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 My story, chronic prostatitis associated with weak orgasms 
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Joined: Thu Dec 31, 2015 4:11 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I'm now taking zinc and magnesium. It's the latter which I read it helps to eliminate the infections. Read the link I posted in my first comment in this thread, it says that a lack of magnesium was detected in men with chronic prostatitis. Anyway, I'm taking both. Magnesium at 53 mg per pill, 3 or 4 in a day (like 150 or 200 mgs), and zinc one pill (sometimes I tried two but it is written do not pass the dosage so I'm taking only one these days), the pills have 16 mgs. I read a guy who took high dosage of magnesium and zinc and got too horny, that if he didn't masturbate that night he had wet dreams. I don't know what dosage he took, but I'm ok with this and not having that symptoms (I wish I had, lol).

I don't trust at all if abstinence is the solution because I have tried before a few days and sometimes I feel some improvement, just a few (sometimes not) but when I ejaculate 2 o 3 times again I go back to the previous state. I don't now if more days will make it heal totally.

I also thought about that theory, that maybe I need to listen to my body, that it's saying to me "I need nutrients and time to heal the prostate so don't waste them ejaculating, I need that zinc and that magnesium to make it recover". But who knows. I wish that were correct and as simple as that. The urologist talked about months, I don't know if I can be 2 or 3 months without masturbating and without the certainty that will heal this forever. If I had I'll do even if it's hard.

I also think sometimes that maybe I can't have erections without touching also because my body is telling me "I'm not ready".

Can you tell us your experience with that? Lenivy. How many days you did? Did you improved?


Thu Jan 21, 2016 5:53 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
First time I tried abstinence was for around 3 weeks, had the greatest relief of my prostatitis journey this time and since then my symptoms are less intense than they used to be. Thought I was now cured and decided to go wild and masturbated 3/4 times in a row and after that I've started to feel some discomfort in the perineum and pain/urinary probs came back (less intense).

Before abstinence every ejaculation was followed by a flare up, that's what killed my libido everytime I had sex/masturbation I was 100% focused on my symtomps and how I will feel after that.

I couldn't sleep 1 night straight before my abstinence always had to wake up every 2 hours to urinate a few drops.

And now guess what since 4th janv I'm masturbating everyday along with some aneros massage and never had a flare up, this is a big victory against prostatitis.
Now I generally feel better, but still annoyed by some discomfort.

Every theory (like mine) you'll read are mostly random things, but I've decided to give it a try since it will not hurt me like thoses antibiotics did to me!
I remember when I was reading about abstinence & prostate massage I wasn't trusting theses, until I've tried them, if that work NO ONE will be ablde to explain why it worked but who cares? We are only looking for relief ;)

2/3 months of abstinence if a bit too long it may give you a flare btw.
http://prostatitis.org/redirect.php?lin ... 007559/pdf

Success story involving abstinence: viewtopic.php?f=2&t=38


Fri Jan 22, 2016 7:39 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Zinc competes with copper. This may have implications when supplements are used. One has to be careful.


Fri Jan 22, 2016 9:12 am
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Post Re: My story, chronic prostatitis associated with weak orgas
True, that's why I only limit my supplement intake to a month


Fri Jan 22, 2016 12:19 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Jaumeb,

When I pass the dosage (just to test) I usually take 2 pills instead 1, that's 32 mgs. I guess that is not dangerous but I'll keep on one pill daily because nothing special happened with two.

Lenivy9,

It's not clear if in that case was the abstinence what cured it. By the way, I felt identified totally with this post:

Quote:
Quote:
My sex drive has never came back after suffering with this for 18 months which is extremley depressing! I am 26 and should be enjoying life having relationships but this is totally wrecking any chance of that. Before this I had a very high sex drive.

Quote:
He suggests the erection problems are in my mind, but this is utter nonsense. I am 26 and have no other stresses or issues other than this, plus it came on over night.



The same goes for me too, Edward. Do not allow yourself to be convinced that it's 'all in the mind' because they will try and fob you off with this explanation if you're not careful, if only to discharge you and close the file. When urologists have a difficult case, they tend shift it into another field of expertise and it's never long until the psychologists are brought into play!

In my case, I wasted almost 2 years in the company of these people - sexual counsellors I think they were called. The first one (a female) waffled on endlessly about my 'attitude towards women', having decided it was a sexist issue before we'd even got started! Then the second one (a male) had this theory about latent homosexuality that he would not let go of, regardless of what I told him. They were both worse than useless!

The stress/depression issue is also one that they will highlight in order to explain your lack of sex drive; completely reversing the cause and effect. I know, I've been there! I was 32 when my sex drive disappeared overnight (literally!) and who would not be freaked out by the disappearance of all sexual activity at that age? Also, like yourself, my drive was very high up until that point which tended to make the loss even worse. Today (22 years later) I seem to have cured most of my prostate symptoms - at least the ones that had the most impact on my everyday life - but the libido issue is the last hurdle to overcome because it has never returned.

