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 My story, chronic prostatitis associated with weak orgasms 
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Joined: Thu Dec 31, 2015 4:11 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Yes, I also have acid reflux sometimes, pressure in the ears and behind the nose (and sides, specially the left) and throat. CT Scans "say" that there is nothing in my paranasal sinuses but I feel like they are obstructed, specially the left side. I wonder if that zone is chronically infected by something and that goes to other parts of the body such as the prostate.

My sixth day on Rifaximin and no changes. When I masturbate I feel the same thing, low pleasure, no arousal, weak orgasm and the worst, burning and pain when ejaculating; my glans skin is also cracked and irritated. I also feel the burning when urinating but it's more irritating to me when ejaculating because that is destroying my orgasms. I had hope with the SIBO theory but I'm getting desperate again. If it's not SIBO or an autoinmune disease (glucocorticoids didn't work either), what in the hell is causing this? Why is it lasting a lot of years? Why is my entire body numb? Why am I suffering tremblings, cramps and spasms in my muscles? Why I have eye floaters? Why my back hurts specially when I wake up? I have no response to anything and that leads to anxiety. While I'm writing this I'm having spasms in my chest that palpitates like 1 time in a few seconds and I wonder what is the cause of that.

I'll ask again to the doctor about vitamin D again but I feel my options are getting narrower and narrower. I want to recover my libido and orgasms badly. I can't remember what an orgasm feels like.


Sun Feb 28, 2016 12:09 am
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Post Re: My story, chronic prostatitis associated with weak orgas
I still think you probably have SIBO going on man. It sometimes takes a couple of weeks of rifaxin to start working, My doctor wanted me on it for about 3 weeks. I've had bloating, acid reflux, very little flatulence, no burping either. I've also had the heart palpitations from intestinal gas where the small intestine pushes on the vegas nerve where your heart is. When that happens, the room spins, I get a weird headache in the back of my head and I used to panic thinking i was having a heart attack. Now i just try to relax, slow my heartbeat down and ride it out. I've also had an ongoing kidney issue that I think is caused by SIBO as well. Where the food doesn't get digested right and toxins end up in the blood where the liver and kidneys try to filter it out. At times, I've also have rectal wall spasms called proctalgia fugax. I think maybe there's levator ani syndrome going on, but I haven't had it checked out yet.

I am probably going to start my rifaxin tomorrow and see what happens.


Sun Feb 28, 2016 1:11 am
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Post Re: My story, chronic prostatitis associated with weak orgas
You've probably got quite a few different things going on, it's good to approach it from a multi modal perspective. Like you have the antibiotic for your gut, but if at the same time your diet is healthy and you don't over eat and get a good amount of light exercise, then more improvements are likely. Your unlikely to cure all your problems with one drug or vitamin etc.


Sun Feb 28, 2016 4:54 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Inclininig your bed should help with GERD.


Sun Feb 28, 2016 5:27 am
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Post Re: My story, chronic prostatitis associated with weak orgas
I'm now going to a dietician, following a healthy diet. I have been doing exercise until few months ago and I have been suffering this all these years. I don't think this is caused by a lack of exercise or a bad diet. I don't drink alcohol, I don't smoke, even I don't drink coffee. I don't eat garbage food, I don't drink carbonated drinks, I don't eat hamburgers, I cook all my food and never eat outside.

I have tested a lot of diet changes these last 3 years and nothing worked. I think there is something failing in my body which needs treatment. But what? What is making my body feel numb and shiver? What is making my prostate get inflamed and my libido weak?

When I have woken up today I have tried to masturbate. I have ended it before ejaculating because it have been painful and annoying. It's my 7th day on Rifaximin. What can be causing this? I wish I could know. So, I can do the right things and not trying random stuff.


Sun Feb 28, 2016 3:40 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I think once you're finished with Rifaximin and you repopulate your system with beneficial flora from probiotics, you'll be doing a lot better. I'd try to take in as much zinc and magnesium as you can from foods also. If your absorption of those minerals are off, due to gut issues, that can cause prostatitis like what we were talking about in another thread. I have faith that you will get better Chav. You will be ok.


Mon Feb 29, 2016 1:14 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Thanks, Inflamed, for your encouragement words, but this seems to me as a too much "tough enemy", also unknown, the kind that strikes you when you can't see it. It's very frustrating. And these years going to doctors almost always to lose my time and get insulted with things like "it's all in your mind" worsened the whole thing a lot. Now I know that this is a prostatitis but I can't find the cause.

I feel that Rifaximin is not helping with this. I don't know if I have SIBO or not, but every day that I take Rifaximin and I feel no relief in my prostatitis, tremblings, cramps, spasms and so on I lose hope.

