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 Advice plz or suggestions 
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Joined: Fri Apr 14, 2017 3:44 pm
Posts: 6
Location: Scotland
Post Advice plz or suggestions
Hi everyone, go gentle with me. I have had some kind of condition since last october and been on nhs waiting list for urologist since December.

Last october when my issues happened i had pain in my ball sac area but it wasnt my actual balls that where sore it felt it was from the tube connecting to them. Had my balls checked a few times and got put onto anti bios. Was back and forth to the docs and then they decided I possibly have epididymitis so I said ok at least thats not to serious. So anti bios where changed back and forth between cipro and Trimethoprim. So thats been going on for a few months, did the anti bios work, I honestly couldnt say yes or no. Initially the pain was in my ball sac as if i had been kicked in the balls, my left groin was sore and there was pain on my left quadrant, felt really tight there like a golf ball.

So I get sent to hospital for ultrasounds and both are fine.

So i go back to my docs about 1 month ago to moan about urology waiting time and to say that im still not better. My symptoms have changed a bit. I was always having issues during the night urinating so the doc put me on Tamsulosin which has helped for during the night. My back is pretty sore, my left hip is sore and my left disc area is sore. I still cannot lie on my front in bed because of the pain, not as bad as it was but still unable to lie on my front. During the night I will randomly get what i think is burning pain around my prostate area and bladder, this can come and go and lasts about 30 mins to 1hr. Other sympton is that i can still feel something in my left quadrant, below the belly button and to the left near my groin.

Finally, my urine result at the start and recently had blood in them thats not visible to me and the doc checked my protate which he said was fine.

The doc thinks its maybe prostatitis but only urology willl confirm that but I think its def related to my prostate whatever it is as the Tamsulosin has helped me during the night. When I lie down its at its worst apart from my hip and back which is sore most of the time. The only other thing I can add is that I have a sore left leg also so im not sure if thats sciatica or if its to do with my prostate issue.

Im very worried incase its cancer and i have been waiting on list since Dec, from my symptons do you guys thinks its Prostatitis.

Thanks for your time.


Sat Apr 15, 2017 3:53 pm
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Joined: Fri Apr 14, 2017 3:44 pm
Posts: 6
Location: Scotland
Post Re: Advice plz or suggestions
To update, my back and groin are really sore aswell as my leg tonight. I think it's my pelvis, from low back disc area round to front and groin is really sore, gets any worse I will be struggling to walk. 4 months on a nhs waiting list, disgrace.


Sat Apr 15, 2017 6:40 pm
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Joined: Sun Oct 16, 2016 9:59 pm
Posts: 74
Post Re: Advice plz or suggestions
Hi tolme, & sorry you're having such a tough time.

One thing you can do while you wait for urology is to ask your GP about a semen culture (and sensitivity). Both Cipro and trimethoprim penetrate the prostate well, but duration of therapy is typically a month to 6 weeks for effective treatment. A lot of pathogens are resistant to these meds now days, or you may have developed a resistant bug if your duration of therapy wasn't adequate.

In order for your uro to provide effective treatment, he'll need to know what bug you've got, and whether or not it is resistant to his favorite therapy, and a semen culture and sensitivity is the only way to determine this. You should be off antibiotics for a month to get a good culture, so if you've been on anything besides the Tamsulosin recently, wait 30 days after you stop anti-B's before you do your semen culture.

The testicular ultrasound should have detected cancer if there was anything in your testes. Don't know how old you are, but prostate cancer is rare in those under 40-50 years of age. Your GP might also order a PSA test to evaluate prostate cancer possibility, and if you're over 50, your uro will want to see this also.

Get these tests done, & you're uro should be ready to start treatment immediately if you go to him with the results from these tests in hand. If you get a positive culture and sensitivity, your GP may even be able to treat this, as protocols are pretty standardized once you know what you're dealing with.

Hope you get to the bottom of this soon, & Best of Luck!

_________________
Once you eliminate the impossible, whatever remains, no matter how improbable, must be the truth
Sherlock Holmes


Sun Apr 16, 2017 2:49 am
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Joined: Fri May 08, 2015 2:59 pm
Posts: 463
Post Re: Advice plz or suggestions
Hard to say what is going on, I hope you get to see a specialist soon.

It actually sounds a bit like sciatica, I'm recovering from that. Have you gone to see a local physio? Osteopaths and chiro can be quite good for that kind of thing too.


Sun Apr 16, 2017 5:55 am
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Joined: Fri Apr 14, 2017 3:44 pm
Posts: 6
Location: Scotland
Post Re: Advice plz or suggestions
First of all I'd like to say thanks for getting back to me.

Ok, I have already had urine and psa tests done. PSA test was fine and Urine came back as non bacterial.

Prostate was checked and it was fine, ultrasound done on balls, kidneys and I think bladder and nothing.