The docs are still at a loss to explain this but to be honest I don't bother with them any more. I did go to one a few years back in my late 40's but (as expected) the first thing he mentioned was my age. Even when I was 32, they told me I was not in the first flush of youth any more and saying that testosterone levels decline after the age of 30 blah blah blah ... yes, but not from one day to the next!!!! They just don't listen, but there are innumerable cases of prostatitis destroying men's sex drives and this is something they should at least acknowledge before waffling on about 'stress', 'age' and so on ...

For the record, I'm in excellent physical shape (touch wood!) and there is absolutely nothing they can pinpoint in my lifestyle as a cause for my impotence. Even my testosterone levels came back as well above average but there's definitely something in the mechanics of the prostate that is causing this. I don't have any specialist knowledge but my instincts tell me that if my prostate started working like a little pump again I would regain my virility. It feels like the tone has gone and, instead of being able to pump out urine/semen in squirts, the stream of both is somewhat reduced. I'm sure there's a link here between the flow of these fluids and my libido because both were lost at precisely the same time.

It's interesting what you say about your penis suddenly feeling all 'shrivelled-up' when you first experienced symptoms. The exact opposite happened to me with my penis just going lifeless and I could never regain that 'shrivelled-up' state because it just dangled limply for the next few years with very little sensation. The feeling is still not right to this day, although I have since been circumcised as a result of complications to do with all of this, which doesn't exactly help! That said, none of this should affect the libido, which is a different matter altogether, and surely it's the blood circulation that determines erections?

I'm afraid this is too complicated for me to figure out, but interesting all the same to read that others are in a similar plight. I only wish I could offer some practical help here rather than just inform you that you are not alone and I do hope my story of 22 years without a sex drive has not made you think that this is the future for you too. After all, no two prostate-related cases are ever exactly the same but I am convinced that loss of libido is a common symptom amongst sufferers.

I have the same theory as him. When I didn't know and even didn't suspect that I had a prostatitis I was going to visit doctors just because I had weak orgasms and low libido, and they also said it was in my head. Then I knew about my prostatitis and I think it makes sense to think that prostate problems and libido are related, because prostate gland is involved in erection and ejaculation, and maybe it has another functions we don't know. Now, I'm aware of that zone (the zone where prostate is, the perineum) and can notice clearly that my lack of libido comes from there, because when I think about erotic things I feel a subtle burning feeling there that "stops" all, arousal, erection, and also pleasure if I touch my penis. I think that that zone is like the penis foundations, if it fails, the entire "building" does. Just think where the orgasm begins.

I think that western modern science is totally ignorant about libido and sexual functions, all what they say are just superstitions (age, depression, wrong sexual attitudes, or directly psychoanalysis bullsh*t). I feel a lot of anxiety about this. I don't know from which source I can learn about sexual health, because almost all you can read about that in the western literature is a bunch of prejudices, specially when it comes to men's. Once, I read an article about erectile dysfunction (what is not exactly my problem but I was reading stuff about sexual health) that made me angry. The guy who wrote it, maybe brainwashed by feminism, talked about the penis as a domination tool, or worse, as a weapon. He said that when a man loses his control about his penis, which he is arrogant about (?), he understands that he can't control all things... bla, bla... (maybe he would say the same thing to a person affected by a neurological disease who can't control his body?) I personally don't feel identified with that kind of man and I felt insulted. I know my penis is not an sword for domination and I have libido problems. The thing that most irritates me from that kind of articles is that if they were written about women a lot of people will complaint and say that it's sexist, but about men it's "ok".

For some reason, a lot of men in this culture are losing their libido and having problems with their sexual health and all you can hear or read is sexism, all you can get is getting blamed. Do you have libido problems? It's because you want to dominate women, or maybe because you are paranoid and it's all in your head, or maybe because you are too old (no matter if you are in your 20s or 30s). Are your spermatozoids in a bad shape? Their count is low? Don't worry, it's not because chemicals nor because any physical cause, it's all in your head. You're killing them with your thoughts because you hate women, you think about spermatozoids as an occupation army and that's why they rise up against you. Obviously, this is an extreme example but that is basically the way their "science" works when it comes to sexual health. It's the same as cult religions that blame the victim and protect the abuser.

If you don't believe me I dare you to find and post here a single article about men sexual health that says something reliable, logical, informative and useful. I would indeed feel thankful, because I haven't found a single one in years of searching.

I don't think all the theories we can think are random. Some are based on logic, something that the specialists often don't use. I have thought about these theories by myself based on observation:

Prostate gland is the foundation of the penis. It's very important for erections, orgasms and libido. When you get aroused the feeling begins there, not in the penis, and then it "travels" to the penis like an energy current and causes an erection. Just push your perineum during an erection and you'll notice the glans gets bigger and tighter. If the prostate is damaged that may involve the erectyle nerves (what are in both sides of the prostate and connected to it). How did I guess this? Because I feel pain in the zone where those nerves are when I have an erection.

