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 My story, chronic prostatitis associated with weak orgasms 
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Joined: Thu Dec 31, 2015 4:11 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
When they say "sexual dysfunction" they usually refer to erectile dysfunction. What I was saying is that they don't study the orgasm response and its relationship to infections, muscle problems, etc... When you go to an urologist and you tell him that you are having problems with orgasms they usually don't know nothing about it and they say that "it is psychological".

My symptoms haven't changed when taking antibiotics and with negative cultures. That suggests that they maybe due to another causes or that the infection actually plays a not very important role in this problem.

My prostatitis is different from almost all the cases I have read here. Mine is not causing pain at all. I don't know even if the prostatitis is the only imbalance involved in this because usually my libido is also low. And my erections sometimes are difficult to reach and maintain but I'm not suffering erectile disfunction.

I think I'm going to check the pelvic floor PT path to see if that gives some answers.


Fri Jan 27, 2017 3:29 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Chavalote wrote:
It's also difficult to me to think that a bacterial infection can weaken the sexual pleasure and the orgasms, and less lower the libido. I'm doubting a lot. I guess that the only way to light this at least a little is going to the pelvic floor PT. But it's embarrassing to me talking to her about this things about orgasms. I need to find a way to ask about it without embarrassing words.


I am glad you are opening up to the idea of trying this. Good luck!

You don't need to be very detailed with your description. Just tell him/her where you have pain and that it's affected you sexually (pain and minimal sensitivity) and want to be evaluated. I would not go into the detail of your posts on this message board unless they ask.

My PT was very careful not to say things in an embarrassing way, but everyone is different in how they communicate. Just remember that they have all studied the human body and know exactly how your body is designed and how it works, even if they are the opposite gender. Also, my therapist told me that to be certified, she had to have the pelvic floor massage done to her, so she knew exactly what it would feel like herself. She even described the sensations to me BEFORE she did it which put me at ease that what I was feeling was "normal". Each visit I was more comfortable and a few visits in, I stopped worrying about getting embarrassed, because she was very respectful to me and my privacy. In fact, I will say the PT experience is the best medical experience I have ever had in terms of respect, privacy, explaining the process, giving feedback to me, and last but not least: actually giving me some results.

_________________
Symptoms (starting 12/2014): Low libido, poor sensitivity; occasional urinary burning
Past Treatments: 6x Heparin bladder Injection. Elmiron (2x daily), Meriva Curcumin (500mg 2x daily), Physio (good!), Vistaril, Uro Prostate Massage (helpful!), Flower Pollen, Antibiotics (for about a month),


Fri Jan 27, 2017 10:55 pm
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Chavalote, I agree that urologists are quick to ignore orgasm and libido problems, but both are mentioned at http://prostatitis.org/redirect.php?lin ... AJ&pg=PA72 (bottom of page 72) as being symptoms of male accessory gland infection.

I know pelvic floor PT is recommended if you have a pain syndrome and have tender trigger points when assessed. As I can particularly relate to your symptoms and appreciate your financial circumstances, I just wouldn't be raising your hopes that several sessions of PT might eventually help... unless your first session does identify trigger points. I suspect a reliable PT would say the same thing.

As I mentioned, I can associate with most of your symptoms including you not having a 'pain syndrome'. The most I get is just infrequently a vague ache or brief twinge, with neither related to sexual arousal/activity. Unlike you, I have very lumpy and viscous semen. Previously I've had some improvement in semen viscosity with antibiotics, without getting much improvement in strength of orgasm or libido. I also had a 5 minute prostate massage under general anaesthetic 4 years ago but that made no difference whatsoever.

3 years ago I had a prostate MRI that showed a lesion in the left seminal vesicle that was never explained. I then had a transrectal ultrasound (TRUS) that also showed something in the same seminal vesicle, had a semen analysis (extremely high pH), and then got antibiotics for a month followed by a repeat TRUS that was reported as normal. I still had symptoms and wasn't happy that it was assumed that a repeat MRI would be normal and unnecessary. It was suggested I might benefit later from flushing of the seminal vesicle with antibiotics.

