when he suspects low grade infection.


Fri Jun 23, 2017 4:16 am
Profile

Joined: Thu Nov 17, 2016 3:20 pm
Posts: 188
Post Re: battling this stupid condition!! (new member)
I did order the prostaphil from amazon..thx yak.
1 week in and no change...other than incresed number of erections..lol.
The low dose cialis is giving me a few extra erections a day i seems. Nothing too crazy but definately noticed it. The doxy on the other hand....nothing.
Bought some probiotic today and the woman at store recomended waiting till after anti biotics to take it. Says antibiotics kills most of it anyways.....
3 more weeks of doxy tho....find it constipates me.


Tue Jun 27, 2017 11:38 pm
Profile

Joined: Thu Nov 17, 2016 3:20 pm
Posts: 188
Post Re: battling this stupid condition!! (new member)
So, about two weeks into doxy and cialis i thought i was getting better, but another flare up of urethritis post ejaculation. Dont see much improvement after 3 weeks. Only symptoms are urethritis and red penis head. Slight dribbling after urination.
All testicle and low abdomen pain has stayed away since the flagyl. looks worse than it feels,,..actually i feel normal. Just cant ejaculate every day....once every 3 days to keep irritation down.
Man, i miss my normal penis.


Tue Jul 18, 2017 9:57 pm
Profile

Joined: Thu Nov 17, 2016 3:20 pm
Posts: 188
Post Re: battling this stupid condition!! (new member)
6 weeks of doxy and cialis done...was feeling great but red urethra still there. Three weeks later and as bad as ever....testicle discomfort, red penis head, bladder pressure. Starting cardura on monday...urethrascope in a month....infectious disease dr in 2 weeks.


Sun Aug 20, 2017 12:52 am
Profile

Joined: Thu Nov 17, 2016 3:20 pm
Posts: 188
Post Re: battling this stupid condition!! (new member)
I have not noticed much change with cardura...didnt take it yesterday and dont think I will continue with it. No testicle pain at moment..last few days have been ok.the penis head is red or almost bluish around head...red urethra persists.
Just went thru this entire post as it is kind of my journal of what i have taken and my results.
Going to wait 1 more week and see i.d doctor and see what he says. Wondering if he will run more tests? Been off doxy for a month now...
Still feel its bacterial, but if I.d dr says it isnt then i guess i will have to believe it.
Starting yoga next week to go along with my workouts...
Ilya didnt want to try fosfo as he says its a stronger abx....i dont mind letting my body heal up for a few months ....
Feeling lost


Mon Aug 28, 2017 12:05 am
Profile
Display posts from previous:  Sort by  
Reply to topic   [ 118 posts ]  Go to page Previous  1, 2, 3, 4, 5

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  
Powered by phpBB © 2000, 2002, 2005, 2007 phpBB Group.
Designed by STSoftware for PTF.