The prostate also "decides" the intensity of your orgasm. It's there where the orgasm begins, and then "travels" to the penis. If it's damaged or obstructed that may affect your orgasm intensity. I think all of us have experienced this. Even if you haven't prostate problems you can masturbate a lot of times in a day and notice how the orgasms are less intense every time, you can notice how your prostate gets tired like a muscle after effort.

Because all of the things mentioned above, I also suspect that that also is connected to the mind (that part that ignorant doctors seem to love blaming too much). If you have the problems described above, you lose your mood, your desire. It's easy, imagine a person with gastritis and nausea, obviously he won't have any appetite, but that doesn't mean his mind is the cause. First, he have a health problem, then comes the mind, not the opposite.

Obviously those theories are only that, theories, but I would like that doctors and people with better tools than me to research think in that logical and deductive way and get serious about sexual health. And of course, abandon the prejudices and the sex-phobia (I have talked a lot of times with doctors about my problem and when I say the word "orgasm" they react like I said a swear word or a blasphemy). I'm really tired of this.

I think my case is similar to the post I quoted and I hope I can find and answer soon and not be all the rest of my life feeling like an eunuch. The libido is not a joke, it's a serious thing. A low libido is telling us our body is not healthy, like an stomach ache or head ache does. Why should it mustn't be treated as seriously as it deserves?


Fri Jan 22, 2016 1:52 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Even if it hasn't anything to do with the topic of this thread I would like to make a brief comment about the link of the "study" Lenivy9 posted.

I'm against animal experiments. I think that kind of "studies" are wrong. I couldn't keep reading that cold text that speaks about torturing and killing rats only to make a stupid statistic, what says nothing to me about my prostatitis problem. It's safer and faster just testing how abstinence works in your case, you don't need to torture animals. It's not the rats fault we have prostatitis, they shouldn't pay that with their suffering and death.

Imagine you get closed for weeks in a room with your girlfriend separated by a glass because some psychopathic doctor want to test how that affects to your prostate gland, and then he kills you to analyze it and he write that he "euthanized" you. Why the rats would suffer differently? How can I believe an science that does that kind of things? It's just psychopathic. It's an science for death, not an science for life as it must be. You can't understand how our body works torturing and killing animals. The "knowledge" you can get from that is damned. I guess that's one of the reasons why the sciencists are too lost and ignorant. As I see it, they are doing the research in a wrong way.

One of the reasons why I'm in this forum is to help each other, because I don't believe too much in the "official science" (which, don't forget it, pursues money and not helping us). We need to make our own experiments, our own science. We must test things on ourselves with responsibility and not on animals.

I want people to think about it deeply.


Fri Jan 22, 2016 4:28 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I agree with you on this point chavalotte but unfortunally that's the way how things works in our actual societ, all of the progress we made is achived on the torture/suffering of other humans or animals.
We are all enjoying our brand new Samsung or apple phone but no one care about coltan which is mined by kids in africa who doesn't live long after that.
That's the same with everything , healthcare, clothes, foods etc... our modern days luxury comfort is build on their suffering.


Fri Jan 22, 2016 5:39 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I would like to end this off-topic by encouraging people to read Derrick Jensen's "Endgame". I think he describes very accurately where the problem is. Also, "In the Absence of the Sacred" by Jerry Mander is another reading than can open our eyes a lot too.

I think the things adressed in those books are directly connected with our health problems, indeed.


Fri Jan 22, 2016 6:00 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Chavalote, I have a few comments about your various symptoms.

Losing the outer third of you eyebrows can be caused by hypothyroidism - http://prostatitis.org/redirect.php?lin ... f_Hertoghe - and hypothyroidism can be part of hypopituitarism (underactive hypophysis) - http://prostatitis.org/redirect.php?lin ... ary-gland/ and http://www.pituitary.org.uk/information ... /symptoms/

In autoimmune hypophysitis, although some or most pituitary hormone are low, the prolactin levels can be raised (like you've had) - http://prostatitis.org/redirect.php?lin ... mptoms.cfm. There are similar symptoms with some of the hormones, e.g. low libido could be due to low levels of a few of the pituitary hormones, including oxytocin ( http://prostatitis.org/redirect.php?lin ... ec1-6title ).

Some of the symptoms you have could be explained by autoimmune hypophysitis, so it might be worthwhile getting all the pituitary hormones levels checked. I don't think Oxytocin levels can be checked.
Chavalote wrote:
He has talked also briefly about autoinmune or allergic causes. I have allergy to house dust so I have got desperate when I have heared that, because if that is the cause I'm really doomed. But on the other side, when my allergy is better or when I took antihistamines this doesn't get better. So I think that allergy is not the cause, at least, not the main cause, and I hope it isn't.
There is a recently discovered (2003 in Japan) autoimmune or allergic (they're not sure yet how to classify it) condition called IgG4-related disease that can cause inflammation and fibrosis of the prostate (IgG4-related prostatitis), pituitary (IgG4-related hypophysitis), individual nerves, sinuses, seminal vesicles... or virtually anywhere in the body.