I'm now attending a different andrologist in another hospital for reinvestigation - and am pleased to be getting the opinion of a different radiologist too. A few months ago I had a TRUS that again showed up something in the left seminal vesicle. The andrologist had actually requested a MRI rather than the ultrasound, and thankfully pushed for one to be done, as he too has suggested doing a flushing of the seminal vesicle with antibiotics and he needs a MRI done first. I had the MRI 2 weeks ago and am waiting for the report which has been delayed, possibly because the radiologist needs access to the MRI from 2014.

I know it's not easy to get a 'prostate' MRI done, but I think you should at least have been offered a TRUS at this point, in particular to assess your seminal vesicles and ejaculatory ducts (because of the watery semen you've described).


Last edited by Administrator on Fri Jan 27, 2017 11:43 pm, edited 1 time in total.

prostate2010



Fri Jan 27, 2017 11:19 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Currently I have not watery semen but lumps in it. It goes changing due to unknown causes. The seminal vesicles infection is something that I already thought, but I have taken a lot of antibiotics for the prostatitis and that would have cleaned also that (in theory). In my case is also the left side what feels more annoying. And the sensation feels also above the prostate, in the side, so maybe that also the seminal vesicle is involved. But if they only give antibiotics for that I don't think that an MRI would help. It's something like: "Ok, the left seminal vesicle looks infected but now what? Same antibiotics than before?".

I want to go to the pelvic floor PT to have a diagnosis. To see if a muscle problem would be causing this.

Yesterday, I had one of these improvements in which I remember a little what the sexual pleasure and orgasms were. The arousal also improved (it seems that those two things go together). I don't remember any special change in my diet. The only thing different than another days that I can remember is that I cried a little watching a movie. I usually have problems crying. I'm also taking a natural medicine for urinary infections since Thursday but it is hard to me to believe that that could be cleaning this. Other times that I have cried I have seen improvements in my libido and orgasms. I don't know why. Maybe that cleans infections somehow, or maybe that influences the muscle tightness relaxing them, or maybe that influences the hormone balance...

Crying is also something that the scientists don't study. I wonder why it's so hard to me now to cry. There must be a specific reason. I would like to make tests by myself checking my libido and orgasms after crying but it's not something that I can induce easily.

The Western modern science seems small to me. I mean, they cannot answer almost of my main questions. They don't even bother to study about them.


Sat Jan 28, 2017 7:54 am
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Joined: Sun May 01, 2016 9:48 am
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Post Re: My story, chronic prostatitis associated with weak orgas
You certainly don't *have* to have trigger points for internal PT to help relieve symptoms. My PT never found any trigger points, and I only found one minor one myself that doesn't refer to any of my typical pain symptoms anyway.

However, I started getting serious about doing my own internal PT almost nightly beginning on 12/2/16, and by 12/30/16 that was my last day that I experienced pain at a 3/5 on my 0-5 scale. And since then I've only had 11 days that were even a 2/5...the rest have been 1/5. I haven't had a streak that good in 1.5 years even with a zillion abxs, steroidal anti-inflammatories, Cialis or alpha-blockers. I'm currently on zero meds for prostatitis.

It hasn't cured me completely as if I stop the stretching for a few days I notice a sight increase in pain, but if I do the stretching every night or two my symptoms are effectively gone. As someone who has been in pain, sometimes severe for 18 months straight, that is huge. Life changing. It's so ridiculously easy, takes a couple minutes in the shower. I don't even mess around with the paradoxical relaxation stuff. Personally I don't think we can claim to be serious about solving our prostatitis/CPPS if we haven't given internal PT a fair shot for at least several weeks. It took that long for me to dial in on which areas helped and how firm I should be during stretching. In the beginning it flared quite a bit until I figured all that out.