I'm scared with the spasms. I have spasms in my trunk sides (again more in the left side) and I think what can be causing that. Is the blood in some way doesn't passing well? Are there something obstructed?

I don't have too much money so I don't know if I can afford the VSL-3. Tomorrow I will ask by phone to a pharmacy that sells it online because it's not something easy to get nearby. That means that I will need to pay also for the delivery. But I want to try it. I will try all that I can to get cured of this.

The thing that makes me most anxious is the little support I'm having in my personal life. Almost all the doctors doesn't seem to take it seriously, nor to want to help me. My family is rejecting me and the few times I talk to them about this they treat me like an hypochondriac with comments such as "don't take any drugs because you have nothing to treat" or "you are going to doctors to make blood tests and all of that stuff like an old retiree" (that came from my brother and specially hurted). I have told them that now I have a diagnosis but they don't take it seriously. They don't care about my health. And I'm alone with all of this problems, anxious and scared; my orgasms are gone and I miss them. I feel anxious when I think that I can't make people understand my suffering because is something weird that can't be explained with words. How can you express in words this? If you talk about weak orgasms or burning when ejaculating they say that that is in your head and you feel really alone and sad.

I have been enduring this for years, thinking that with time it will go away, but it doesn't get cured. Years and years without orgasms and I don't know if I'll be able to recover them, and if that happens, when? How can I get rid of this? What is the cause? I need an answer to cure myself and also to make the people that is treating me like an hypochodriac realize that I'm not, that this is a real disease, and very annoying.


Mon Feb 29, 2016 9:00 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
On the comment about being called or being made out to be a hypochondriac:

1. Find a different doctor. There are doctors who are intelligent enough to work through more complicated puzzles like this. They're uncommon, but they do exist. I am lucky that the first URO I went to has never made me feel that way. There are plenty of UROs to choose from (surely within an hour drive from you at least), so take your money elsewhere. I've done it before with an ignorant Gastroenterologist.

2. Family can be that way. Again, it's easy to trivialize things. Especially if you are a healthy person, it's hard to imagine someone who isn't healthy. "Why doesn't that person with cancer just..... not have it?" I've heard kids say that, but unfortunately I think it's a sentiment that is part of all humans: it's hard to put yourself in someone's shoes until you've experienced a problem. I don't know what to tell you on correcting this. If they won't hear anything else, then you need to ignore them. If they bring it up, don't engage the conversation. Tell them your health is between you and your doctor and you're not discussing it. Be firm and confident about it.

You DEFINITELY have a disease and it's not in your mind. It's a complicated disease, and you are admirable in that you are trying things without any social support. You need to find some friends or someone to talk to about it, but also to distract yourself from it. Also, try to enjoy something else in life while you are being treated. No sense in wasting all your time on this slow-to-treat problem. I'm not the world's greatest at meeting people, either, but maybe look for interest groups (meetup.com?). Maybe find a support group for chronic conditions like Fibromyalgia or something? Wouldn't necessarily have to have a support group who's sick, nor that have your exact symptoms. Good healthy people with similar interests, or people with chronic conditions might be mutually beneficial. Distract, distract, distract!

Another thing I have noticed on your posts..... you seem to try things for a week or two and declare them as "not working". This really doesn't work in medicine from any health issue I've ever had to deal with. I've learned that healing takes TIME. Nerves can easily take 6 months to heal (I irritated one in my hand from bike riding and it took that long). Your stomach cells take around 3 weeks to fully "turnover," as it's called, where the old cells have died off and all new ones are present. We know that the prostate is HARD to reach from the bloodstream. I would say that means whatever prescription/supplements/magic-pill/etc you are trying is likely not going to penetrate the prostate, or linger long enough to have any effect. Same for your gut/flora stuff. Please slow down!! Take your time with these treatments, as you might be skipping over your solution by not giving it adequate time. And, definitely make sure what you are taking is safe and of good quality to be effective. (I have been taking Meriva tumeric for 6 weeks and I still have my symptoms. I read someone say it can take 8 weeks to work so I'm at least going to keep it up that long. )


Tue Mar 01, 2016 10:55 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I know that these days I'm being quite impatient, but think that I have been going to a lot of specialists for years, doing a lot of blood, urine tests, etc., just to know what was causing this. It wasn't until November of the past year that I had a proper diagnosis: prostatitis. Until that, I was going to one specialist to another without nobody really helping me and a lot of them made stupid comments like the "it's all in your mind" thing and others that hurted more like "if you had a girlfriend propably you would be better" (once again suggesting that this is all in my mind).