In any person with this condition, it won't affect the whole body but might involve a few different parts of the body, not necessarily at the same time. The good thing is that it responds well, often dramatically, to steroids. It is under-recognised, as it is still a new and not well-known condition. Most of the initially diagnosed cases have been in old men with possibly long term disease, but it has since been diagnosed in younger people including children. Many cases have taken years to be diagnosed because symptoms are usually 'considered' to be mild or are thought to be of minor significance, although the condition itself is significant. An up-to-date summary of current knowledge of the condition is at http://prostatitis.org/redirect.php?lin ... ed-disease


Sun Jan 24, 2016 12:43 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Maclondon, thanks for your info and your time reading about my symptoms.

Yes. I already knew the relationship between the hypothyroidism and the outer third of eyebrows hair loss, and I asked the doctors but because my analysis were inside normal levels they didn't take it seriously. I think it's a subclinical unbalance. I've only lost a bit of hair, not all, but enough to me to notice.

I also did a CT scan to check if I have something in the hypophysis but it seems there is nothing. Maybe it's a bit inflamed only, and that can explain those prolactin increasings (sometimes the levels are normal, so it's not something constant).

I have asked doctors a lot of things about those things you mention. I asked about oxytocin because I had read it's relationship to libido and orgasms, but they say "that's only in women" or "it can't be measured", and I remained without knowing how my oxytocin is.

I have read the last link about igG4 related disease but not all of it, because when I read those studies I feel a lot of anxiety. They don't explain well the causes, nor the solutions, they only describe partially the things in a cold language that makes me anxious. Also, I'm writing this anxious because I think if that is the problem that means that I'll depend the rest of my life on a dangerous drug (steroids, corticoids...), and since this way of making medicine doesn't go to the final causes I won't be able to cure this forever. Maybe it's only an allergy after all, but antihistamines don't work, not on my prostatitis and libido, at least.

I thought these things:

- I was living in Japan and maybe there is something in that country environment that makes that disease easier to contract.

- I have usually conjunctivitis, or the lacrimal itchy and a bit inflamed, also there are days I feel like if I had sand in the eyes. I thought that was due to being long time with the computer, but maybe there is some allergy or autoinmune disease beyond it.

- I also have chronic turbinates hypertrophy whose no one doctor knows the cause.

- Maybe the eye-floaters could be related to a chronic mild conjunctivitis?

I have been checking an analysis I made in April because the hematologist wanted to check if I had lupus because my dermatitis (I have been suffering since I was a teenager). All came negative. They checked the C-3, the C-4, antinuclear antibodies, cortisol and some more things, all was normal. I have been also checking all the blood analysis I did these years to see if someone shows my IgG4 levels, but it seems I haven't measured it all this time.

So, I want to talk about these things to my general doctor, the only I know with the mind open to listen. I think I must order another blood analysis but I want to go with specific things. For the moment I only know these two:

- IgG4 levels.

- Hypophysis hormones. But here is a problem, what else are there apart from oxytocin and prolactin? What is the most important that can show clearly an hypophysis inflammation?

Do you know any other things I must tell the doctor to include in my analysis to know if it's a autoinmune disease (what affects thyroid and hypohysis) what is causing this?


Mon Jan 25, 2016 5:32 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I've read more the link (I needed courage because I'm now anxious) and it's not clear. Some things match but some others don't. I also feel that they are talking about something they don't understand well, maybe it's not a disease what they're talking about, but a lot of different unbalances that lead to that symptoms. Maybe mine is only an allergy after all. I would like to test glucocorticoids because it seems the fastest way to check it the problem goes that way. Maybe a blood analysis is not definitive because not all the cases show high igG4 high levels. And I don't have signs of autoinmune disease in the analysis the hematologist prescribed me, antinuclear antibodies would have appeared high, I guess.

I don't know if it is worth doing a blood test. Maybe I should try if glucocorticoids work, but on the other side, I think about the side effects or if they work, so what? That would mean that I have a problem that is alleviated with that; that means something is making my body inflamed, but I won't know what is the exact cause. Anxiety and more anxiety.

The first time I went to this general doctor he said he had a case of a guy who said he was experiencing weak orgasms and that he got better by using corticoids because it was a muscular problem. He checked my CPK muscle enzyme to know that and he said it's not necessary in my case to take corticoids, because one time it came high, but that was due to a hard exercise I had done the previous days and when we repeated the analysis CPK was ok. So, I dismissed that and I thought about another causes.

I'm hesitating a lot. What can I do next? Maybe I should test glucocorticoids? Are them dangerous? Can I test them a week? I will ask that to the general doctor.