The libido thing I can't speak to, I've been fortunate enough not to experience that in a chronic sense. Though during times when it was at a 4/5 or 5/5 there was no way I was going to be thinking about orgasm or ejaculation, yet alone sex anyway. The pain or anticipation of a flareup after orgasm was enough of a mood killer as it was.


Sat Jan 28, 2017 9:38 am
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Post Re: My story, chronic prostatitis associated with weak orgas
prostate454, you've described well the benefits your can get with self-PT in getting improvement in your pain, but the point I'm making about PT for Chavalote's particular case is that, like me, he does not complain of pain. Like me, he seems to recognise some sensation/ache on his left side, but he's never presented his condition as a 'pain syndrome'.

Chavalote, when I've had some benefit from antibiotics it has tended to be about 2 weeks after stopping a month's course, and any benefit lasts for maybe only 1-4 weeks. It might only be an anti-inflammatory effect from the antibiotics and it's never been a great improvement. The many antibiotics you've taken can't be guaranteed to cure seminal vesiculitis. That's why in my case 2 andrologists have suggested possibly putting a needle into the seminal vesicle and flushing it with gentamicin (strong antibiotic). This is not something an ordinary urologist would know about - in fact, most urologists seem to have forgotten that seminal vesicles even exist.

Look at a chapter discussing seminal vesiculitis in http://prostatitis.org/redirect.php?lin ... C&pg=PA222:
"The primary study to evaluate diseases of the seminal vesicles is TRUS. If questions remain... then the patient can undergo an MRI study of the pelvis."

Also, in Table 25.2 (page 224):
"If the patient does not respond to antibiotics a TRUS is performed".

When my first MRI was requested, I was told it was to exclude an anatomical abnormality, e.g. a cyst, that could be obstructing the ejaculatory duct.

ADMIN NOTE: I tried to go to that page but it said it wasn't included in the preview. Maybe some of you can.


Sat Jan 28, 2017 4:16 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I see Mac, gotcha. No pain and only orgasm issues is a strange one indeed.


Sat Jan 28, 2017 6:35 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
It's difficult to tell if the annoying sensation that comes when I ejaculate (or even before) comes from the prostate or the seminal vesicles, because all the surrounding zone gets numb and burning. Specially I feel the muscles of the sides of the penis basis like if it is having a difficult time ejaculating; that can make the erection weak also. The whole penis also feels kinda numb and the glans and testicles also feels like burning slightly (intensity can vary from day to day).

One year ago, when one urologist peformed a rectal examination my prostate hurted and specially the left side. So, I thought it is a prostatitis but I'm still not sure.


Sun Jan 29, 2017 7:33 am
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Post Re: My story, chronic prostatitis associated with weak orgas
I have marked in pink the zone from where that annoying burning seems to come. The green lines shows where it expands before ejaculating. I don't know what is the name of that muscle that appears in red near to the prostate but I think that is numb and a bit sore in my case. That muscle seems to be chronically weakened and to be one of the causes of my weak orgasms and bad quality erections.

Image


Sun Jan 29, 2017 7:54 am
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I suspect the burning sensation you get, which I am familiar with too, is due to an abnormal pH of your semen. My semen pH was only measured as being 0.3 above the normal range, which might seem slightly raised but actually equated to being 'twice as alkaline' as the upper limit of normal.

The seminal vesicles and prostate both contain involuntary muscle, just like the stomach or colon do. Poor force of ejaculation is probably due to dysfunction of these muscles. The watery prostatic fluid arrives into the urethra via several smaller prostatic ducts and mostly in the early phase of ejaculation. The seminal vesicle muscles are possibly more important for force, especially as the seminal vesicle secretions (viscous; 60-70% of the semen; mostly after the early phase of ejaculation) and the sperm (the 'biological' component) are propelled into the urethra via the 2 ejaculatory ducts, mostly after the first jet of semen. See http://prostatitis.org/redirect.php?lin ... gure/fig01

I know in my case that I have better orgasms (force and pleasure) when my semen is less viscous, but the burning tends to get worse on those occasions too - possibly because of better emptying of accumulated fluid from the seminal vesicles.