Regards to Sciatica, I do suffer from that as I need to change bed and thats another issue trying to find a suitable bed. My back and leg pain could well be sciatica but it doesnt explain my issue urinating once I lie down, or my issue that i cannot lie on front because of pain below belly button down towards penis. Also I can only sleep on my back and at random times during the night i will get pain from my bladder or prostate, its like a burning sensation i would say. I would say that apart from the back pain I'm 90% better than when this started, if I could lie on my front with no pain from bladder/prostate down to penis then that would be perfect as I can work on the back issue if its Sciatica. Another thing is that I seem to be tired alot or not feeling great, I cant work out if this is down to not sleeping great or just whatever i have is making me feel like that.

Also right from day one of this I've had the thing next to my left groin, below belly button, just above penis and to the left.

I've been on the waiting list for 4 months and they wont move me forward as they dont consider it urgent. Regards to cancer I was more concerned about bladder cancer than testicle as I know its not a testicle issue.


Sun Apr 16, 2017 4:10 pm
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Joined: Fri Apr 14, 2017 3:44 pm
Posts: 6
Location: Scotland
Post Re: Advice plz or suggestions
Keep forgetting to add this, I had my urine test last October and another about 3 weeks ago, both contained blood, this is not visible to me but came up in the test.


Sun Apr 16, 2017 6:20 pm
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Joined: Sun Oct 16, 2016 9:59 pm
Posts: 74
Post Re: Advice plz or suggestions
Urine cultures are notorious for false negatives, particularly if they are done after the first round of anti-B's. The anti-B's knock out the infection everywhere but inside the prostate, which is encapsulated and difficult to diagnose and treat.

A mans plumbing has "valves" that keep urine out of the prostate gland, and can also help infections hide in the prostate. Semen/ejaculate is largely made up of prostatic fluid, so if you've got infection in there an ejaculation should pump infected fluid out of the prostate where it can be cultured. A semen culture, done at least a month after taking any anti-B's is your best bet to find a bug that may be hiding/festering in your prostate.

Semen is just as cheap & easy to culture as urine, so there's no reason why your GP would not want to order this lab. I had negative urine cultures too, but a semen culture turned up haemophilus bacteria.

Sometimes urine "cultures" simply involve a dip-stick test for nitrates in urine. This is not a true culture & sensitivity, but it is dirt cheap, which is why a lot of doc's test urine for nitrates, rather than doing a proper culture & sensitivity on semen.

Hope this helps.

_________________
Once you eliminate the impossible, whatever remains, no matter how improbable, must be the truth
Sherlock Holmes


Sun Apr 16, 2017 10:36 pm
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Joined: Fri Apr 14, 2017 3:44 pm
Posts: 6
Location: Scotland
Post Re: Advice plz or suggestions
Was at the docs today as Im still waiting to see a Urologist. He's gave me more prostate pills as he said they take around 2 months to work although strangely they worked on the first night I took them and the following week. They seem to have stopped now as I was up 4 times lastnight and im shattered. I also explained those 4 times I woke up I had an erection everytime which made it worse when needing to pee. He said its look I'm having errections so I'll guess I'll go with that. The prostate pills on general seem to have made the blood flow so much better, penis is double the size like the good all days when not erect.

I can almost lie on my front, can do this for a few mins and then theres pain from bladder/prostate and need to go onto my back. So the wait goes on.


Wed Apr 19, 2017 8:10 am
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Joined: Fri Apr 14, 2017 3:44 pm
Posts: 6
Location: Scotland
Post Re: Advice plz or suggestions
Actually begining to think this is not Prostattits, from day from I've had a pretty sore pain between belly button and penis to the left hand side towards my groin. It seems to go into spasms or something especially during the night, this also hurts my groin and left hip. I've been checked for a Hernia and they said it wasnt that. I was thinking my bladder but my understanding was that the bladder is central wheras this pain is left hand side and its always been there from last october.


Fri Apr 21, 2017 5:36 am
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Joined: Thu Nov 17, 2016 3:20 pm
Posts: 101
Post Re: Advice plz or suggestions
Im experiencing same discomfort now. Could be epididymis that runs up from testicle to lower left pelvic area. When i had epididymitis after vasectomy that the pain i got. Also had it when diagnosed with prostatitis. Remember that whatever you have in prostate could spread to epididymis..testes..or wherever.
When im on antibiotics i never feel it. As soon as im off it comes back.


Fri Apr 21, 2017 4:49 pm
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Joined: Wed Feb 10, 2016 6:43 pm
Posts: 17
Post Re: Advice plz or suggestions
Which hospital are you waiting for? You can call the number that is on the refarral letter and find out from them which hospital have shorter waiting times? Especially if you are in London where there are so many hospitals.


Fri Apr 21, 2017 6:57 pm
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