Mon Jan 25, 2016 6:48 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Thanks for replying to my thread and for referring me to your thread. I completely resonate with the symptoms and Pelvic Floor issues that have been noted, above. What I haven't tried yet, and excites me the most, is the acupuncture. I will ask my doctor about that on next visit, or try to find someone on my own if I have to. I find it interesting you mentioned gluten free as I tried it the past 2 weeks. I have also had symptoms of a lot of gas/bloating, as well as urgency to have a bowel movement, only to find that it's a tiny amount of gas. Once I tried gluten free for a week, the next wee I didn't have that problem. Now I am back on a regular diet and going to see if the sensation comes back this week. Maybe there is something about the gut that is keeping the inflammation in the prostate going. It could also be milk as I had to give up cereal as part of the gluten free. Anyway, I'm doing a trial on that right now, myself. However, I have no doubt in my mind that the CAUSE was not related to these things. I just think to break free from the inflammatory cycle, our bodies have to be in some sort of "inflammation fighting mode" to do it. The way to get into that mode probably varies wildly from person to person.

Wanted to address some things you mentioned:

Prostate massage: This was something that improved the state of my prostate inflammation (not the libido issue) but the size DID go down. Get your doctor to do this (ask if he's ever done it before). They will do it weekly (in my case) and it really wasn't bad at all for me. Then again, I don't get a lot of pain in general. Just a dull burning sensation, which I got when he massaged it. Now when he touches it, I feel NOTHING. Sadly, my libido issues still persist (I think the inflammation remains at the TOP of the prostate that he can't reach).

Psychological
- doctors get confused. They tend to take something they learned in med school and blow it way out of proportion. Yes, of course, psychological distress can cause you to not perform sexually. If anything very bad has ever happened to you (a death, a serious accident, someone deeply hurts your feelings, or you're anxious about a presentation at work), during that time of grieving or recovery, your sex drive is gone. People who are depressed often have a poor sex drive. These things are true, but they likely have nothing to do with someone with prostatitis. My doctor told me that the prostate gland being inflamed DEFINITELY effects your libido. I ask him over and over if what he saw today is consistent with my libido complaints and he always says "Absolutely". I think our tiny little prostate gland is responsible for way more than we ever thought.

Doctor choice - when a doctor says you're searching "silly things on the internet," run away. Your doctor should already KNOW most of the possible reasons for this inflammation and should embrace the idea of you doing your own research. Medicine is Science which means you try something, if it doesn't work, you try something else. You don't give up and say "well, it's all in your head." Your health is YOUR responsibility. My doctor has encouraged me to use this forum and several other sites to look for techniques, supplements/vitamins, whatever. I realize I have a good doctor as far as that goes, although he isn't a supreme expert on prostatitis, he has treated several. He's taking things one step at a time (I am afraid there may not be many steps left, in my case), and he was very frank with me: "There is no magic pill for this condition. 1/3 get better in time, 1/3 get worse, and 1/3 stay the same."

Now that all that's out of the way, welcome to the club! I think our best hope is to continue sharing our experiences on this forum. I have experienced a daily depression from this, also. Guys, let's not give up on ourselves.
I shared my story here: viewtopic.php?f=2&t=1323&p=9801#p9801 . I am going to reply on my thread with some comparisons of my symptoms with yours so that my story gets fleshed out on my thread.

By the way, if you get cured, please post here what happened. I have read many posts on this forum that sound like what's going on with me, then 9-12 months later POOF, the person never logs in again. I can only wonder what solved it for them.


Tue Jan 26, 2016 1:01 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Chavalote, conjunctivitis on it's own would not affect your eyesight.

With allergies, some involve histamine and would respond to antihistamines... but others have nothing to do with histamine and therefore these ones would not respond to antihistamines.

Regarding IgG4-related disease, it is certainly not well understood yet as it is a newly discovered condition. Experts can only describe what they have seen or read reports about, and they don't pretend they know more than they currently do. They don't know how common it is as yet either. Cases diagnosed so far might be the tip of an iceberg.

It is not like lupus though and I don't think IgG4-related disease is something to get too anxious about.

With IgG4-related disease, treatment might not be needed in people without symptoms or with mild symptoms. People who do have symptoms that bother them can be treated with steroids (glucocorticoids), usually with dramatic improvement. It would not need lifelong treatment. One or two weeks might even be enough to give improvement (similar to steroid treatment in asthma attacks), but if diagnosis is confirmed the aim would be to try to prevent it coming back by treating for maybe a month and then gradually reducing the steroids.
Chavalote wrote:
Some things match but some others don't.
Any symptoms would depend on what part or parts of the body are affected. Scans can be done to see what parts of the body are affected but there is no "doesn't match" because even having no symptoms is possible.

In some rare cases, it can involve e.g. the coronary arteries or aorta, so identifying and treating the condition could potentially prevent serious events in the future, such as heart attack or ruptured aneurysm. Diagnosis could also prevent unnecessary surgery or treatments too. Many cases get diagnosed after major (but unnecessary) surgery to remove 'suspicious' lumps or swellings.