I tried the sulfamethoxazole two months just as the last urologist said, with a lot of fear, because I know that wide spectrum antibiotics can be very dangerous (that was in November and December of the past year). I accepted the risk because I'm tired of this condition and it only gave me tremblings and a mild tinnitus I still can hear when it's very quiet. The prostatitis didn't get better even a bit, no changes. I called the urologist and asked him about another options and he showed me clearly that he has no interest because he offered Finasteride to lower my libido and "let the prostate heal" (if it were that simple, a week of abstinence should improve a little at least). I felt upset because I told him a lot ot times that one of my problems is the low libido. I don't need Finasteride, which surely would end destroying it. When I told him with a lot of patience that I have low libido and I feel weak orgasms (and people taking Finasteride complaint just about that) he talked like if I were a tiresome "yeah, yeah, I know, you have low libido, bla, bla...", in that mood. I never went back to his office. I felt like if he was thinking that I was a sexual obsessed or something like that, that need drugs to calm down and let the prostate heal. If it were that simple this wouldn't have lasted too much years. I felt he was understimating my problem, indeed.

I think I have tried at least half of the urologists in my town and I'm now going only to the general doctor (the only one who at least listen to me) and talking to him about the things I read in the forum to see if he can prescribe me stuff or guide me more.

I'm in a point where I need to see any relief, any light in the dark, because it has been a lot of years (maybe more than 10) with this condition, thinking that it was a question of time, without knowing that I had a prostatitis. It was that April I mentioned in my first post when I realized that my libido and orgasms usually are not normal. I still wonder what changed that month. I wish I could feel like that again.

And yes, it's very hard enduring this without anybody to talk. I'm ignoring my family (it's more accurate to say that they are ignoring me) and I don't have any friends or a girlfriend. That would help a lot but I'm quite isolated. I think my life won't start to be normal again until I cure this.

Today I have called to a pharmacy to ask about the VSL-3 and it's too expensive to me (more than 100 Euros!). People here usually buy Vivomixx, which is cheaper and it's supposed to be the same thing. But the woman on the phone has told me that a lot of people order the VSL-3 from the USA because they feel it's different and she has said that she doesn't understand because it is the same product with the same bacterias. Anyway, I must test the Vivomixx because I can't afford that price. Vivomixx is like 21 Euros (10 envelopes). I'm thinking in ordering it tomorrow. I hope this has a good effect after the Rifaximin treatment.


Wed Mar 02, 2016 12:23 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Chav,

Here is my advise. if you are anxious and/or depressed, which you are (I'm sure most long term sufferers are), you need to seek help for the mental side of things. If you are depressed, its effects your entire body and will make it more difficult to heal. So I think you should try:

1.) Find 1 family member who will listen. Try to talk with them rationally about what you are going through without getting into details regarding "weak organisms". I'm lucky in that I have been able to tell my immediate family and close friends and they are supportive. I know its a bit embarrassing, but its good to get off your chest.

2.) Find some sort of support programs aimed at people with chronic pain/chronic disease. They will have methods to help you cope with the mental side of things. Its pretty clear that you are suffering and in the absence of a "Cure", I don' t think going down this path could hurt. This doesn't mean you should stop seeking a diagnosis/medical treatment, but working on the mental side of this certainly won't hurt. I am actually actually starting a chronic pain course to help me cope later this month so I will let you know how that goes.

I know it sucks, but until you find a doctor that will help, i think these 2 things will help you cope on the mental side of things.

W.


Wed Mar 02, 2016 1:47 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Tomorrow, I will have the Vivomixx (it's supposed to be the VSL-3 with another name here). There is still two days of treatment with Rifaximin. My question is, should I wait until ending of taking Rifaximin or can I start taking the probiotic from tomorrow? Rifaximin can affect it?

WS1234,

I have been too long under this condition and I really don't mind telling people about it. I have told to my family the weak orgasms thing without no much problem, maybe the concern feeling overcomes the possible embarrassment. The main problem is that I don't have any family member who can listen to me frankly. The only ones are my brother, mother and father and all of them don't care about me.

I either have not money to pay support groups or psychological counselings but anyway I honestly don't trust in that. I don't trust in psychology at all. A lot of psychology currents are into the "blame the victim" thing and I hate that.


I'm not obsessed with this, at least no more than what is normal in this type of problems. I have endured a lot of years without even going to doctors and actually there is a lot of people who get obsessed with less than me. There is nothing wrong with my mind (I have not said that you said that, but a lot of doctors and psychologists tend to conclude that before going deeper into the problems). I see a lot of lack of empathy and psychopathic minds these days, a lot of people who try to make you guilty for something you are not, blaming your mind of everything. But that mentality is specially destructive when it comes to a psychologist or doctor (and I have meet a bunch of them).