Last edited by Administrator on Mon Jan 30, 2017 12:51 am, edited 1 time in total.

prostate2010



Mon Jan 30, 2017 12:23 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Doctors haven't told me anything about semen ph. Do you know why the ph can raise or fall? How can I put it normal? Is it because a chronic infection?


Mon Jan 30, 2017 7:56 am
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Post Re: My story, chronic prostatitis associated with weak orgas
I don't remember if I mentioned that I often have a similar itchy and burning feeling in the anus. When I scratch it (obviously with clothes) I feel how that feeling is connected with the prostate and even the urethra. It's a very similar feeling to what I feel when I have burning ejaculations. I don't know how it's all connected but I suspect there is a relationship. That zone is always too hot and burning and maybe that affects the urogenital system. Any clues? Maybe that I have some chronic infection or parasites in the anus?

I know I must ask those questions to doctors but they would laugh at them.


Mon Jan 30, 2017 9:41 am
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Post Re: My story, chronic prostatitis associated with weak orgas
I have been reading that a pinworm infection may cause urinary symptoms also.

http://prostatitis.org/redirect.php?lin ... _infection

I did some months ago a stool test to check for parasites and it came negative but in Wikipedia says that it's not very useful because those parasites rarely end in the feces. I'm having now itchy anus that's why I'm thinking about this theory. The problem is that the diagnosis part in Wikipedia is very poor. I don't know what to do. Maybe the root of my problem started with that and still continues fluctuating.

How can I test by myself if I'm infected with those? Anyone has that problem along with the prostate one? I'm suspecting that there is some connection because the burning is similar. But I don't know what to do. Which specialist should I ask about this? I think that I have something but I'm quite lost and helpless.


Mon Jan 30, 2017 9:58 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Your burning sensation related to ejaculation is not a urinary symptom and I don't remember you mentioning actual urinary symptoms before. Common causes of anal itch would include hemorrhoids and anal fissures.


Mon Jan 30, 2017 12:42 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
I mean it's an urogenital system issue. And sometimes it burns a little also when urinating, specially in the mornings. Ejaculation is also worse in the mornings. It seems that when I wake up that zone is more inflamed. I don't know why.

I'm lost again. Looking for answers where the symptoms guide me.


Mon Jan 30, 2017 1:29 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Chavalote wrote:
I'm lost again. Looking for answers where the symptoms guide me.


All these sensations that you're discussing are characteristic of inflammation. Ph issues, parasites, or infection are not necessary for inflammation to occur.
Focus on the PT for a few months and see what changes you notice from that.

_________________
Symptoms (starting 12/2014): Low libido, poor sensitivity; occasional urinary burning
Past Treatments: 6x Heparin bladder Injection. Elmiron (2x daily), Meriva Curcumin (500mg 2x daily), Physio (good!), Vistaril, Uro Prostate Massage (helpful!), Flower Pollen, Antibiotics (for about a month),


Tue Jan 31, 2017 3:21 am
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Post Re: My story, chronic prostatitis associated with weak orgas
Can a chronic hyperventilation cause the symptoms I'm suffering? I say this because the other day I had a panic attack and I suffered days of serious anxiety with paresthesias and other weird symptoms. I went to the general doctor and he said that hiperventilation can cause all of that. I suspect that I have chronic hyperventilation, that I have forgotten how to breathe correctly and my oxygen/CO2 balance is always bad. I read that that can lead to a alkaline blood, and that can lead to multiple health unbalances. I thought about what you said in this forum about alkaline semen and burning when ejaculating and thought that maybe a chronic hyperventilation is the main cause in my case. Anyone knows something about this?