Don't expect your doctor to know anything about IgG4-related disease though. Most rheumatologist possibly haven't heard about it yet! Testing IgG4, IgG, IgE and eosinophils could be helpful, but all of these could be normal too. Measuring plasmablasts seems to be the best test so far, but that test is only done in certain research labs I think.

If you did decide to try a short course of glucocorticoids and they helped you, it would be a significant diagnostic sign... and great for you too of course. Concerns about their side effects are mostly for long-term use. Glucocorticoids can help with many other inflammatory conditions though and probably would help your turbinates whatever is causing the hypertrophy. Have a look at http://prostatitis.org/redirect.php?lin ... MC4094959/ too.

2 years ago I took a short course of glucocorticoids and I had a dramatic improvement in my erections/orgasms and semen quality (mine had been too thick/viscous), as well as in my sinuses and with my dry skin. I also felt like my whole system was rebooted.

Blood tests for hypophysis (pituitary) are described at http://prostatitis.org/redirect.php?lin ... y/start/2/. It might be best to have these tested on a day when you feel more symptoms. They should also be tested before starting any glucocorticoids, as treatment might correct any abnormal levels.

A normal CT of your hypophysis would exclude a noticeable increase in it's size, but maybe there is still inflammation in it, and the inflammation might be fluctuating too.


Tue Jan 26, 2016 1:18 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Thanks.

I was anxious because I thought if that is my case I would be damned to be taking corticoids all my life or living without orgasms, without libido, and the worst thing, thinking that I have a clock bomb in my body that can worsen at long term. I read a case of a woman with lupus complaining about how corticoids had changed her life and body, and how she hated keeping depending on that treatment. Also, the anxiety came from the lack of knowledge about the problem.

I think the fastest and the best option is testing some glucocorticoids as a diagnosis method. I've been doing blood tests all this past year and I'm really tired of them. I'm going tomorrow to visit the general doctor and I'll talk to him about this. If he prescribe me glucocorticoids and I feel better after taking them I will have a clue at least. Because the most exasperating thing is that I have been years visiting doctors and I don't have yet one single clue of what is going on in my body. All the drugs I have taken just don't work, it seems like they are not hitting the target. Also my turbinates problem have not get better with anything. They worsen and improve depending on the day but they are always in bad conditions. Sometimes, during the night I wake up with my heart beating too fast and I feel I can't breathe well. I see all of these problems as parts of a whole, and not as separated diseases.

To me, it seems clear that is not a bacteria what is causing this (even enterococcus faecalis was found in two analysis). Antibiotics didn't do nothing and when I read another men cases I always think about how different their symptoms are. The main two differences is that they describe a unbearable pain all the day and they don't talk about libido problems, weak orgasms, which are the ones that most concern me.

I have been one week on abstinence and yesterday I "tested" and the erection quality was not good. No erection without touching, and no arousal at all. I think that's not normal after one week without ejaculating. The semen got improved though. It was not watery but it came without strenght, and no threads. The orgasm was weak, not as always but weak enough for a week of abstinence. I really got desperate because I thought my libido is really damaged. I got anxious. I want to recover my normal sexual response, I want to feel like a normal man. I want to experience what I must experience after a week of abstinence under normal conditions, and not that. I mean, a full erection without touching, arousal and a powerful orgasm with semen coming out strongly (as it was before).


Tue Jan 26, 2016 2:00 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I have been reading about the glucocorticoids side effects and I got scared. I don't know if it's a good idea taking them. Is there anything safety to test if it's an autoinmune problem?


Tue Jan 26, 2016 4:49 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
You can't rely on any blood test, no.

Use of glucocorticoids can be for short courses (up to one or two week) or for long courses (for months or years). When they are used for a long time they have a lot of possible side-effects and doctors often give other medications which reduce the need for long courses of glucocorticoids. You would be right to be concerned by long courses, but it would take a lot of short courses before being at risk of the long use side effects.

Ultimately it should be your choice about trying them or not. If you do decide to do a trial with glucocorticoids and feel anxious, you could choose to stop the glucocorticoids as soon as you are satisfied that they have hopefully worked, if you just want to see if they work for your inflammation. (They should never be stopped suddenly when they are taken for longer than 2 weeks). I suspect you would notice some improvement in many or all your symptoms within 2 days, like I noticed when I took them. You would get more improvement with extra days of course and, if you get improvement, you might continue for some more days.

When I took them I started with 35mg of prednisolone for 2 days, then I reduced the dose every 3 days to 30mg, 20mg, 10mg and 5mg, and kept a diary to record my symptom improvement. 35mg is considered a high dose, but I knew it was the dose used sometimes for nasal polyps. The suggested dose for proven IgG4-related disease is 40mg or sometimes 30mg.

I did notice less benefit after I dropped from 20mg to 10mg though, but I still felt much better for a number of months after.


