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 Forum: Prostatitis Discussion   Topic: Fosfomycin for Prostatitis 2018 Latest Info

Posted: Thu Feb 01, 2018 3:42 am 

Replies: 0
Views: 1706

Hi All, on my first anniversary symptom free after successful fosfomycin treatment for my recurring haemophilus infection. http://forum.prostatitis.org/viewtopic.php?f=2&t=1969 I was disappointed others who tried fosfo didn't have complete cures like I did, though many haven't found cures with t...

 Forum: Prostatitis Discussion   Topic: Fosfomycin / Monurol for Prostatitis: The Full Monty

Posted: Wed Jul 19, 2017 10:59 pm 

Replies: 96
Views: 21786

Hi CHIP, & thanks for the update. Sorry the fosfo doesn't seem to be fixin' what ails you. Are you going to try for another semen culture to see if your infection has persisted? I think you're supposed to wait around 30 days after anti-B therapy for followup cultures. It's discouraging we haven'...

 Forum: Prostatitis Discussion   Topic: Fosfomycin / Monurol for Prostatitis: The Full Monty

Posted: Mon Jul 17, 2017 12:50 am 

Replies: 96
Views: 21786

Best of Luck LC. We need another WIN for this med here.

 Forum: Prostatitis Discussion   Topic: Confused about Fosfomycin... need help!

Posted: Tue Jun 27, 2017 9:00 pm 

Replies: 5
Views: 1024

I've heard C-Diff has a peculiar odor, rather like horse manure. Hope you're not getting this Twister.

Godspeed to you 454

 Forum: Prostatitis Discussion   Topic: Prescribed Cipro but am concerned

Posted: Tue Jun 27, 2017 6:37 pm 

Replies: 7
Views: 1482

Millions of quinolone prescriptions are written every year, and a few hundred folks every year claim their lives have never been the same since taking them, sometimes after just a couple of pills. Good odds if you're a gambling man, but I wouldn't want the risk if it was at all avoidable. I wouldn't...

 Forum: Prostatitis Discussion   Topic: Confused about Fosfomycin... need help!

Posted: Tue Jun 27, 2017 5:33 pm 

Replies: 5
Views: 1024

Sorry you're having this flare Twister. Are you drinking plenty of fluids during the day? The kidneys are supposed to filter fosfo out of the blood and concentrate it in urine fairly swiftly. I never had any increase in symptoms while on fosfo, but I suppose it's possible if you're not drinking enou...

 Forum: Prostatitis Discussion   Topic: Fosfomycin / Monurol for Prostatitis: The Full Monty

Posted: Fri Jun 23, 2017 2:32 am 

Replies: 96
Views: 21786

Probiotics won't hurt the effectiveness of fosfomycin, but fosfomycin might kill your probiotics if you take them too close together.

I took my fosfo right before bed, & my probiotic with lunch the next day. A 12 hour separation is probably best.

 Forum: Prostatitis Discussion   Topic: My Fosfomycin log

 Post subject: Re: My Fosfomycin log
Posted: Fri Jun 23, 2017 2:27 am 

Replies: 3
Views: 1187

100 ml may be the minimum amount required to dissolve the med, but a bit more dilution might be in order. A 3 gram dose will be 3 grams whether you mix it with 100 ml or 300 ml. You don't want to drink so much fluid you wash it through your system too swiftly (a liter or more), but more dilution mig...

 Forum: Prostatitis Discussion   Topic: My Fosfomycin log

 Post subject: Re: My Fosfomycin log
Posted: Thu Jun 22, 2017 7:15 pm 

Replies: 3
Views: 1187

How much water are you mixing it with Twister? I always dissolved mine in around 8 ounces of lukewarm filtered water, & found it didn't have much of a taste to it at all. Sort of like mineral water with a hint of tangerine. I had no stomach symptoms, but stool turned a bit "soft-serve"...

 Forum: Prostatitis Discussion   Topic: Fosfomycin / Monurol for Prostatitis: The Full Monty

Posted: Thu Jun 22, 2017 6:58 pm 

Replies: 96
Views: 21786

Fosfo is supposed to be non-reactive with food & medications. Don't know about supplements, but I was taking SAM-e, Vitamin-C, B-Complex and E. I avoided taking minerals, as I worried they might interact with the phosphorous component of the drug. Some minerals (mag & cal) are alkalizing, &a...

 Forum: Prostatitis Discussion   Topic: CPPS or something else?

 Post subject: Re: CPPS or something else?
Posted: Thu Jun 22, 2017 12:18 am 

Replies: 1
Views: 1444

In my post on this thread: http://forum.prostatitis.org/viewtopic.php?f=2&t=1868 we see "calcifications" were blamed regarding the antibiotic failure rate in a study done with fosfomycin... "Lastly, prostatic calcifications were present in 4/7 (57%) patients with microbiological f...

 Forum: Prostatitis Discussion   Topic: Fosfomycin / Monurol for Prostatitis: The Full Monty

Posted: Thu Jun 22, 2017 12:06 am 

Replies: 96
Views: 21786

Hi Twister, I was diagnosed with chronic bacterial prostatitis by a board certified urologist based on positive culture for haemophilus bacteria (after two rounds of doxy) and recurring epididymitis that switched sides from right to left over 5 months time. My first symptom was watery, caramel color...