There are also a lot of people telling you that there are a lot of persons with more dangerous or deadly diseases. That's also destructive. It's a try to diminish the importance of your problem. It's also stupid, because it's like saying to anybody who is happy "hey, there are a lot of persons happier than you so you shouldn't be happy".

I think the order usually is "sick body ----> depressed/anxious mind" and not the opposite. My depression and anxiety will got better a lot if I can cure this cursed disease. When an orgasm is healthy it takes a lot of anxiety from you, it relax your entire body, but when it's painful and unsatisfactory like in my case, the anxiety and muscle stress accumulates in the body and mind for too long. That's my theory and I find it much more reliable and logical than the "your are getting obsessed and that is affecting your libido" thing. The western science really underestimates the role of the libido and orgasms in our health and there is not much proper research about it.


Wed Mar 02, 2016 11:52 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Antibiotics kill bacterial probiotics. Take your probiotics away from antibiotics. One of the jobs of the probiotics is to inhibit the growth of antibiotic resistant pathogenic strains.

They are not a silver bullet. They have value in the management and treatment of some diseases and some patients will benefit from them. They are not a cure-all. I took probiotics for many months and I am still in chronic pain.


Thu Mar 03, 2016 12:10 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Chav,

I totally agree with your "sick body --> depressed/anxious mind" comment. My depression is definitely a result of being in pain all the time. My point is that once you hit the "depressed mode", I think its important to treat that portion of the problem as well. Whether or not I'm right about this, i don't know, but I will let you if the "pain management" course helps at all.


Thu Mar 03, 2016 1:31 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
This morning I have had pain in the abdomen and a feeling of swelling as always. I don't know what can be the cause but I feel that, the back pain and the prostatitis related. I think if the cause were SIBO, 10 days of Rifaximin should at least have been made something with the abdominal pain.

I have decided to skip two days of the Rifaximin treatment (I don't think they would make much difference) and I have begun with the Vivomixx. I don't know if it's a suggestion but I feel like a little "fresh" inside my body.


Thu Mar 03, 2016 4:46 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I have tried again a prostate massage by myself with a toothbrush and I haven't been able of doing the milking but I have noticed these points:

1 - The rectum depths hurts a lot, like if I had diarrhea (that's why it's hard for me doing this).

2 - I haven't done it too strongly but I have found drips of blood in the toothbrush and when I have defecated after, also a drip has come out. That has scared me and makes me wonder what in the hell is going on in my rectum.

3 - I have difficulties finding the right point but when I reach it and push a little I feel a very strong burning in my urethra, like when I have those bad ejaculations but maybe 3 times more intense. I have thought that something was going to come out but I have lost the point. It's intense, like having nettles in the urethra. That feeling made me think that this is clearly an infection. I think that something weird is there, inside. The most misterious thing is that usually it doesn't hurt, only when urinating, ejaculating or defecating.

Now, I still have burning in my rectum and my abdomen.

The blood and the pain in the rectum makes me thing that maybe it is hurt by some mild chronic hemorrhoids (I guess) and that's infecting the prostate. There were not so much blood but I guess that I had a little cut in the rectum which I have made because the inside skin is already weakened and inflamed.

One urologist prescribed me a corticoids lotion to apply in the rectum but I found no much sense in it. Maybe it would be a worthy try?

Anybody have had that rectum pain and drips of blood while doing the massage? And the strong unbearable burning in the urethra?


Mon Mar 07, 2016 1:46 am
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Post Re: My story, chronic prostatitis associated with weak orgas
What's your opinion about vivomixx?


Mon Mar 07, 2016 8:38 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Today is my fifth day.

I don't know if it was the Vivomixx but the defecation took 2 days (usually it's very fast, 1 day or 2 or 3 times per day). It was quite solid and normal. But ironically my prostatitis is in its worst times. Erection and masturbating is a pain, specially when I ejaculate. That's why I thought about trying the milking, to see if there is something bad accumulated and I can throw it out. But it's very difficult and the rectum hurts a lot, I have to stop because the pain. The blood also concerned me, it wasn't too much, only small drips but that points that something is wrong inside that zone.


Mon Mar 07, 2016 1:47 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
If the vivomixx stopped your chronic diarrhea it is a very positive result. Thanks for passing on this information.

I wouldn't worry about the blood. If you poked your nose with a toothbrush you could expect some blood. I am not saying that poking your holes with a toothbrush is a good thing. I wouldn't do it, probably.

