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 CPPS - Inflammation killing libido 
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Joined: Thu Sep 04, 2014 11:39 am
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Post Re: CPPS - Inflammation killing libido
How long have you used the turmeric? I had hopes it could work.


Wed Mar 02, 2016 12:25 pm
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Joined: Mon Jan 05, 2015 11:57 pm
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Post Re: CPPS - Inflammation killing libido
Been taking Tumeric (Meriva version of it. It's actually curcumin from tumeric with added stuff to help it absorb well) for 6 weeks now. I read somewhere that it can take 8 weeks so I'm going to give it a few more weeks to see...


Wed Mar 02, 2016 10:21 pm
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Joined: Thu Sep 04, 2014 11:39 am
Posts: 609
Post Re: CPPS - Inflammation killing libido
Fantom451 wrote:
Been taking Tumeric (Meriva version of it. It's actually curcumin from tumeric with added stuff to help it absorb well) for 6 weeks now. I read somewhere that it can take 8 weeks so I'm going to give it a few more weeks to see...


Thanks for the information. Knowing what works and doesn't work for others is very helpful.


Thu Mar 03, 2016 11:37 am
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Joined: Thu Dec 31, 2015 4:11 pm
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Post Re: CPPS - Inflammation killing libido
How are you doing Fantom451? Have you got better?


Sun Apr 24, 2016 10:13 am
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Joined: Mon Jan 05, 2015 11:57 pm
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Post Re: CPPS - Inflammation killing libido
Hi Chavalote. No, I would not say I am "better". I may be slightly improved in the past couple weeks. My last Heparin injection made things a lot worse. I think the catheter irritated my urethra or something, and for 5-6 weeks things were pretty painful/sore, and I felt depressed that things were permanently worse. However, that has gone away, and I have stopped the Elmiron, and also my Prilosec. in the past 2 weeks, I have had a little less pain when pressing around my bladder area (about a 20% reduction, but still sometimes very sharp pain when I press there). It generally takes a little bit harder pressing to experience pain, now. At one point, just a slight touch above the pubic-bone caused a sensation.

Libido changes have occurred, also. I feel a little more that the psychological sex-drive has improved from about 60% up to about 70%. As far as erections, penile sensitivity, and errogenous sensations, those have only improved about 5%. However, I do seem to have morning erections more frequently. Also, post-orgasm pain has nearly gone away completely, but the intensity of the orgasms is very low (maybe like 5%-10% mostly or sometimes a 50% if I'm lucky).

The reason I haven't replied in a while is that I just moved across the country and have been busy with that. Also, it seemed that my thread has generated very little responses and suggestions, so I haven't been very motivated to revisit often. I have replied to some other threads to try to help others as well. I guess this is a good time for an update as I do feel somewhat of an improvement (although, I think it's because I stopped taking prescription medications).

Have you seen any improvement??

_________________
Symptoms (starting 12/2014): Low libido, poor sensitivity; occasional urinary burning
Past Treatments: 6x Heparin bladder Injection. Elmiron (2x daily), Meriva Curcumin (500mg 2x daily), Physio (good!), Vistaril, Uro Prostate Massage (helpful!), Flower Pollen, Antibiotics (for about a month),


Sun May 22, 2016 1:30 am
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Joined: Sat Jun 25, 2016 1:51 am
Posts: 100
Post Re: CPPS - Inflammation killing libido
Fantom, I'm having sexual function issues somewhat like you, more sexual than outright direct prostate pain like you say. I have that fullness and almost distant feeling in my penis. For me I actually lose my erection very easily and it also takes a while to get it up. Do you have any trouble actually keeping the erection up or does it stay once you start? Also some days I haven't been able to ejaculate because it feels like I'm just rubbing a nonsensual part of my body. I had a short prostate massage today to get a sample and I actually had one of my better quality erections and sensuality came back quite a bit although I did lose it a few times as I get close to orgasm and the muscles tighten.

I wouldn't say my libido is gone, though, I'm still horny as ever. It seems like you may be using the word libido to describe sensation rather than sexual drive which I think is the proper usage and more of a psychological thing. I have a high sex drive and it's really frustrating to not be able to get any release with the ED even with porn on some days.

A big difference for me, though, is my erections and sensations came back to 90% anytime I've been on an antibiotic. I just finished a long course and it's gone back down. My penis also seems a little spongier than normal. I'm closely monitoring to see if it goes away completely again and the pressure/fullness symptoms get worse or if I can find some non antibiotic way to get back that function like with PT/massage.

I'd be curious to know if you are able to maintain your erection even though sensation is low.


Mon Jun 27, 2016 10:13 pm
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Joined: Mon Jan 05, 2015 11:57 pm
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Post Re: CPPS - Inflammation killing libido
dihard wrote:
Fantom, I'm having sexual function issues somewhat like you, more sexual than outright direct prostate pain like you say. I have that fullness and almost distant feeling in my penis. For me I actually lose my erection very easily and it also takes a while to get it up. Do you have any trouble actually keeping the erection up or does it stay once you start? Also some days I haven't been able to ejaculate because it feels like I'm just rubbing a nonsensual part of my body. I had a short prostate massage today to get a sample and I actually had one of my better quality erections and sensuality came back quite a bit although I did lose it a few times as I get close to orgasm and the muscles tighten.