 Forum: Prostatitis Discussion   Topic: Fosfomycin and Oxybutynin

Posted: Fri Jun 16, 2017 1:03 am 

Replies: 13
Views: 2338

Fingers crossed for you Log. We need another win here! Counting on you to pull this off.

 Forum: Prostatitis Discussion   Topic: surgery?

 Post subject: Re: surgery?
Posted: Fri Jun 16, 2017 12:58 am 

Replies: 14
Views: 2435

A lot of guys walking into an operating room for prostatectomy will never be able to have sex again. The rate of lasting impotence varies, depending on where you look, but the odds of regaining completely normal sexual function aren't all that rosy. I work as a surgical tech, & we have a saying:...

 Forum: Prostatitis Discussion   Topic: Fosfomycin and Oxybutynin

Posted: Thu Jun 15, 2017 2:22 pm 

Replies: 13
Views: 2338

Another strike-out? Sorry to hear about this. I agree quin's should be more effective if your bug is sensitive and the multiple black box warnings of persistent and disabling side effects don't spook you. I believe CHIP was trying the fosfo too. Haven't heard from him in a while. My last hope for a ...

 Forum: Prostatitis Discussion   Topic: Fosfomycin and Oxybutynin

Posted: Thu Jun 15, 2017 1:45 am 

Replies: 13
Views: 2338

Sorry to hear you didn't get a good result world.

I got so excited with my results, I was hoping for a few more success stories.

Does your doc have a plan on what to try next?

 Forum: Prostatitis Discussion   Topic: Fosfomycin and Oxybutynin

Posted: Wed Jun 14, 2017 1:22 am 

Replies: 13
Views: 2338

My pharmacy was the same way... Not in stock, next day delivery. Fosfo fell out of favor and is not used much anymore as it was approved only as a "one & done" treatment for female UTI's, & the single dose was only effective about 70% of the time. Doctors only used it as a back-up ...

 Forum: Prostatitis Discussion   Topic: Fosfomycin and Oxybutynin

Posted: Wed Jun 07, 2017 11:14 am 

Replies: 13
Views: 2338

Fosfo a quinolone? Some doctors must think their patients are so ignorant they can placate them with complete balderdash. If he truly believes this, a refresher course in pharmacology (or possibly a drug test) might be in order. Don't know where you're located, but here in the states if a drug isn't...

 Forum: Prostatitis Discussion   Topic: does fosfo cause C-diff?

Posted: Thu Jun 01, 2017 2:18 am 

Replies: 11
Views: 2119

Here's a good page on antibiotic associated C-diff. http://prostatitis.org/redirect.php?link=http://www.pharmacytimes.com/contributor/sean-kane-pharmd/2017/03/which-antibiotics-are-most-associated-with-causing-clostridium-difficile-diarrhea "Without a doubt, clindamycin carries the highest risk...

 Forum: Prostatitis Discussion   Topic: Fosfomycin / Monurol for Prostatitis: The Full Monty

Posted: Wed May 24, 2017 8:08 pm 

Replies: 96
Views: 21786

I got frustrated with the cost too and with symptoms resolving completely at around day 21, I quit at only 30 days. Perhaps I got lucky, but I thank God I didn't have to move on to more problematic anti-B's like sulfa/quinolones. Fosfo is supposed to be very effective for simple UTI's, both gram pos...

 Forum: Prostatitis Discussion   Topic: Fosfomycin / Monurol for Prostatitis: The Full Monty

Posted: Wed May 17, 2017 2:45 am 

Replies: 96
Views: 21786

Fosfomycin / Monurol is approved and marketed as a "one & done" treatment for female UTI's, typically in pregnant women due to the low toxicity and low reaction/allergic potential. Because of this, the manufacturer must make its entire profit from the single dose, making it rather pric...

 Forum: Prostatitis Discussion   Topic: Fosfomycin / Monurol for Prostatitis: The Full Monty

Posted: Tue May 16, 2017 11:34 pm 

Replies: 96
Views: 21786

In the USA, once you've got a legal scrip (for any amount) from a local doctor, you can order more from an online (international) pharmacy, or bring additional supplies across the boarder. I'm in San Diego, so I got more from Mexico. Getting my doc to prescribe it wasn't easy, but I told him I was a...

 Forum: Prostatitis Discussion   Topic: Fosfomycine making arthritis worse

Posted: Mon May 15, 2017 1:59 pm 

Replies: 2
Views: 793

This page: http://prostatitis.org/redirect.php?link=http://www.rxlist.com/monurol-side-effects-drug-center.htm has an extensive report on common side effects, less common side effects, adverse events and possible/theoretical issues with fosfo. Nothing I can find linking this med with arthritis, thou...

 Forum: Prostatitis Discussion   Topic: Fosfomycin / Monurol for Prostatitis: The Full Monty

Posted: Fri May 12, 2017 2:01 am 

Replies: 96
Views: 21786

Spondy? What is this? All drugs carry some risk for side effects, but fosfo is one of the most benign Anti-B's I've seen. Even at high doses (12-16 grams/day) given intravenously in seriously ill ICU patients, they didn't note any substantial side effects. http://forum.prostatitis.org/viewtopic.php?...

 Forum: Prostatitis Discussion   Topic: Cured chronic bacterial prostatitis

Posted: Tue May 09, 2017 2:18 pm 

Replies: 22
Views: 4878

Thank you for your contribution Adrian. We need more success stories to help build a consensus on what really works.

Glad you manged to find a good doctor & treatment! The protocol seems simple and logical as well.
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