It is not uncommon to have internal hemmorhoids. I know I have them because I had a colonoscopy.

Pay close attention to all your symptoms and see if you see any other improvement.


Mon Mar 07, 2016 3:13 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I forgot to mention that I'm having also mild abdominal pain. Maybe the Vivomixx is changing something unbalanced and that is why it hurts?

Today I have defecated 2 times (spaced by maybe 2 hours) and with thin feces (that happened usually a few months ago and stopped since I took the glucocorticoids and then started a new diet). I don't know if it's because yesterday I ate bread, or because I took a beetroot, garlic, onion and carrot soup. Also maybe that the toothbrush thing irritated the digestive system a bit. I think my rectum is inflamed and that can go to the guts also. It's ironical because yesterday the feces were perfect and I thought I was improving. I guess that yesterday I did something that ruined the progress.

The first time I have defecated I have seen a point of blood in the WC, the second I hacen't found nothing. Hope that it stops.

I guess it was silly trying to push out the infection with a toothbrush but I was masturbating and the penis hurted and I got desperate, so I thought about trying that.


Mon Mar 07, 2016 5:56 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
There's no guarantee that you have an infection because of the burning. Inflammation causes the same thing. Infection could be a cause of the inflammation, but with CPPS there doesn't have to be an (active) infection. You could have had a past infection and your body never stopped inflamming the area. Pushing on inflammation is going to hurt, and send pain throughout the entire urinary tract (including urethra). I would highly advise against the toothbrush. Get a real prostate massager if you want to try that. But I wouldn't do it at all while the inflammation is high.

Doctors can easily look for hemorrhoids with a small camera. I had them before this all started and had them removed. They are consistent with what I think is my CPPS cause (prolonged sitting over many years).

Also, one thing I have been meaning to suggest to you is to try ejaculating while standing. I've tried that for about a month now, and seem to get better release and less post-pain. I guess it keeps pressure off the prostate while it releases!? Also try relaxing your pelvic floor muscles as you orgasm. Although.......I'd probably rest at least a few days if you're burning right now.


Mon Mar 07, 2016 6:06 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Modern bread is not healthy. Garlic, onion and beet contain galacto-oligosaccharides that can be problematic for a dysbiotic gut.


Tue Mar 08, 2016 11:31 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Yeah, it's best to buy organic flour, yeast, and a bread making machine. That way you get no added crap, fillers, or preservatives.


Tue Mar 08, 2016 6:13 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Fantom451,

But that burning felt to me like an infection one, It didn't feel like a muscular pain. It was quite intense and it felt like if something burning were going to come out from my urethra but I lost the point because with a toothbrush is difficult. Maybe with the finger is easier to keep pushing that zone but always that I have tried to do it with the finger I can't find it.

Inflamed and Jaumeb,

I don' know if it was the bread or the soup. I'm these days eating a bit of bread but always integral. That day I made an exception and ate normal bread because there weren't integral in the shop.

Today I was a little better (I mean the gut, not the prostatitis). No blood have come out. But my prostatitis is awful and I'm going to abstain myself from masturbating for a while to see if that helps.


I'm with the probiotics, a multi-vitamin supplement and zinc. From tomorrow I'm going to try the peppermint oil also.

I'm thinking about seeking an urologist who perform the prostate massage because maybe it would be helpful. I think that something is stuck there for a long time and maybe that can help to bring it out and see it in an analysis. But it's embarrassing asking that.


Tue Mar 08, 2016 7:34 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Inflammation does not mean "muscular pain". Inflammation affects nerves and blood vessels (which push on other nerves). It will most certainly be intense. In fact, infections don't hurt at all, it's the inflammatory response to the infection that hurts. Generally, if you had an infection then you would have fever or some other systemic symptoms (especially if your body was actively fighting it). I'm not going to say you definitely don't have an infection, but I do think it's very unlikely. Just know that your symptoms *could* have no infections cause.


Tue Mar 08, 2016 11:24 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I feel that burning as typical of an infection, but if it's not an infection what else can it be? There are infections that doesn't cause fever, though.

I have been reading about trichomonas and it says that it can be asymptomatic for a very long time, specially in men. The problem with that is that it is considered a STD and I haven't had sexual relations in my life. But I think, can it be possible? For example touching something infected in a shared WC and then touching my penis? I'm going to ask to the general doctor about that. Maybe it's worth to try some drug against trichomonas.

Really it's hard to me, telling by the symptoms, the sensations, to think that there isn't any infection in my prostate. It's the classic infection sensation, like nettles inside. Maybe I'm wrong and there is no infection but that's what my intuition is telling me.


Wed Mar 09, 2016 1:15 am
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