Yeah, it's sometimes difficult to maintain an erection if I don't keep continuously stimulated, I can lose it in like 1-2 minutes. But I'm not with a partner, so porn has always had that effect on me to some degree. The notable difference with my erections is I don't get "random" erections during the day, anymore. I have recently started getting "morning wood" again on some days.
My prostate pain has changed a lot over the past year. Now I only feel a faint burning deep inside my pelvis (prostate or bladder) sometimes when urinating, ejaculating, or even changing positions/posture. Sometimes (varies by day or time-of-day or how full my bladder is), I can press right above my pubic bone and feel sharp pain inside there.

dihard wrote:
I wouldn't say my libido is gone, though, I'm still horny as ever. It seems like you may be using the word libido to describe sensation rather than sexual drive which I think is the proper usage and more of a psychological thing. I have a high sex drive and it's really frustrating to not be able to get any release with the ED even with porn on some days.

I agree that the term libido is used inconsistently among myself, and doctors and CPPS sufferers. In my head, I have sexual desire. My body no longer reacts to that desire the same as it did before my big flare up that knocked things out. I have to really concentrate to get an erection, and my penis/body used to be very sensitive and reactive to sexual stimulation. Not so much, now. I used to get an instant, rock-hard erection with very subtle arousal. Now I have to think about it a bit. Orgasm isn't quite back to normal, either. I totally resonate with the "rubbing a nonsensual part of my body", but I do end up with a mediocre orgasm now (took about a year for that to stop hurting significantly).

dihard wrote:
A big difference for me, though, is my erections and sensations came back to 90% anytime I've been on an antibiotic.

That's great. And it's probably a sign that things will clear up for you with continued treatment. Most of us have much more complicated issues going on that don't tend to react so well to any one particular treatment. BTW, I skimmed a few of your posts and saw that you've been suffering 3 months (how old are you by the way? I'm 30). That's not really a long time since many of us are on 2+ years. Keep up your therapy, relax (don't stress out over it), and I think you'll get back to normal. Hopefully, we all will, but some of us will take longer than others if not just for having to figure out what therapy we need.

_________________
Symptoms (starting 12/2014): Low libido, poor sensitivity; occasional urinary burning
Past Treatments: 6x Heparin bladder Injection. Elmiron (2x daily), Meriva Curcumin (500mg 2x daily), Physio (good!), Vistaril, Uro Prostate Massage (helpful!), Flower Pollen, Antibiotics (for about a month),


Tue Jun 28, 2016 4:41 pm
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Joined: Mon Jan 05, 2015 11:57 pm
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Post Re: CPPS - Inflammation killing libido
Just an update. Symptoms still the same. I still have light burning sensations on my front side above the pubic bone (bladder area), and libido is still significantly affected.

I saw a new doc who is supposed to be very focused on this condition. However, he is extraordinary arrogant (loves giving lectures and telling you how his field is better than your field of study), terrible bedside manner, and didn't explain a urethra swab to me before doing it. Doesn't seem to be willing to do radiology I've seen others mention on this board (see example below). Also, he didn't give me much info to use as he is just planning to run me through 3 appointments of tests for diagnosis. Next month is my second appointment where I'll have my first 3-glass test (urination and then extracting seminal fluid by prostate massage to be checked for bacteria). I've only had light prostate massages; not one to force out fluid. Kind of concerned if that might aggravate/worsen my symptoms by having something forceful done to it.

Example of what an "expert" in CPPS looks like:

I just got this email back from my doc's nurse when I inquired about MRI and other imaging: "[he] doesn't order MRI's for symptoms of prostatitis/chronic pelvic pain because MRI's have never shown to be helpful in determining the cause of these symptoms. Many men who are referred to us have had them done by their referring doctors and they are always normal."

I don't understand what the harm is in just looking. In my opinion, a clear MRI is still valuable information, but who am I to say as I'm not a doctor, right? Anyway, I have a strong urge to never see this doctor again, but at the same time, no one else has offered to do a 3-glass test, and if he studies it fairly intensely, maybe he's worth pursuing. Just hoping he doesn't do damage somehow (he even made a simple prostate examination hurt for a week; no idea how that happened). Third appointment will be a urine-flow measuring test which I have also never had done (but not really concerned about it.... it's not great flow but so what? It's not terrible, either. I'd expect it to not be normal since I have pain in that whole area)

I just wish I could find a doctor who isn't so obsessed with studies and would just *think* for once. We aren't all going to fit the stereotypical patient in a study of like 50 people or whatever.

_________________
Symptoms (starting 12/2014): Low libido, poor sensitivity; occasional urinary burning
Past Treatments: 6x Heparin bladder Injection. Elmiron (2x daily), Meriva Curcumin (500mg 2x daily), Physio (good!), Vistaril, Uro Prostate Massage (helpful!), Flower Pollen, Antibiotics (for about a month),


Thu Aug 25, 2016 2:14 pm
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