Tue Jan 26, 2016 8:46 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Maclondon,

Did you have symptoms similar to mine? If you improve with glucocorticoids, that remains in your body balanced? I thought you must be stopping the damage of your own immune system all the time because the body is unbalanced yet and when you quit the glucocorticoids it begins again to do damage. The improvements you achieved lasted until now? It's something that gets balanced and then you don't need more medication? How that it works?

I'm scared because I read about bad effects including death, and I'm living alone and anxious much time, but on the other side I think, if I take them and I begin to feel good again? Recovering my libido, orgasms, no more nose or throat obstruction, no more weird feeling in my chest, no more itchy eyes, no more prostatitis, no more burning pain in my arm and legs, no more fatigue... and maybe no more risk of eye-floaters increasing.

I'll ask tomorrow to my general doctor. I'm these days having that "sand in the eyes" feeling, specially in my left eye. Sometimes I check in the mirror if I have something, like an eyelash, but there is nothing. I'm suspecting my problem could be some autoinmune unbalance, because in the article they talked about orbital inflammations also.

I really appreciate your help and I hope I can achieve something.


Tue Jan 26, 2016 10:50 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I've asked about this to the general doctor and he have prescribed dexamethasone at 1 mg dosage. He have said that if my problem is autoinmune I should notice the effects after the first dosage.

Let's see what happens. I hope this works.


Wed Jan 27, 2016 5:02 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
3 days on glucocorticoids (dexamethasone) at 1mg per day, except today, that I have taked two pills (2mg) just for testing. Or the dosage is two low, or this is going to take more time, or it's not an autoinmune unbalance. I also have the sensation that even it's worsened. Yesterday I masturbated to test how it worked and it burned a lot, the erection was specially difficult to reach and maintain, and the ejaculation was awful. I don't see any good changes.

I'll keep posting how it goes.


Fri Jan 29, 2016 7:20 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
The problem I had was viscous semen, but I also had an 'rectal' ache (not really strong enough to call it a pain) slightly on the left side. I also had lumps/strings in the semen, usually including what seemed to me to be a 2-3cm long cast of my ejaculatory duct, sometimes with a 'Y' junction because two ducts combine to form the ejaculatory duct.

An MRI scan showed some evidence of prostatitis but also showed a shadow in my left seminal vesicle, initially reported as a possible stone. A transrectal ultrasound showed something benign but ruled out a stone, but the lesion was never characterised - basically a mystery. I now know that the MRI characteristics are similar to lesions elsewhere in the body that could be due to IgG4-related disease.

18 months ago I decided to try glucocorticoids for 2 weeks to improve some nasal obstruction and see if it's would also have an effect on my urological issues. I had an rapid improvement in both (as well as in my skin and general wellbeing) but I took a higher dose than you. 20mg of prednisolone is equivalent to 3mg of dexamethasone - http://prostatitis.org/redirect.php?lin ... cocalc.htm . I started at 35mg of prednisolone (equivalent to 5.25mg of dexamethasone), and reduced the dose every 3 days.

I quickly got improvement in semen viscosity (and color) and could feel pleasurable contractions from my seminal vesicles that I had totally forgotten existed. These pleasurable contractions made my erections almost want to get 'more erect'. I also got greatly improved orgasms.

The 'ejaculatory duct cast' I used to get stopped and instead I got smaller 'folded' lumps from the seminal vesicles (each vesicle is a convoluted tube, folded multiple times on itself almost like a string of sausages), a sign that I improved drainage from the seminal vesicles. The 2 ejaculatory ducts pass through the prostate, and so pain on examination of the prostate could be due to inflammation in the ejaculatory ducts rather than any inflammation in the prostate itself.

I strongly suspect I'd also had inflammation in my ejaculatory duct (which transmits seminal vesicle secretions and sperm, but does not transmit any prostate secretions). The ejaculatory duct inflammation and seminal vesicle inflammation/dysfunction settled with the steroids. I had better drainage from my seminal vesicles of a probable build-up of abnormal alkaline secretions, so for a few days I had some burning. I've had some mild improvement with antibiotics in the past too, so I knew that an improvement in drainage would burn a bit for a few days.

I think many men would wrongly think that this burning is a sign of treatment not suiting them. In my opinion, it's a sign that it IS working.

A second transrectal ultrasound was done after I had been given a course of Ciprofloxacin, and this time the scan was normal. I suspect this was more to do with the steroids that the Cipro.

Regarding the dose of dexamethasone that you are taking, Chavalote, I suspect you might need to take 3mg to get a noticeable benefit. It's best to take the full daily dose in the morning. Taking 3mg for one day would be more effective than taking 1mg for 3 days.

I think it's wrong for your doctor to say that 1mg of dexamethasone is enough to show improvement in an autoimmune disease. Some conditions need much higher doses, e.g. giant cell arteritis can need 60mg prednisolone (or 9mg dexamethasone).