These days I'm quite desperated because this thing doesn't heal and I don't know what to do. My libido is always very low and I can't enjoy anything related to sex because my sexual pleasure and orgasms are numb. I can't count on urologists or western medicine anymore because I have seen that they don't know anything about this problem and I don't know what else I can do. My anxiety was also caused because a doctor and I have got scared of them, like a trauma.

This is very weird. When I try to masturbate I don't feel pleasure at all. My penis feels like numb and sometimes it feels itchy, burning and even painful. The erections are difficult to reach and the orgasms are not there, it's only a pressure feeling with the releasing of semen. I'm really tired of this. What in the hell can cause this for so long? (I have been like 5 years or more on this). It's hard to me to think that a muscle tension by itself can be causing this. Anyway, I can't go to the PT because I don't have enough money. I wish I can solve this by myself but I' lost again. I'm even doubting that what is causing this is only a prostatitis. Maybe it's something more complex, related to the whole body.

I'm still virgin and I don't want to have sex under this condition. And the years pass and pass and this doesn't heal. I feel like I never will be able to have sex due to this. Because I don't want to experience my first time with this awful burning and low libido. It's really sad and depressing. I'm 38 years old.


Sun Feb 26, 2017 8:41 am
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Post Re: My story, chronic prostatitis associated with weak orgas
I have been trying to find words to explain the feeling I experience when touching my penis trying to masturbate and I think that it's the corpus cavernosum what feels weird. It's like if inside there is something like tiny spots that burns. That also mess a little with the erection making it weak. What can it be?


Sun Feb 26, 2017 3:14 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Have been tested for sleep apnea? Might be worth looking into.


Sun Feb 26, 2017 6:49 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
How can I test that? I think that I suffer that kind of problem because sometimes I wake up thinking that I'm going to suffocate.


Sun Feb 26, 2017 9:38 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Chavalote wrote:
Can a chronic hyperventilation cause the symptoms I'm suffering?

My guess is probably that no, it's not causing your chronic prostatitis. However, it's probably all feeding off each-other. Stress caused by your symptoms causes stress on the nervous system, which includes the brain, which is responsible for causing things like panic attack/anxiety. Anxiety causes more muscle tension and nerve disruption, which aggravates CPPS. This is why relaxation and positive thoughts are so important.

Chavalote wrote:
It's hard to me to think that a muscle tension by itself can be causing this. Anyway, I can't go to the PT because I don't have enough money. I wish I can solve this by myself but I' lost again. I'm even doubting that what is causing this is only a prostatitis. Maybe it's something more complex, related to the whole body.

I'm not sure what to say further about muscle tension possibility as it's been discussed so much on your thread, and this entire forum, already. It amazes me how people will say it seems so impossible for mechanical issues to cause something like CPPS, but they come up with all sorts of things like alkaline blood as a likely cause. I'm not saying it's NOT something to do with that, but it seems much more unlikely to me compared to mechanical causes. You are a series of bones, muscles, organs, and nerves. There's not a lot more to you than that. If I have a car, and something pinches a wire under the hood, I'll probably have a light go out, the radio won't work, or a system fail entirely like the car won't even start. Humans aren't overall THAT different in that if something is physically pinched or reduction in blood supply, a symptom appears somewhere. We are more complex, though, in that our symptoms may show up in ways we don't expect.

As for not having the money, my advice would be spend time researching a PT who really knows what you're talking about with this condition, and save up for a few months or however long so you know you won't be wasting your first visit. In the meantime, focus on positive energy rather than symptoms (I would just stop thinking about sex for a year and focus on something you enjoy. Did you not enjoy anything for your first 34 years of life BEFORE sex?) Career, hobbies, etc etc., so that when you're ready for sex/dating, you are in a better point in your life than where you are now and have positive energy built up to use for dating. )

_________________
Symptoms (starting 12/2014): Low libido, poor sensitivity; occasional urinary burning
Past Treatments: 6x Heparin bladder Injection. Elmiron (2x daily), Meriva Curcumin (500mg 2x daily), Physio (good!), Vistaril, Uro Prostate Massage (helpful!), Flower Pollen, Antibiotics (for about a month),


Sun Feb 26, 2017 9:50 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Fantom451 wrote:
Anxiety causes more muscle tension and nerve disruption, which aggravates CPPS. This is why relaxation and positive thoughts are so important.

...It amazes me how people will say it seems so impossible for mechanical issues to cause something like CPPS
Fantom451, the point you're missing is that Chavalote does not have CPPS.


Sun Feb 26, 2017 10:25 pm
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Post Re: My story, chronic prostatitis associated with weak orgas
Maclondon wrote:
Fantom451 wrote:
Anxiety causes more muscle tension and nerve disruption, which aggravates CPPS. This is why relaxation and positive thoughts are so important.

...It amazes me how people will say it seems so impossible for mechanical issues to cause something like CPPS
Fantom451, the point you're missing is that Chavalote does not have CPPS.


Interesting! When was this discovered? What is your evidence? Also, why would he continue to post on a prostatitis forum?

_________________
Symptoms (starting 12/2014): Low libido, poor sensitivity; occasional urinary burning
Past Treatments: 6x Heparin bladder Injection. Elmiron (2x daily), Meriva Curcumin (500mg 2x daily), Physio (good!), Vistaril, Uro Prostate Massage (helpful!), Flower Pollen, Antibiotics (for about a month),


Mon Feb 27, 2017 2:29 am
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Post Re: My story, chronic prostatitis associated with weak orgas
I agree with Fantom on this issue, and like him im not suggesting it is not an infection or an imbalance or something more obscure but mechanical issues can cause all sorts of issues.

What he describes sounds like low testosterone and muscular type pain which happens after orgasm. An orgasm is an intense muscular contraction so nerves are affected and if the muscles do not relax they could cause the burning sensation.

Why would that happen any number of reasons muscle weakness can be caused by dietary problems which leads to mechanical issues in which case a good PT who can look at your and assess you for anything that could be causing strain.

Have you had your testosterone checked before and any other things that can lower your levels?

I think there all things worth checking out its better to be wrong about them and have checked.


Mon Feb 27, 2017 8:54 am
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Post Re: My story, chronic prostatitis associated with weak orgas
After a long pilgrimage from specialist to specialist one urologist performed a rectal examination to me. He said that I had a prostatitis and specially the left side hurted, if pushed. Later, one urologist said that rectal examination does not tell anything about prostatitis. Since my symptoms are different from most of the members of this forum I'm not sure if it's a prostatitis what is causing my problems. Maybe it's a prostatitis, but caused by some weird body condition.

Also, I have tested positive to several bacterias in the past but I have never felt relief with the treatments, even if the later culture result were negative. The last culture I did were negative so I stopped doing cultures because I found it stupid. I had the sensation that they don't know well what is going on. I have tried a lot of antibiotics and no one had done anything good to me and they had some bad effects.

I have been one month on epilobium but I don't feel significant changes in my usual symptoms. I tried a natural herbs compound to treat urinary infections and the first days my symptoms and orgasms improved a little but it came back to the same thing. So, I'm quite lost.

Fantom, I'm 38 years old and virgin. My libido is down and I can't feel normal pleasure masturbating. I don't understand how can you suggest me to forget about sex one year (like if I were some kind of sexual obsessed) and think "positive". My problem generates a lot of anxiety, sadness and loneliness because doctors don't know anything about it and it's quite unusual. I'm not all the day thinking about sex, but I'm concerned about this because if this continues in this mood I'll never be able to experience normal sexual pleasure anymore. If I have sex with some woman, it will be a bad experience because that burning feeling that ruins all. I think that it's normal and human to get concerned and be sad.


Mon Feb 27, 2017 10:08 am
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