It's your choice what dose you feel comfortable taking yourself, but I can only tell you what dose worked for me to show a huge and rapid improvement. I hadn't even heard of IgG4-related disease at the time.

Although I'm very aware of the dangers of gucocorticoids for longer term use, by the end of my trial on them I definitely was pleased with and enlightened by the effects on me and I had no side effects. I know I would get side effects if I ever took them long-term though.

My body could do with another course again now but I'm currently trying to get investigations done for IgG4-related disease. I would have to avoid taking steroids as I would need active disease to get a diagnosis confirmed. After someone gets diagnosed, they would probably get other medication with the glucocorticoids that would greatly reduce the length of glucocorticoid treatment.


Sat Jan 30, 2016 12:18 am
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Post Re: My story, chronic prostatitis associated with weak orgas
I have asked to the doctor today because I felt the prostatitis was worsening and I don't know if this treatment is right. He has said that he gave me that dosage because I was anxious with the possible side effects and 1mg per day is secure enough.

The only things I have noticed since I'm taking glucocorticoids is that my dermatitis has improved a lot and, I don't know if it's a coincidence, but it seems it influenced in the guts, because I always go to the WC 1 - 3 days in a day and I have had 1 day without going. It's not a constipation but it's weird, I think maybe the glucocorticoids somehow slowed down my guts.

These days, when masturbating, I felt really bad, erections were difficult to maintain and painful, and "edging" was really a pain, so I thought maybe this triggered an infection. I hope what is happening is what you said, that the drainage got better and that's why I feel worse. I've asked today a lot of things to the doctor because I'm tired of this condition and want to see some improvement. I've asked if I can test some Fluconazole to see if this is caused by a fungus also. From tomorrow I'm going to take it for a week to see what happens.

I didn't know the dosage were different depending on the glucocorticoid. I have checked the table you posted and it says the one I'm taking is long-term. That matches with what my doctor have said, that it's quick to see clear improvements (I only have been taking them 5 days). I don't know if I should test taking 3 mgs like two days to see what happens. I tested one day taking 2 mgs but didn't noticed anything good, my condition seemed to worsen. So, it's confusing.

I also have had conjunctivitis these days and didn't know if glucocorticoids could worsen it. It's like if I had something inside the eye, very annoying. So, I also was anxious thinking this could be worsening that (I have had conjunctivitis from before start taking glucocorticoids, so I know they are not the cause, though).

It seems I have a lot of inflammatory processes in my body, difficult to stop. I feel I'm not explaining well the things but I feel my eyes itchy and I'm having difficult time writing. I feel frustation because, not only I can't solve the problems I have, it seems they grow. I feel like something is going wrong with my body and don't know what can it be.

These pleasurable contractions you said is something I'm missing, yes. My orgasms are weak because that contractions aren't there, I guess. I don't know if I also could have a problem involving seminal vesicles, it's difficult to tell.


Mon Feb 01, 2016 4:45 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I haven'r read any success story with fluconazole.


Tue Feb 02, 2016 11:21 am
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Post Re: My story, chronic prostatitis associated with weak orgas
I have read stories about people who were getting mad with chronic prostatitis for years, taking a lot of antibiotics without any of them working, then they took fluconazole and it healed.

I don't like taking drugs (specially chemical ones) and I'm always anxious about the side effects, but at this point I'm desperate and I want to try anything. I simply can't live with this anymore. I can't remember what sexual pleasure and orgasms feel like. It's very sad.

I've found this about prostatitis and fluconazole:

http://prostatitis.org/redirect.php?lin ... BF01103097

I was living in a very wet and dirty guest house where there were a lot of mold, so I think that maybe I catched something weird that my body has not been able to get rid of yet. Semen and urine cultures don't seem to be reliable in my case, so the only thing that remains is just testing if anything works.

It's only a week, I hope I don't have any bad side effect.


Tue Feb 02, 2016 11:49 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Thanks for the link. If you find more success stories with fluconazole I'd like to read them.

I tried some natural antifungals and had to stop them because I was feeling worse instead of feeling better. Some people say that the worsening is caused by a herxheimer reaction or "die-off". I tried to keep taking the antifungal and things just got worse until I stopped after some 4 days.

Now there are two things I want to try.
- The baking soda + lime juice combo that someone suggested in this forum. Apparently this is an alkalinizing solution that may help.
- psyllium husks. This soluble fiber is used for irritable bowel syndrome with mixed results. I think that this fiber may feed the " good bugs" and help them fight the "bad bugs".


Tue Feb 02, 2016 12:39 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I don't know if lemon is different to lime in this, but some months ago I tried drinking baking soda powder dissolved in water and lemon juice a few days and didn't notice anything.

I think my prostatitis case is not common, that's why I thought the cause could be a fungus. I have taken my first dosage of fluconazole and haven't noticed anything special yet. Hope this works, because I don't know what else I can try.


Tue Feb 02, 2016 4:12 pm
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